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  • About
    • Our Impact
    • Our Team
    • Board of Directors
    • Donor Recognition
    • Annual Reports
    • News
    • VF’s Corporate Council
    • Public Policy
    • Contact Us
  • Education
    • General Vasculitis
    • Vasculitis Types
      • Anti-GBM Disease
      • Aortitis
      • Behçet’s Syndrome
      • Central Nervous System Vasculitis
      • Cogan’s Syndrome
      • Cryoglobulinemic Vasculitis
      • Cutaneous Small-Vessel Vasculitis
      • Eosinophilic Granulomatosis with Polyangiitis
      • Giant Cell Arteritis
      • Granulomatosis with Polyangiitis
      • IgA Vasculitis
      • IgG4-RD
      • Kawasaki Disease
      • Microscopic Polyangiitis
      • Polyarteritis Nodosa
      • Polymyalgia Rheumatica
      • Rheumatoid Vasculitis
      • Takayasu Arteritis
      • Urticarial Vasculitis
    • Immunity and Infection
    • Reproductive Health
    • Pediatric
      • Behçet’s Disease
      • Eosinophilic Granulomatosis with Polyangiitis
      • Granulomatosis With Polyangiitis
      • Kawasaki Disease
      • Microscopic Polyangiitis
      • Polyarteritis Nodosa
      • Takayasu Arteritis
      • Research Opportunities
    • Newly Diagnosed
      • Your Treatment Plan
      • Immunity and Infection
  • Pediatrics
    • Vasculitis Types
      • Behçet’s Disease
      • ​Eosinophilic Granulomatosis with Polyangiitis
      • Granulomatosis With Polyangiitis
      • IgA Vasculitis
      • Kawasaki Disease
      • Microscopic Polyangiitis
      • Polyarteritis Nodosa
      • Takayasu Arteritis
    • Lung Involvement
    • Kidney Involvement
    • Family Resources
      • Education Concerns
      • Transitioning to Adult Health Care
    • Managing Symptoms
    • Medications & Treatments
      • Vaccine Guidelines
    • Research Opportunities
  • Living Well
    • Self Advocacy
    • Mental Health & Mindfulness
      • Navigating Your Vasculitis Journey
      • Wellbeing Resources
    • Physical Health Resources
    • Self-Care
    • Support Groups
    • Community Voices
    • Raise Awareness
      • Donate
      • VAM Calendar
      • Fundraise/Swap your Social Media Graphics
      • Buy your #VAM2025 Awareness Shirt
  • Treatments/Research
    • Treatments
      • ACR/VF Treatment Guidelines
      • Prednisone
      • Treatments
      • Your Treatment Plan
    • VPPRN Patient-Powered Research
      • Who We Are
      • Patient Research Partners
      • Open Studies
      • Community Dashboard
      • Research Discoveries
      • Research Poster Gallery
    • Pediatric Vasculitis Registry (PedsVPPRN)
    • VPREG Pregnancy Registry
    • Research
      • Cell Therapy
      • Clinical Trials
      • Focus Groups & Surveys
    • V-Red
    • VF Funded Research
      • Apply for Research Funding
      • Our Researchers
    • VF Fellowship Program
      • Apply for Fellowship
      • Meet our Fellows
  • Resources
    • Find a Doctor
    • Video Library
    • Order/Print Resources
    • Recursos Español
      • recursos de bienestar
    • FAQ’s
    • Glossary
    • Public Policy
    • Health Equity
  • Ways to Give
    • 2025 Annual Appeal
    • Make a Donation
    • Recurring Gifts
    • Memorial & Honorary Gifts
    • Matching Gifts
    • Host a Fundraiser!
    • Planned Giving
    • Give through United Way Pledge
  • Connect
    • Support Groups
    • Subscribe to E-News
    • Events & Webinars
    • Conferences
    • Blog
  • Contact Us
Wayne Jones, diagnosed with vasculitis

Wayne Jones’ Fight to Redefine Vasculitis Awareness

December 1, 2025

The Unseen Battle: Wayne Jones’ Fight to Redefine Vasculitis Awareness “This is Bigger Than Me: This isn’t just my story. It’s ours. The partners, parents,

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Vlasta with her husband, dancing on her wedding night.

