Blog
A New Era for Pediatric Vasculitis Research
- Uncategorized
A New Era for Pediatric Vasculitis Research Peds VPPRN: Bridging Pediatric Vasculitis Research and Care Jessica Bloom, MD, MSCS, is a pediatric rheumatologist who has dedicated her career to advancing care for children with vasculitis. Her latest initiative, the Pediatric Registry of the Vasculitis Patient-Powered Research Network (PedsVPPRN), aims to bridge the gaps in knowledge […]
Advancing Comprehensive Vasculitis Care at Northwestern
- Clinic/Center/Hospital, Doctor, Research
- ANCA vasculitis
Advancing Comprehensive Vasculitis Care at Northwestern Dr. Brian Jaros, MD, Assistant Professor of Medicine and Associate Program Director of Rheumatology at Feinberg School of Medicine, Northwestern University, is making significant strides in the field of vasculitis care and research. Dr. Jaros is also Associate Director of the Northwestern Vasculitis Center, where his clinical expertise and […]
Navigating EGPA: Henrietta “Henri” Malizia’s Journey of Resilience and Hope
- egpa, Patient Journey, Vasculitis
- Eosinophilic Granulomatosis with Polyangiitis
Navigating EGPA: Henrietta “Henri” Malizia’s Journey of Resilience and Hope Henri, a 71-year-old former critical care nurse and nurse educator living in Davenport, Florida, embodies remarkable resilience. She grew up in Canada where she met her Italian-born husband, Al, and they immigrated to the USA in 1989. Married to Al for 46 years, with an […]
A New Normal: Jennifer Mullen is Living and Thriving with GPA
- GPA, Patient Journey, Vasculitis
- Granulomatosis with Polyangiitis
A New Normal: Jennifer Mullen is Living and Thriving with GPA Jennifer, a 33-year-old mother of two living in Salt Lake City, Utah, has navigated a challenging health journey, leading to a diagnosis of granulomatosis with polyangiitis (GPA). Her story is one of resilience, adjustment, and finding joy amid uncertainty. Jennifer’s symptoms began in 2022, […]
A New Blueprint for Vasculitis Care: Insights from a Landmark Summit
- External Article, Summit, Vasculitis Care
- General Vasculitis
A New Blueprint for Vasculitis Care: Insights from a Landmark Summit Living with a rare disease like vasculitis presents unique challenges, making access to high-quality care absolutely critical. That’s why the recent 2024 Vasculitis Foundation Quality Care Summit was such a pivotal event, bringing together experts and advocates to chart a course for better patient […]
From Cyclist to Survivor: Kegan Machen’s Unexpected Journey with GPA
- GPA, Patient Journey, Vasculitis
- Granulomatosis with Polyangiitis
From Cyclist to Survivor: Kegan Machen’s Unexpected Journey with GPA Kegan is a 32-year-old attorney and avid cyclist in Idaho Falls, Idaho, who faced a life-altering diagnosis of granulomatosis with polyangiitis (GPA) at age 29. This rare autoimmune disease, causing blood vessel inflammation, rapidly reshaped his reality, leading to extensive hospital stays, multiple joint replacements, […]