Blog
David Seller’s Story: Living with EGPA, Finding Strength and Turning Adversity into Hope
- egpa
- Eosinophilic Granulomatosis with Polyangiitis
David Seller’s Story: Living with EGPA, Finding Strength and Turning Adversity into Hope Forty-three-year-old David is from Northamptonshire, England, and has faced considerable adversity. Having lived with ulcerative colitis since the age of 11, survived bowel cancer and received a diagnosis of a rare form of vasculitis, he knows what it means to navigate serious […]
More Than a Diagnosis: Susie Nilsson’s Story of Growing Up With EGPA
- egpa
- Eosinophilic Granulomatosis with Polyangiitis
More Than a Diagnosis: Susie Nilsson’s Story of Growing Up With EGPA At 16, Susie is a student, athlete, performer, musician, and aspiring advocate. Living in Lexington Park, Maryland, she is a varsity field hockey captain, a lacrosse midfielder, a singer, and a drummer. She loves theater, chorus, and finding new ways to express herself. […]
Important Information for the Vasculitis Community Regarding TAVNEOS® (avacopan)
- official statement
- Uncategorized
TAVNEOS® (avacopan) Update We Want to Hear From You! The Vasculitis Foundation (VF) is proud to announce the upcoming Vasculitis Community Forum: Patient Perspectives, a national virtual listening session taking place on Friday, November 20, 2026, from 12:00 PM to 2:00 PM ET. This landmark event will bring together patients, caregivers, clinicians, and key stakeholders […]
Finding Joy Deeper Than Despair: Melody Pedings’ Vasculitis Journey
- Granulomatosis with Polyangiitis
Finding Joy Deeper Than Despair: Melody Pedings’ Vasculitis Journey For Melody, life in rural central South Carolina has always centered around family, faith, community, and the simple joys of everyday life. At 66, she enjoys gardening, spending time with friends, and being active alongside her husband, Mike, in their church and community. Above all, her […]
Meaghan Carpenter to Be Inducted into Sandia Preparatory School’s Hall of Fame
- Eosinophilic Granulomatosis with Polyangiitis
Meaghan Carpenter to Be Inducted into Sandia Preparatory School’s Hall of Fame Meaghan, a former Sandia Preparatory School student whose life was shaped by vasculitis but never defined by it, will be inducted into the school’s Hall of Fame in October. The induction will recognize a young woman whose accomplishments in education, her career and […]
Tasha Mollet’s Vasculitis Journey: Learning to Listen to Her Body
- Anca Associated Vasculitis
- ANCA vasculitis
Tasha Mollet’s Vasculitis Journey: Learning to Listen to Her Body When Tasha first considered sharing her story, she almost decided not to. There was a lot to process, and even more that was hard to express. But then she thought about the stories she had read after her own diagnosis—stories that helped her feel less […]