Blooming Through Resilience: A Story of Life with Vasculitis

December 1, 2025

Blooming Through Resilience: A Story of Life with Vasculitis In the heart of Mississauga, Ontario, one woman is redefining what it means to live with

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Rosy outside on a swing set

Rosy Thomas’s Vasculitis Journey of Strength, Spirit, and Survival

December 1, 2025

Rosy Thomas’s Vasculitis Journey of Strength, Spirit, and Survival In the quiet town of Temuka, nestled in South Canterbury, New Zealand, lives Rosy Thomas—a woman

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Regina pictured at the Miller School of Medicine at the University of Miami

Living Life Fully with GPA: Regina Cochrane’s Journey

December 1, 2025

Living Life Fully with GPA: Regina Cochrane’s Journey of Hope and Resilience Meet Regina—a vibrant, enthusiastic woman who radiates strength, gratitude, and a profound love

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Madeleine smiling outside in the garden

For the Girl Who Fought: A Chronic Illness Journey (GPA)

December 1, 2025

For the Girl Who Fought: A Chronic Illness Journey Childhood GPA Survivor: Diagnosed at Age 10  In 2013, at age 10, Madeleine Shrull was diagnosed

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A woman in an off-the-shoulder burgundy dress stands by a tall glass window overlooking a waterfront at sunset. She is turned slightly toward the camera with a soft smile, with modern buildings and boats visible outside across the water.

Imogen Phillips: A Young Woman’s Journey with Vasculitis

December 1, 2025

Imogen Phillips: A Young Woman’s Journey with Vasculitis Hailing from Perth, Western Australia, Imogen’s life, like many young adults, was once filled with dreams of

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Two older adults stand smiling in front of a weathered wooden wall. The woman on the left wears glasses, a tan cap, and layered outdoor clothing. The man on the right has a long gray beard and wears a knit hat and a zip-up vest over a hoodie.

Rooted in Resilience: A Farmer’s Journey with GPA

November 30, 2025

Rooted in Resilience: A Farmer’s Journey with GPA​ For Eric Nordell, life has always been grounded in the earth. Since 1983, he and his wife,

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A woman with dark hair streaked with red sits outdoors, smiling at the camera. She is wearing a purple cardigan over a black top and a moon-phase necklace. A wooden fence with string lights hangs behind her

Christine MacFadyen’s Journey: Navigating Life with a Rare Disease

November 30, 2025

Christine MacFadyen’s Journey: Navigating Life with a Rare Disease Forty-year-old Christine, who lives with her long-time partner, Brent, on Prince Edward Island, in Canada, describes

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“Three people stand close together outdoors, smiling at the camera. A young woman in a white jacket is on the left, an adult woman in a gray jacket is in the center, and an adult man wearing a plaid shirt and a navy USS Scott cap is on the right. Evergreen trees and bare winter woods are in the background.

Cara Caplinger’s Journey: Finding Strength in the Face of GPA

November 24, 2025

Cara Caplinger’s Journey: Finding Strength in the Face of GPA Cara is a vibrant 52-year-old woman living in Crawfordsville, Indiana. Her life has revolved around

Read More »
A woman smiling outdoors, wearing a light purple zip-up top. Behind her is a large stone castle-like building with tall windows and towers, built into a rocky hillside, surrounded by greenery.

A New Normal: Jennifer Mullen is Living and Thriving with GPA

August 27, 2025

A New Normal: Jennifer Mullen is Living and Thriving with GPA Jennifer, a 33-year-old mother of two living in Salt Lake City, Utah, has navigated

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