Blog
Navigating EGPA: Henrietta “Henri” Malizia’s Journey of Resilience and Hope
- egpa, Patient Journey, Vasculitis
- Eosinophilic Granulomatosis with Polyangiitis
Navigating EGPA: Henrietta “Henri” Malizia’s Journey of Resilience and Hope Henri, a 71-year-old former critical care nurse and nurse educator living in Davenport, Florida, embodies remarkable resilience. She grew up in Canada where she met her Italian-born husband, Al, and they immigrated to the USA in 1989. Married to Al for 46 years, with an […]
A New Normal: Jennifer Mullen is Living and Thriving with GPA
- GPA, