Blog

The Unseen Battle: Wayne Jones’ Fight to Redefine Vasculitis Awareness “This is Bigger Than Me: This isn’t just my story. It’s ours. The partners, parents, kids, and friends who suffer in silence. The patients who hear, “You don’t look sick.” The professionals who want to help but don’t have the tools. I’ve made it my […]

Blooming Through Resilience: A Story of Life with Vasculitis In the heart of Mississauga, Ontario, one woman is redefining what it means to live with chronic illness. Meet Vlasta Racki—a mother, dental professional, and fierce advocate. Through her platform, Vlasta in Bloom, she shares her journey with granulomatosis with polyangiitis (GPA) to empower others facing […]

Rosy Thomas’s Vasculitis Journey of Strength, Spirit, and Survival In the quiet town of Temuka, nestled in South Canterbury, New Zealand, lives Rosy Thomas—a woman whose life story is anything but quiet. Curious, intelligent, and stubborn in all the best ways, Rosy has weathered a storm she never saw coming—granulomatosis with polyangiitis (GPA), a rare […]

Living Life Fully with GPA: Regina Cochrane’s Journey of Hope and Resilience Meet Regina—a vibrant, enthusiastic woman who radiates strength, gratitude, and a profound love for life. At 61, Regina calls Sarasota, Florida, home, but her roots and heart still stretch back to New Jersey and New York. She’s been happily married for 35 years […]

For the Girl Who Fought: A Chronic Illness Journey Childhood GPA Survivor: Diagnosed at Age 10  In 2013, at age 10, Madeleine Shrull was diagnosed with granulomatosis with polyangiitis (GPA) just before the holidays. This came after six weeks of sickness, a condition her doctors initially misdiagnosed as a sinus infection. “I feel like that […]