Blog
Young Adults Connect at Nashville Conference, Offer Hope to One Another
- Conferences, Nashville, Young Adult Scholarships
- Uncategorized
Young Adults Connect at Nashville Conference, Offer Hope to One Another Young adults between 18 and 30 came from all across the United States and from as far away as Italy and Ireland to attend the VF’s Vasculitis Conference in Nashville, Tennessee on Saturday, March 22. They came to learn more about vasculitis and to […]
The Importance of Early Diagnosis: An Experience with GPA
- Creativity, Early Diagnosis, Support
- Granulomatosis with Polyangiitis
The Importance of Early Diagnosis: An Experience with GPA Ashley Fry’s illness began with something as common as sore gums. But what started as simple discomfort soon escalated into bleeding gums and oral lesions that rounds of antibiotics, nasal sprays and steam therapy couldn’t fix.“Brushing my teeth was like a scene from a body horror […]
Patients Needed for International Childhood Takayasu Study
- Childhood, Rare Disease, Research Study
- Takayasu Arteritis
Patients Needed for International Childhood Takayasu Study My name is Katrina Bargender, and I was diagnosed with Takayasu arteritis when I was 14 years old. My first symptom was vision loss in my left eye, which unfortunately was never restored. I was admitted to my local children’s hospital with severe anemia, high blood pressure, elevated […]
His Grandmother’s Kidney Donation Helped Save Nathan’s Life
- National Autoimmune Disease Awareness Month, National Kidney Month, Story, Teenager
- Microscopic Polyangiitis
His Grandmother’s Kidney Donation Helped Save His Life Nathan Rose, 17, plans to spend his spring break with his grandmother in Arkansas. The high schooler and his grandmother have always been close, but their bond became even tighter nearly six months ago when she made it possible for him to get a new kidney. She […]
Allison Long Keeps Moving Toward Her Goals: A Marathon and a Medical Career
- Autoimmune Disease Awareness Month, Kidney Awareness Month, Story
- IgA Vasculitis
Allison Long Keeps Moving Toward Her Goals: A Marathon and a Medical Career Allison Long had never run a marathon, but it was a goal. She was training for a half marathon after completing a 10k when she was diagnosed with IgA vasculitis/IgA nephropathy at 21. In the face of a chronic illness, Allison, now […]
Dr. Catherine Sims Leads Team Researching Pregnancy and Vasculitis
- Pregnancy, Research, Vasculitis
- Pregnancy, Uncategorized
Dr. Catherine Sims Leads Team Researching Pregnancy and Vasculitis Pregnancy can be complicated, even for healthy women. But for someone with a rare autoimmune disease, even thinking about having a baby can be overwhelming and isolating. Vasculitis patients don’t have a large network of people to ask questions about what it means to be pregnant […]
