Blog
“I Didn’t Feel At Home In My Skin” – A Teenager’s Vasculitis Journey
- Story
- Granulomatosis with Polyangiitis
“I Didn’t Feel At Home In My Skin” – A Teenager’s Vasculitis Journey “When I was diagnosed with vasculitis in 2005, it felt like there was no one else in my shoes.” Meagan Cramer was 15 when she first started getting symptoms. Her pediatrician kept dismissing her; “He figured I just had the worst allergies […]
An Early Diagnosis Saved Him; Now He Advocates For Others
- Annual Appeal Blog, Early Diagnosis, Story
- Granulomatosis with Polyangiitis, Uncategorized
Blog “It was the best of times, it was the worst of times, it was the season of Light, it was the season of Darkness, it was the spring of hope, it was the winter of despair.” Charles Dickens’ words from A Tale of Two Cities echoed in Antwain Robinson’s mind as he reflected on […]
Eliza Johnstone’s Vasculitis Diagnosis Came Late, She Now Champions Early Diagnosis for Others
- Annual Appeal Blog, Ear Pain, Late Diagnosis, Story, Teenager, Vasculitis
- Granulomatosis with Polyangiitis, Uncategorized
Eliza Johnstone’s Vasculitis Diagnosis Came Late, She Now Champions Early Diagnosis for Others Eliza Johnstone, a 19-year-old living in the United Kingdom, feels like she is slowly getting her life back after a five-year journey through a vasculitis diagnosis and treatment that is finally working. She reached out to tell her story because she knows […]
Late Vasculitis Diagnosis Steals Nearly One Decade
- Annual Appeal Blog, Late Diagnosis, lost decade, Vasculitis
- Uncategorized
Late Vasculitis Diagnosis Steals Nearly One Decade Christine Gerchow was in her final semester at Villanova University in 2002 and planning for a promising career, when at 21 she went to the emergency room with a high fever after vomiting blood. Her white blood count was extremely high, and she nearly died during a medical […]
Nearly 40 Years with Vasculitis—And Counting
- Story
- Granulomatosis with Polyangiitis
Nearly 40 Years with Vasculitis—And Counting When I called Kristen Dill in mid-July, she was at her summer home in Southwestern Maine, a house on a lake with a big ski mountain across from it. “I’m looking at puffy clouds and a beautiful sky,” she told me. Kristen Dill is an artist, attentive to life’s details. […]
Raising Money for the VF Can be Fun and Easy
- Education, Events, Fundraising, Holidays
- Uncategorized
Raising Money for the VF Can Be Fun and Easy Suzanne DePaolis, a Vasculitis Foundation board member, believes in supporting the foundation’s mission and its programs. She also believes in using her time and talents to create innovative and fun ways to raise money for the foundation.As a board members she knows that developing the […]
