Blog
The Power of Community Offers Brad Ottley Hope
- Community, Family, Vasculitis Awareness Month
- Granulomatosis with Polyangiitis
The Power of Family and Community Offers Hope Living with granulomatosis with polyangiitis (GPA) has taught Brad Ottley valuable lessons about resilience, the importance of a supportive community, and the power of hope. A devoted husband, father, son, brother, and friend, he has always lived life surrounded by his loved ones. Born and raised in […]
In the Face of Chronic Illness, Glenn Hill Finds Strength and Purpose
- Advocacy, Patient Conference, Vasculitis Awareness Month
- Granulomatosis with Polyangiitis
Glenn Hill Finds Strength and Purpose in the Face of Chronic Illness After a lifetime of service in law enforcement, technology, and industrial security, Glenn Hill’s retirement was abruptly interrupted by a serious illness. What began as overwhelming fatigue and a troubling eye irritation, quickly escalated into a diagnosis of granulomatosis with polyangiitis (GPA, formerly […]
Keya Rohovit-Wrolson Found Strength Through Her Journey
- Peace Corps, Research, Vasculitis Awareness Month
- Microscopic Polyangiitis
Keya Rohovit-Wrolson Found Strength Through Her Journey Keya Rohovit-Wrolson joined the U.S. Peace Corps in 2003 with plans to serve in Ukraine for two years. She has a spirit of community and giving back and so it was only natural it would lead her to the Peace Corps. Her service brought her both love and […]
Research Sheds Light on the Information Needs of Patients with Vasculitis
- Find a Doctor, Patient Needs, Vasculitis Research
- Uncategorized
Research Illuminates Information Needs of Patients with Vasculitis Jodi Hall, Senior Patient Support Associate at the Vasculitis Foundation, recently presented her study, “Information Needs of Patients with Vasculitis,” to the Medical Library Association (MLA) Conference. The research is designed to illuminate the specific types of information patients with vasculitis seek. Offered as both a poster […]
“I Choose to Live”: Cathy Beesey’s Journey Through Vasculitis
- Blog, Journaling, Vasculitis Awareness Month
- Granulomatosis with Polyangiitis
“I Choose to Live”: Cathy Beesey’s Journey Through Vasculitis From her home in Melbourne, Australia, Cathy Beesey is finding her way forward — step by step, word by word. Cathy, 67, was diagnosed with granulomatosis with polyangiitis (GPA), a rare form of vasculitis, at the age of 61. Her journey has not only shaped her […]
Vinay Kamath, 15, Wants More Vasculitis Research So He Started a Fundraiser
- Fundraiser, Research, Teenager, Vasculitis Awareness Month
- Uncategorized
Vinay Kamath, 15, Wants More Vasculitis Research So He Started a Fundraiser When Vinay Kamath, 15, found out his grandmother had ANCA negative vasculitis with kidney involvement, the first thing he did was research the disease and treatment. He quickly discovered the Vasculitis Foundation (VF) and read about avacopan, (Tavneos®), the medicine his grandmother had […]
