Blog
“The Vasculitis Foundation Saved My Life.”
- Story
- Granulomatosis with Polyangiitis
“The Vasculitis Foundation Saved My Life.” Victor James has spent his whole life in Stafford, VA. He grew up on a farm, hunting and fishing. He got married to his wife of 42 years as a “youngster,” had children and now two grandchildren. “They’ve added a little pep in my step,” he said. And for […]
A Vasculitis Long-Timer Relies on the Power of Connection
- Story
- Takayasu Arteritis
A Vasculitis Long-Timer Relies on the Power of Connection When Sharon was diagnosed with Takayasu arteritis in 1981 at age 30, there was no Internet for her to turn to. In the lab where she was working, she found a medical book with a single paragraph of information about her disease: “If not treated,” it […]
Veterans Affairs is Working to Give Its Patients Greater Access to Vasculitis Care, No Matter Where They Live
- Story, Veterans Day
- Giant Cell Arteritis, Uncategorized
Veterans Affairs is Working to Give Its Patients Greater Access to Vasculitis Care, No Matter Where They Live Dr. Paul Monach, chief of the rheumatology section at the Veterans Affairs (VA) Boston Healthcare System and an associate professor at Harvard Medical School, sees those needs every day. An expert in treating vasculitis, he works closely […]
Lack of Vasculitis Expertise Leads to Devastating End
- Annual Appeal Blog, Late Diagnosis
- Uncategorized
Lack of Vasculitis Expertise Leads to Devastating End Karen Miller has joined her local hospital’s patient advisory board after her mother, Lynn Johnston, died from cascading effects of her delayed diagnosis for vasculitis. Her hope is that her role on the advisory board will lead to changes in the way patients and families are heard […]
“I Didn’t Feel At Home In My Skin” – A Teenager’s Vasculitis Journey
- Story
- Granulomatosis with Polyangiitis
“I Didn’t Feel At Home In My Skin” – A Teenager’s Vasculitis Journey “When I was diagnosed with vasculitis in 2005, it felt like there was no one else in my shoes.” Meagan Cramer was 15 when she first started getting symptoms. Her pediatrician kept dismissing her; “He figured I just had the worst allergies […]
An Early Diagnosis Saved Him; Now He Advocates For Others
- Annual Appeal Blog, Early Diagnosis, Story
- Granulomatosis with Polyangiitis, Uncategorized
Blog “It was the best of times, it was the worst of times, it was the season of Light, it was the season of Darkness, it was the spring of hope, it was the winter of despair.” Charles Dickens’ words from A Tale of Two Cities echoed in Antwain Robinson’s mind as he reflected on […]
