Public Policy

The Vasculitis Foundation (VF) is a nonpartisan nonprofit organization dedicated to raising awareness and educating the vasculitis community about impactful, science-driven legislation and policies that advance access to lifesaving diagnoses and treatments. We engage with other coalitions to lift our voices and amplify the healthcare needs of our community. 

The development of a public policy focus started in 2023 when we asked our community, “What keeps you up at night?”  We sent out over 3,000 surveys and 1,028 people responded.  Overwhelming, the responses involved access to care.

In 2024, the VF worked with Manatt Health Strategies, LLC to create a landscape analysis of the current state of public policy impacting the journey of someone living with vasculitis. In 2025, the VF created a corporate council to bring together stakeholders and discuss areas of focus. We began educating our community on important issues affecting individuals with vasculitis, while providing opportunities to share their story and engage with other organizations shaping public policy.

The goal for 2026 is to create:

• Webinars and sessions at conferences/symposium on policy
•  Education around healthcare issues impacting people living with vasculitis
• Collaborative partnerships with coalitions and organizations