Blog
“Onwards and Upwards” — Samantha Feeney’s Journey to a Vasculitis Diagnosis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
“Onwards and Upwards” — Samantha Feeney’s Journey to a Vasculitis Diagnosis Samantha lives in Northamptonshire, England, with her husband Adam, whom she has been married to for 30 years. At 57, she describes herself as “outgoing, positive, artistic, and creative.” She is a mother to her daughter Alessandra (34) and a proud grandmother to four […]
Faith Over Fear: Jessica Lopez Ricard’s Journey Living with Vasculitis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Faith Over Fear: Jessica Lopez Ricard’s Journey Living with Vasculitis Jessica lives in San Antonio, Texas, and is originally from San Diego, California. At 42, she is a wife, a mother, and the heart of a beautifully blended family with four children ranging from age 3 to 21. Even before her diagnosis, she found joy […]
2025 V-RED WINNERS
- Uncategorized
2025 V-Red Winners The Vasculitis Recognizing Excellence in Diagnosis (V-RED) awards celebrate healthcare providers whose insight, persistence, and compassion have profoundly impacted the lives of people living with vasculitis. For many patients, the journey to an accurate diagnosis is long and filled with uncertainty. It often takes a clinician who is inquisitive, caring, and determined—someone […]
Important Information for the Vasculitis Community Regarding TAVNEOS® (avacopan)
- official statement
- Uncategorized
Official Statement February 4, 2026 Important Information for the Vasculitis Community Regarding TAVNEOS® (avacopan) The Vasculitis Foundation (VF) is aware of recent announcements regarding TAVNEOS (avacopan), a medication approved for the treatment of adults with severe active ANCA-associated vasculitis, including granulomatosis with polyangiitis (GPA) and microscopic polyangiitis (MPA). On January 16, 2026, the U.S. Food […]
Not Feeding the Monster: Melanie Constuble’s Life with Vasculitis
- microscopic polyangiitis, MPA
- Microscopic Polyangiitis
Not Feeding the Monster: Melanie Constuble’s Life with Vasculitis When Melanie was diagnosed with microscopic polyangiitis (MPA) in the summer of 2020, she was a year into a master’s program, living and working in the Annapolis, Maryland area, and planning the next phase of her federal career. Vasculitis was not on her radar—until a routine […]
Listening to the Signs: Carmen’s Journey With Wegener’s Granulomatosis (GPA)
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Listening to the Signs: Carmen’s Journey With Wegener’s Granulomatosis The Signs I Learned to Live Around For years, my body had been giving me signs that something wasn’t right. The symptoms were subtle at first, coming and going in ways that were easy to dismiss. Fatigue. Aches. Illnesses that lingered longer than they should have. […]