2025 Annual Appeal

2025 ANNUAL APPEAL

Together, We Create Hope

Thank you for your continued support of the Vasculitis Foundation (VF). It has fueled the strides we’ve made in education, diagnosis, treatment, access to care, and research for the past 40 years.

Thanks to your generous support, we continue to be a beacon of hope by:

Funding cutting-edge research that brings us closer to new treatments—and a cure
Expanding educational programs like Navigating Your Vasculitis Journey
Creating supportive communities through conferences and support groups
Advocating for early diagnosis and expert care through our Find A Doctor tool and awareness initiatives

Vasculitis Stories

May is Vasculitis Awareness Month! Joshua Roberts' remarkable journey embodies the transformative power of connections through the Vasculitis Foundation's support programs and educational resources.

Learn more about Vasculitis Awareness Month and ways you can help create life-changing connections by visiting https://www.vasculitisfoundation.org/living-well/raise-awareness/!

Help us connect more patients to expert care, peer support, and vital resources by donating today at https://vasculitisfoundation.org/ways-to-give/make-a-donation/.

Thank you to our #VAM2025 sponsors: Amgen and AstraZeneca

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Joshua Roberts: Life Changing Connections

2024 Vasculitis Foundation Annual Appeal

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Antwain: Your Support Changes Lives

Living with a rare disease like vasculitis can be challenging, especially when family, friends, physicians, and others don't know what it is or understand your experience. In this video, people living with the disease and their care partners share what they wish others knew about vasculitis.

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What We Want You to Know About Vasculitis

Annaruth, who's living with Takayasu arteritis, a form of vasculitis, shares how participating in research has positively impacted her life and empowered her community.

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Participating in Vasculitis Research is How I Give Back

Annruth and John share how the Vasculitis Foundation resources such as support groups and webinars have helped them navigate Annaruth's vasculitis diagnosis.

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"Right now, it's like this." Annaruth & John's story

Victor James, who is living with vasculitis, shares why he supports the Vasculitis Foundation through monthly giving. www.vasculitisfoundation.org

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Victor James on Monthly Giving

Jess Kanciruk received the life changing diagnosis of GPA in the summer of 2021. Because of donors like you, she was able to turn to the Vasculitis Foundation for support on her vasculitis journey. Thank you for standing with people living with vasculitis. Please consider investing in the VF’s mission today! Donate now: https://vasculitisfoundation.org/donate-to-the-vf/

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Your Support Changed Jess's Vasculitis Journey

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Teresa Searls: Support the VF

2022 Annual Appeal

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Nina's Story

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A Mother's Perspective

2024 Vasculitis Foundation Annual Appeal

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Christine: Your Support Changes Lives

Vasculitis Stories

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Joshua Roberts: Life Changing Connections

2024 Vasculitis Foundation Annual Appeal

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Antwain: Your Support Changes Lives

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What We Want You to Know About Vasculitis

Annaruth, who's living with Takayasu arteritis, a form of vasculitis, shares how participating in research has positively impacted her life and empowered her community.

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YouTube Video UExyNkJ3YXU2dVNtdWxMNGMwbWNtclB3Yml2cTNhZlFHYS4wOTA3OTZBNzVEMTUzOTMy

Participating in Vasculitis Research is How I Give Back

Annruth and John share how the Vasculitis Foundation resources such as support groups and webinars have helped them navigate Annaruth's vasculitis diagnosis.

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"Right now, it's like this." Annaruth & John's story

Victor James, who is living with vasculitis, shares why he supports the Vasculitis Foundation through monthly giving. www.vasculitisfoundation.org

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Victor James on Monthly Giving

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Your Support Changed Jess's Vasculitis Journey

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Teresa Searls: Support the VF

2022 Annual Appeal

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Nina's Story

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A Mother's Perspective

2024 Vasculitis Foundation Annual Appeal

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Christine: Your Support Changes Lives

Share Your Messages of HOPE!

“Vasculitis will not define who you are. You are always in control, even if it doesn’t always feel that way initially.”

“The VF reduced our fear. Hearing other families’ journeys gave us perspective and hope for better treatments and outcomes.”

“The VF has helped me so much with the huge task of getting on with my life after my diagnosis. Next month makes four years since that initial shock. My daughter found the VF online and told my wife about it. And when I was up to it I joined the support group. Through the VF we all gain strength to get back to living as best we can.”

What has given you HOPE throughout your vasculitis journey?

The Vasculitis Foundation is collecting patient photos and quotes for our upcoming Annual Appeal & Awareness campaign! Your story could inspire others facing similar challenges.

