Blog
Meaghan Carpenter to Be Inducted into Sandia Preparatory School’s Hall of Fame
- Uncategorized
Meaghan Carpenter to Be Inducted into Sandia Preparatory School’s Hall of Fame Meaghan, a former Sandia Preparatory School student whose life was shaped by vasculitis but never defined by it, will be inducted into the school’s Hall of Fame in October. The induction will recognize a young woman whose accomplishments in education, her career and […]
Tasha Mollet’s Vasculitis Journey: Learning to Listen to Her Body
- Anca Associated Vasculitis
- ANCA vasculitis
Tasha Mollet’s Vasculitis Journey: Learning to Listen to Her Body When Tasha first considered sharing her story, she almost decided not to. There was a lot to process, and even more that was hard to express. But then she thought about the stories she had read after her own diagnosis—stories that helped her feel less […]
Important Information for the Vasculitis Community Regarding TAVNEOS® (avacopan)
- official statement
- Uncategorized
TAVNEOS® (avacopan) Update September 24, 2026 VF Requests a Public Hearing with FDA Regarding the Proposed Withdrawal of NDA 214487 Tavneos® (avacopan) U.S. Food and Drug AdministrationWhite Oak Campus10903 New Hampshire AveSilver Spring, MD 20993 Attention: Kyle Diamantas, J.D., Acting Commissioner of Food and Drugs, U.S. Food and Drug Administration Michael Davis, MD, PhD, Director […]
Finding Her New Normal: Kathleen Weller’s Journey With GPA
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Finding Her New Normal: Kathleen Weller’s Journey With GPA Kathleen lives in Jacksonville Beach, Florida, with her husband, Sam. She’s a mother to one son and a grandmother to three grandchildren. Her Facebook page describes her simply: “A Solitary Life, Created for a Journey, Finding My Way Home.” That description captures something essential about Kathleen’s […]
A Body That Gave Her Almost No Warning: Lori Battelle’s Journey Through Anti-GBM Disease
- Anti-GBM
- Anti-GBM Disease
A Body That Gave Her Almost No Warning: Lori Battelle’s Journey Through Anti-GBM Disease In March 2008, Lori was 39 years old and stationed in Okinawa, Japan, where she worked as a Department of Defense federal civilian employee. She was healthy, active, driven and accustomed to a busy, high-powered life. Then, while on vacation in […]
Gary Naccarato: Rebuilding a Life After Neuro-Behçet’s Disease
- Behçet's
- Behçet’s Syndrome
Gary Naccarato: Rebuilding a Life After Neuro-Behçet’s Disease When life changed for Gary, a 57-year-old former Emmy Award-winning television producer in Los Angeles, it did so without warning. About two decades ago, he found himself fighting for his life against Neuro-Behçet’s disease, a rare form of vasculitis affecting the central nervous system. The illness changed […]