Blog
Listening to the Signs: Carmen’s Journey With Wegener’s Granulomatosis (GPA)
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Listening to the Signs: Carmen’s Journey With Wegener’s Granulomatosis The Signs I Learned to Live Around For years, my body had been giving me signs that something wasn’t right. The symptoms were subtle at first, coming and going in ways that were easy to dismiss. Fatigue. Aches. Illnesses that lingered longer than they should have. […]
Heidi Lanzelin’s Story: Navigating Life with Vasculitis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Heidi Lanzelin’s Story: Navigating Life with Vasculitis When Heidi talks about her life, she does so with clarity, humor, and scientific precision. A 58-year-old scientist from Rhode Island, she describes herself as analytical, introverted, and curious. “I love to read, look at rocks, ski, play snare drum, and sail,” she said. Married and without children, […]
Living Life on a New Rhythm: Japneet Randhawa’s Journey with Vasculitis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Living Life on a New Rhythm: Japneet Randhawa’s Journey with Vasculitis At 31, Japneet is a passionate dentist, traveler, and fiercely loyal friend living in New Haven, Connecticut. She describes herself as “happy, loud, opinionated, artistic, nerdy, stubborn, vocal, and social.” However, like others who have a chronic illness, Japneet’s life changed dramatically when she […]
Rachelle’s Journey: From Breathing Struggles to a Life-Changing Diagnosis
- GPA
- Granulomatosis with Polyangiitis
Rachelle’s Journey: From Breathing Struggles to a Life-Changing Diagnosis In 2019, Rachelle, a 32-year-old teacher in Edmonton, Alberta, began experiencing troubling and persistent breathing difficulties. It wasn’t fatigue; her breathing was noticeably strained, a fact her own mother and colleagues had pointed out. Initially, she dismissed it as the rigors of teaching kindergarten, but the […]
Wayne Jones’ Fight to Redefine Vasculitis Awareness
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
The Unseen Battle: Wayne Jones’ Fight to Redefine Vasculitis Awareness “This is Bigger Than Me: This isn’t just my story. It’s ours. The partners, parents, kids, and friends who suffer in silence. The patients who hear, “You don’t look sick.” The professionals who want to help but don’t have the tools. I’ve made it my […]
Blooming Through Resilience: A Story of Life with Vasculitis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Blooming Through Resilience: A Story of Life with Vasculitis In the heart of Mississauga, Ontario, one woman is redefining what it means to live with chronic illness. Meet Vlasta Racki—a mother, dental professional, and fierce advocate. Through her platform, Vlasta in Bloom, she shares her journey with granulomatosis with polyangiitis (GPA) to empower others facing […]