Blog
2025 V-RED WINNERS
- Uncategorized
2025 V-Red Winners The Vasculitis Recognizing Excellence in Diagnosis (V-RED) awards celebrate healthcare providers whose insight, persistence, and compassion have profoundly impacted the lives of people living with vasculitis. For many patients, the journey to an accurate diagnosis is long and filled with uncertainty. It often takes a clinician who is inquisitive, caring, and determined—someone […]
Important Information for the Vasculitis Community Regarding TAVNEOS® (avacopan)
- official statement
- Uncategorized
Official Statement February 4, 2026 Important Information for the Vasculitis Community Regarding TAVNEOS® (avacopan) The Vasculitis Foundation (VF) is aware of recent announcements regarding TAVNEOS (avacopan), a medication approved for the treatment of adults with severe active ANCA-associated vasculitis, including granulomatosis with polyangiitis (GPA) and microscopic polyangiitis (MPA). On January 16, 2026, the U.S. Food […]
Not Feeding the Monster: Melanie Constuble’s Life with Vasculitis
- microscopic polyangiitis, MPA
- Microscopic Polyangiitis
Not Feeding the Monster: Melanie Constuble’s Life with Vasculitis When Melanie was diagnosed with microscopic polyangiitis (MPA) in the summer of 2020, she was a year into a master’s program, living and working in the Annapolis, Maryland area, and planning the next phase of her federal career. Vasculitis was not on her radar—until a routine […]
Listening to the Signs: Carmen’s Journey With Wegener’s Granulomatosis (GPA)
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Listening to the Signs: Carmen’s Journey With Wegener’s Granulomatosis The Signs I Learned to Live Around For years, my body had been giving me signs that something wasn’t right. The symptoms were subtle at first, coming and going in ways that were easy to dismiss. Fatigue. Aches. Illnesses that lingered longer than they should have. […]
Heidi Lanzelin’s Story: Navigating Life with Vasculitis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Heidi Lanzelin’s Story: Navigating Life with Vasculitis When Heidi talks about her life, she does so with clarity, humor, and scientific precision. A 58-year-old scientist from Rhode Island, she describes herself as analytical, introverted, and curious. “I love to read, look at rocks, ski, play snare drum, and sail,” she said. Married and without children, […]
Living Life on a New Rhythm: Japneet Randhawa’s Journey with Vasculitis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Living Life on a New Rhythm: Japneet Randhawa’s Journey with Vasculitis At 31, Japneet is a passionate dentist, traveler, and fiercely loyal friend living in New Haven, Connecticut. She describes herself as “happy, loud, opinionated, artistic, nerdy, stubborn, vocal, and social.” However, like others who have a chronic illness, Japneet’s life changed dramatically when she […]