Blog
When Darkness Came, Strength Was Born: Janet DeLuca’s Vasculitis Story
- Behçet's, Behçet’s Syndrome
- Behçet’s Syndrome
When Darkness Came, Strength Was Born: Janet DeLuca’s Vasculitis Story At 31 years old, Janet’s life changed forever. After more than a decade of searching for answers—years filled with unexplained symptoms, hospitalizations, inconclusive tests, uncertainty, and fear—she was finally diagnosed with Behçet’s disease, a rare and severe form of vasculitis that causes inflammation in blood […]
Important Information for the Vasculitis Community Regarding TAVNEOS® (avacopan)
- official statement
- Uncategorized
Official Statement Important Information for the Vasculitis Community Regarding TAVNEOS® (avacopan) April 30, 2026 The Vasculitis Foundation is aware of recent updates from the U.S. Food and Drug Administration regarding Tavneos (avacopan), including safety communications and ongoing regulatory discussions with Amgen. At this time, the information available reflects what has been publicly released by the […]
Finding Her Voice Again: Patricia McKenzie’s Journey with GPA
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Finding Strength in the Unknown: Esmeralda Carrera’s Journey with Vasculitis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Finding Strength in the Unknown: Esmeralda Carrera’s Journey with Vasculitis At just 24 years old, Esmeralda is balancing life as a wife and mother of three—one boy and twin girls—while navigating a life-changing diagnosis. Living in Dallas, Texas, she described herself simply as “a very friendly, empathetic, and clumsy person,” a self-portrait that feels both […]
A Second Chance at Life: Ezra Alvarez’s Journey Through Vasculitis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
A Second Chance at Life: Ezra Alvarez’s Journey Through Vasculitis At 32 years old, Ezra lives in Los Angeles, California, navigating life with resilience, purpose, and a renewed sense of meaning after a life-altering diagnosis. Described by others as “very thoughtful, caring, an advocate for others, and an inspiration,” Ezra’s journey with granulomatosis with polyangiitis […]
15 Years to Be Believed: Marissa Furey’s Fight for a Diagnosis of Behçet’s Disease
- Behçet's, Behçet’s Syndrome
- Behçet’s Syndrome
15 Years to Be Believed: Marissa Furey’s Fight for a Diagnosis of Behçet’s Disease Marissa lives in West Greenwich, Rhode Island, where daily life now feels both hard-won and deeply appreciated—something she once could not take for granted. At 39, she reflected on a journey that has reshaped nearly every part of her life—from her […]