Blog
Research Sheds Light on the Information Needs of Patients with Vasculitis
- Find a Doctor, Patient Needs, Vasculitis Research
- Uncategorized
Research Illuminates Information Needs of Patients with Vasculitis Jodi Hall, Senior Patient Support Associate at the Vasculitis Foundation, recently presented her study, “Information Needs of Patients with Vasculitis,” to the Medical Library Association (MLA) Conference. The research is designed to illuminate the specific types of information patients with vasculitis seek. Offered as both a poster […]
“I Choose to Live”: Cathy Beesey’s Journey Through Vasculitis
- Blog, Journaling, Vasculitis Awareness Month
- Granulomatosis with Polyangiitis
“I Choose to Live”: Cathy Beesey’s Journey Through Vasculitis From her home in Melbourne, Australia, Cathy Beesey is finding her way forward — step by step, word by word. Cathy, 67, was diagnosed with granulomatosis with polyangiitis (GPA), a rare form of vasculitis, at the age of 61. Her journey has not only shaped her […]
Vinay Kamath, 15, Wants More Vasculitis Research So He Started a Fundraiser
- Fundraiser, Research, Teenager, Vasculitis Awareness Month
- Uncategorized
Vinay Kamath, 15, Wants More Vasculitis Research So He Started a Fundraiser When Vinay Kamath, 15, found out his grandmother had ANCA negative vasculitis with kidney involvement, the first thing he did was research the disease and treatment. He quickly discovered the Vasculitis Foundation (VF) and read about avacopan, (Tavneos®), the medicine his grandmother had […]
Finding Purpose Through Pain: Khamia Montgomery’s Journey with Vasculitis and Entrepreneurship
- Community, Entrepreneur, Vasculitis Awareness Month, Young Adult
- Granulomatosis with Polyangiitis
Finding Purpose Through Pain: Khamia Montgomery’s Journey with Vasculitis and Entrepreneurship At just 27 years old, Khamia Montgomery is blazing trails as a spirited entrepreneur with a powerful mission. Based in Chagrin Falls, Ohio, she’s the founder of Brwn In A Box, a natural hair care subscription service created specifically for those with textured hair—especially […]
Kimberly Fisher Spreads Awareness About Behcet’s as a Nurse and a Patient
- Advocate, Education, Misdiagnosis, Nurse
- Behçet’s Syndrome
Kimberly Fisher Spreads Awareness About Behcets Disease as a Nurse and a Patient Kimberly Fisher knows what it’s like to be told her disease is all in her head, to be thought of as someone who is just seeking pain medications and to be misdiagnosed for years. She was diagnosed with Behcet’s disease, a rare […]
Vasculitis and Motherhood: A Story of Hope and Resilience
- Mother's Day, Pregnancy, Story, Vasculitis Awareness Month, VPPRN
- Granulomatosis with Polyangiitis
Vasculitis and Motherhood: A Story of Hope and Resilience Avery Owens’ journey to motherhood is an inspiring testament to the power of perseverance and the importance of seeking expert medical care. Avery, 29, was 15 when she first developed symptoms of vasculitis. It took nearly five years to receive a diagnosis with granulomatosis with polyangiitis […]