Share how the VF has given you HOPE
Share HOPE you want to give other patients
Share what brought HOPE to you throughout your journey

Submit your photo and quote for a chance to be featured in our Fall communications across email, video, and social media!

Join us in spreading hope, knowledge, supporting our community, and funding the Vasculitis Foundation’s mission.

Take Action. Make a Difference.

Make a lasting impact today—donate to the Vasculitis Foundation during our Annual Appeal and help us transform lives.

Show your support and raise awareness for the vasculitis community by ordering a 40th Anniversary t-shirt today! (Other styles available)

Empower your network to make a difference! Create a Facebook fundraiser benefiting the Vasculitis Foundation to help us drive impactful change.

Explore planned giving opportunities, including making a Qualified Charitable Distribution from your IRA or including the VF in your will.

Stories

Advancing Comprehensive Vasculitis Care at Northwestern

Navigating EGPA: Henrietta “Henri” Malizia’s Journey of Resilience and Hope

A New Normal: Jennifer Mullen is Living and Thriving with GPA

A New Blueprint for Vasculitis Care: Insights from a Landmark Summit

From Cyclist to Survivor: Kegan Machen’s Unexpected Journey with GPA

Duane Moore’s Journey to a Vasculitis Diagnosis: Finding Answers and Hope

Heather Schmitt’s MPA Journey Teaches Resilience

Bonnie Willi’s Vasculitis Journey Began Postpartum

Nola Johnson Strives to Raise Awareness Through Fundraisers

The Power of Community Offers Brad Ottley Hope

In the Face of Chronic Illness, Glenn Hill Finds Strength and Purpose

Keya Rohovit-Wrolson Found Strength Through Her Journey

Research Sheds Light on the Information Needs of Patients with Vasculitis

“I Choose to Live”: Cathy Beesey’s Journey Through Vasculitis

Vinay Kamath, 15, Wants More Vasculitis Research So He Started a Fundraiser

Finding Purpose Through Pain: Khamia Montgomery’s Journey with Vasculitis and Entrepreneurship

Kimberly Fisher Spreads Awareness About Behcet’s as a Nurse and a Patient

Vasculitis and Motherhood: A Story of Hope and Resilience

Young Adults Connect at Nashville Conference, Offer Hope to One Another

The Importance of Early Diagnosis: An Experience with GPA

Patients Needed for International Childhood Takayasu Study

His Grandmother’s Kidney Donation Helped Save Nathan’s Life

Allison Long Keeps Moving Toward Her Goals: A Marathon and a Medical Career

Dr. Catherine Sims Leads Team Researching Pregnancy and Vasculitis

Sharan Knoell Champions the Doctor Who Diagnosed Her

Rare Disease Day is All About Sharing Information

Annie Reynolds, Diagnosed Young, Creates Children’s Book for Vasculitis Patients

“The Vasculitis Foundation Saved My Life.”

A Vasculitis Long-Timer Relies on the Power of Connection

Veterans Affairs is Working to Give Its Patients Greater Access to Vasculitis Care, No Matter Where They Live

Lack of Vasculitis Expertise Leads to Devastating End

“I Didn’t Feel At Home In My Skin” – A Teenager’s Vasculitis Journey

An Early Diagnosis Saved Him; Now He Advocates For Others

Eliza Johnstone’s Vasculitis Diagnosis Came Late, She Now Champions Early Diagnosis for Others

Late Vasculitis Diagnosis Steals Nearly One Decade

Nearly 40 Years with Vasculitis—And Counting

Raising Money for the VF Can be Fun and Easy

“I’m Always Fighting for More Tomorrows” – Jordyn’s Vasculitis Story

Fasenra®(benralizumab) approved by FDA to treat Eosinophilic Granulomatosis with Polyangiitis (EGPA)

Behcet’s: A Medical Students Becomes the Patient

1 in 4 patients may relapse on rituximab maintenance, study finds

Vasculitis Pick-Me-Up Playlist

Leaving a Legacy Matters

The Silver Lining of Vasculitis

Meet VF Young Investigator Cecilia Barnini, MD

Pregnancy Outcomes Generally Positive Among Women with Vasculitis

Conquering Vasculitis with Love

Meet VCRC-VF Fellow Sam Falde, MD

Meet VCRC-VF Fellow Ruoning Ni, MD

We Weren’t Meant to Take on Vasculitis Alone

Meet VCRC-VF Fellow Mats Junek, MD, MSc

Polymyalgia Rheumatica (PMR): Diagnosis and Treatment

Polymyalgia Rheumatica (PMR): Understanding the Signs and Symptoms

Understanding the Role of Steroid Treatment in Polymalgia Rheumatica

Bone-Friendly Exercises and Wellness Tips for Polymyalgia Rheumatica

Never-Ending Battle: A Personal Fight for Medical Care

She Never Imagined Being a Sick Parent

HHS Takes Additional Actions to Help People Stay Covered During Medicaid and CHIP Renewals

