Living Well
Victory Over Vasculitis
A Support & Wellness Program
Our Victory Over Vasculitis health, wellness, and self-advocacy resources have been developed by people, like you, who live with vasculitis every day. They understand the physical and mental struggles that accompany a vasculitis diagnosis. They have known days where they could barely walk to the mailbox and days where they joyfully hiked with friends; they have felt betrayed by their body one moment, and grateful for how hard their body is fighting to heal the next. They urge you to celebrate your victories–both large and small–as you build a beautiful life while living with vasculitis.
Victory Over Vasculitis Program Components
Physical Wellness
& Movement
Sustaining Your Journey
Exercise is beneficial both physically and mentally. From gentle stretches you can do while seated, to cardio and strength training options for all levels, these resources are designed to help you move your body at every stage of your vasculitis journey.
Mental Health
& Mindfulness
Navigating Your Journey
Living with vasculitis requires mental strength and fortitude. The impact vasculitis has on the body is not limited to physical symptoms. These resources are designed to be personalized to meet your needs right where you are now.
Self Advocacy
Advocating for Yourself
What does effective medical self-advocacy look like? It’s going to a medical appointment with questions at the ready. It’s educating yourself about the latest vasculitis research advances and clinical studies.
Creating a Better Way of Life by Sharing Our Stories
Radical Acceptance: Accepting what you can't control
Young Adults discuss living well with vasculitis
Healing Poetry Workshop July 2023
Finding New Meaning After Diagnosis
Note and Letter Writing as a Healing Tool of Connection
Reducing Pain and Anxiety with SomaYoga
Anti-Inflammatory Diet & Vasculitis: What to Eat, What to Avoid
Integrative Health: Strategies to calm the body's stress response
Tips for applying for disability when you have vasculitis
Creating Your New Normal Keynote Address
Approaches to Managing Sleep, Pain, Fatigue and Uncertainty in Vasculitis
The Art and Science of Living Well
Sound Therapy to Reduce Stress and Promote Health & Wellness
Living Well with Vasculitis: A Panel Discussion
Art Heals: How Art Making Promotes Resilience and Wellbeing
Flying Solo: Navigating Vasculitis Without a Partner
Sharing Your Vasculitis Story
9 Pillars of Resilience
Renew and Restore: SomaYoga for Fatigue and Exhaustion
Grief and Vasculitis: The Road from Loss to Empowerment
Dating While Living with Chronic Illness
Aches, Pains, and Love: Navigating Relationships While Living with Chronic Illness
Parenting with Vasculitis
Mind Meets Microbiome: The Gut-Brain Axis and Vasculitis
Share Your Victory
Victory Over Vasculitis Ambassadors
The VOV Ambassadors are patients with vasculitis who are enthusiastic about the health and wellness of the entire vasculitis community. VOV Ambassadors advocate for the VOV program as a means to improve overall wellness. They are the driving force behind the VOV program and the resources it provides to other patients.
Jenn Gordon
Diagnosed with EGPA in 2014
“I have met the most amazing and inspiring people since being diagnosed with vasculitis.”
Brandon Hudgins
Diagnosed with GPA in 2008
“You have the power to deal with the things that are in front of you.”
Stacey Ivits
Diagnosed with EGPA in 2002
“I believe in the transformative power of social connection for healing and well-being.”
Kathy Olevsky
Diagnosed with MPA in 2009
“I’ve really enjoyed my work as the VF webinar host. I know how much all that information has helped me and I hope we are meeting the needs of other VF patients.”
Art Diaz
Diagnosed with GPA in 2017
“Helping other patients with their journey by connecting with them as we share our own experiences. We often feel alone and disconnected; however, we have an amazing vasculitis community that strives to help one another.”
Molly McManus
Diagnosed with EGPA in 2020
“Supporting others who are navigating this complex diagnosis to have self-compassion, to use real self-care practices, and to continue to connect to others for support so that we all might learn to live well right where we are at today in our journey.”