Blog
Important Information for the Vasculitis Community Regarding TAVNEOS® (avacopan)
- official statement
- Uncategorized
Official Statement Important Information for the Vasculitis Community Regarding TAVNEOS® (avacopan) April 30, 2026 The Vasculitis Foundation is aware of recent updates from the U.S. Food and Drug Administration regarding Tavneos (avacopan), including safety communications and ongoing regulatory discussions with Amgen. At this time, the information available reflects what has been publicly released by the […]
15 Years to Be Believed: Marissa Furey’s Fight for a Diagnosis of Behçet’s Disease
- Behçet's, Behçet’s Syndrome
- Behçet’s Syndrome
15 Years to Be Believed: Marissa Furey’s Fight for a Diagnosis of Behçet’s Disease Marissa lives in West Greenwich, Rhode Island, where daily life now feels both hard-won and deeply appreciated—something she once could not take for granted. At 39, she reflected on a journey that has reshaped nearly every part of her life—from her […]
The Importance of Positivity: Stacy Palmer’s Journey of Strength Through Vasculitis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
The Importance of Positivity: Stacy Palmer’s Journey of Strength Through Vasculitis Stacy’s story is one of resilience, advocacy, and determination in the face of a life-changing diagnosis. Living in Gainesville, Virginia, 56-year-old Stacy describes herself as an advocate, mother, and wife. Married for 30 years to her husband, Don, and having raised two children together, […]
Holding on to Sight and Hope: Cheri Lincoln’s Life with GPA
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Holding on to Sight and Hope: Cheri Lincoln’s Life with GPA At 63 years old, Cheri lives in Central Minnesota with her husband, Jeff. A mother of one son and now retired, she never imagined her later years would include unexpected health challenges. Diagnosed in February/March 2018 with ANCA-positive granulomatosis with polyangiitis (GPA), her journey […]
A Second Chance at Life: Belinda Patlidanovski’s Vasculitis Journey
- egpa
- Eosinophilic Granulomatosis with Polyangiitis
A Second Chance at Life: Belinda Patlidanovski’s Vasculitis Journey Belinda is from Sydney, Australia, and describes herself as a positive person who loves to travel, have fun, and be “the calm to anyone’s storm—except my own (ha-ha).” Just a few years ago, her life looked very different. What began as sinus issues and asthma would […]
Healing Is Not a Straight Line: Vlasta’s Journey Through Reconstruction and Recovery
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Healing Is Not a Straight Line: Vlasta Racki’s Journey Through Reconstruction and Recovery Since her story was first published (Blooming Through Resilience: A Story of Life with Vasculitis – Vasculitis Foundation), Vlasta says the biggest change hasn’t only been physical—it’s been how she understands healing. Early in her diagnosis, she often felt like she was […]