“He died 4 days before his son was born.” Scott & Kelsey’s Vasculitis Story

Finding a Way Through, Together

Two Sides of a Kidney

Mom’s Determined to Take Back Control Over Daughter’s Vasculitis

Call for Submissions

My Life Changed When I Had a Stroke In College

Revelations: How One Woman is Emerging from her Vasculitis Gloom

We All Deserve Kindness

“I Had No Idea If I was Going to Live or Die” – Alex’s Teenage Journey with Vasculitis

“What If Vasculitis Stops Me From Becoming a Mother?”

Top Vasculitis-Friendly Travel Tips for the Holidays

Painting Her Pain: How One Woman Uses Art to Tell Her Vasculitis Story

12 Things I’m Grateful For Because of Vasculitis

Amgen Successfully Completes Acquisition of ChemoCentryx

US FDA approves Regeneron-Sanofi’s Kevzara to treat polymyalgia rheumatica

“We Need Each Other” – The Nourishing Power of Friendship in the Vasculitis Community

Fasenra met the primary endpoint in the MANDARA Phase III trial in eosinophilic granulomatosis with polyangiitis (EGPA)

The Right Doctor Changes Everything

Poems from Our Community

“Will I Ever Feel Normal Again?” How Jenna Lea Faced High School and Vasculitis

Championing Vasculitis Victories: Art Diaz’s Choice to Advocate

VPPRN 6-Month Check-in Forms – Community Dashboard

VF Announces 2023 V-RED Winners

Bestselling Book Series Author Boosts Vasculitis Awareness

She Came. She Saw. She Loved. Tatum Hopper’s Family Celebrates Her Life

“Fatherhood is My Driving Force.” Greg Patterson’s Vasculitis Story

A Patient’s Perspective: Roadblocks to Care Must be Addressed

Pei-Yu Chen, BS, MS, PhD, Awarded Two-Year Grant Through VF’s Young Investigator’s Award Program

Loss & Love: Navigating Motherhood with Vasculitis

David Massicotte-Azarniouch, MD, Awarded Two-Year Grant Through VF’s Young Investigator’s Award Program

ALERT: Changes Coming to Medicaid and Children’s Health Insurance Program Coverage

Introducing Our 2022-2023 VCRC-VF Fellow: Gözde Kübra Yardimci, MD

Introducing Our 2022-2023 VCRC-VF Fellow: Marta Casal Moura, MD, MSc, MSPH

GPA Patient’s Advice for Others Facing a Similar Diagnosis: Remain Positive—You Can Beat This

Steroids and Snow Peas: A Tale of Victory Over Vasculitis

Introducing Our 2023-2024 VCRC-VF Fellow: Roger Yang, MD

Brett Hack Vasculitis Charities: Raising Awareness of This Rare Disease

University of Michigan’s Vasculitis Program: Hoping to Impact Individual Patients and the Approach to the Diseases

MICHAEL AGATHIS | VF Patient Hero 2022

Mom Climbs Highest Mountain in Africa in Memory of Her Extraordinary Daughter

Many Outstanding Questions Still Exist for Vasculitis Patients: The Massachusetts General Hospital Rheumatology Vasculitis Program Hopes to Find Some of the Answers

Our Impact

Education

Provided education and support to nearly 700,000 website visitors and over 5,000 webinar attendees, ensuring information is accessible to those who need it most.

RESEARCH

Something about the V-Bold Impact report

COMMUNITY

Hosted six regional conferences attended by 535+ people across the US. Facilitated more than 245 virtual support groups for 620+ patients, parents and care partners.

TREATMENT

Launched a new VF Webinar series on FDA-Approved Treatment Options, sharing information about potential prescription options and providing patients with questions to ask their healthcare providers.

Living Well

Guided 47 patients through our 6-week Navigating Your Journey course and 265+ people through the course’s adjacent guideline, providing practical coping strategies to those impacted by vasculitis.

EXPERTISE IN CARE

Launched our new Find A Doctor tool, more than doubling our vasculitis-educated providers listed, bringing hope that zip code no longer limits access to quality care