Vasculitis Patient-Powered Research Network

Who We Are

We are a team of patients with vasculitis, caregivers, researchers, data specialists, and providers on a daily mission to share and learn from one another with a vision for the future in clinical vasculitis research.

Our vision is to improve the health of vasculitis patients by developing early-diagnosis methods, discovering more effective treatments, and finding cures. We are inviting thousands of patients with vasculitis, and caregivers, to come together to learn more about symptoms, share experiences, and to become a part of a research network to improve lives.

It is a whole new way of finding answers for the questions most important to YOU and other patients living with vasculitis.

Our Team

Peter A. Merkel, MD, MPH

Co-Principal Investigator
VPPRN

Jennifer Gordon, PhD

Co-Principal Investigator
VPPRN

Joyce A. Kullman

Executive Director
Vasculitis Foundation

Christine Yeung

Network Manager
VPPRN

Jessica Nguyen

Network Research Coordinator
VPPRN

VPPRN Investigators

Peter C. Grayson,
MD, MSc

VPPRN Investigator

Christian Pagnoux,
MD, MPH, MSc

VPPRN Investigator

Jason M. Springer,
MD

VPPRN Investigator

Tanaz A. Kermani,
MD, MS

VPPRN Investigator

Past Leadership/Advisory Team

Dianne Shaw

Past VPPRN Co-Principal Investigator

Logo for Vasculitis Awareness Month (VAM), observed in May. The logo features bold letters 'VAM [may]' with the words 'Vasculitis Awareness Month' beneath, and a stylized circular symbol composed of overlapping white rings to the left.

Help us raise $100,000 to create more life-changing connections

Your donation funds the VF’s vision for the future

  • $25 welcomes new support group members
  • $50 shares vital educational resources
  • $100 connects patients with vasculitis experts
  • $250 brings our community together through events
  • $500 promotes awareness and early detection