Blog
Bonnie Willi’s Vasculitis Journey Began Postpartum
- Birth, Connections, Vasculitis Awareness Month
- Granulomatosis with Polyangiitis
Bonnie Willi’s Vasculitis Journey Began Postpartum While having a new baby can be a joyful event, the effects on a woman’s body can be difficult to deal with and it takes time to heal. Bonnie Willi knew what to expect when she had her son in March 2015, but after his birth, rather than mend […]
Nola Johnson Strives to Raise Awareness Through Fundraisers
- Early Diagnosis, Support, Vasculitis Awareness Month
- Takayasu Arteritis
Nola Johnson Strives to Raise Awareness Through Fundraisers Nola Johnson, who is turning 40 this year, was diagnosed with Takayasu in January 2023. Like most people, before she was diagnosed, she didn’t know anything about vasculitis. What she learned was that she had been having symptoms of vasculitis for more than five years and that […]
The Power of Community Offers Brad Ottley Hope
- Community, Family, Vasculitis Awareness Month
- Granulomatosis with Polyangiitis
The Power of Family and Community Offers Hope Living with granulomatosis with polyangiitis (GPA) has taught Brad Ottley valuable lessons about resilience, the importance of a supportive community, and the power of hope. A devoted husband, father, son, brother, and friend, he has always lived life surrounded by his loved ones. Born and raised in […]
In the Face of Chronic Illness, Glenn Hill Finds Strength and Purpose
- Advocacy, Patient Conference, Vasculitis Awareness Month
- Granulomatosis with Polyangiitis
Glenn Hill Finds Strength and Purpose in the Face of Chronic Illness After a lifetime of service in law enforcement, technology, and industrial security, Glenn Hill’s retirement was abruptly interrupted by a serious illness. What began as overwhelming fatigue and a troubling eye irritation, quickly escalated into a diagnosis of granulomatosis with polyangiitis (GPA, formerly […]
Keya Rohovit-Wrolson Found Strength Through Her Journey
- Peace Corps, Research, Vasculitis Awareness Month
- Microscopic Polyangiitis
Keya Rohovit-Wrolson Found Strength Through Her Journey Keya Rohovit-Wrolson joined the U.S. Peace Corps in 2003 with plans to serve in Ukraine for two years. She has a spirit of community and giving back and so it was only natural it would lead her to the Peace Corps. Her service brought her both love and […]
Research Sheds Light on the Information Needs of Patients with Vasculitis
- Find a Doctor, Patient Needs, Vasculitis Research
- Uncategorized
Research Illuminates Information Needs of Patients with Vasculitis Jodi Hall, Senior Patient Support Associate at the Vasculitis Foundation, recently presented her study, “Information Needs of Patients with Vasculitis,” to the Medical Library Association (MLA) Conference. The research is designed to illuminate the specific types of information patients with vasculitis seek. Offered as both a poster […]
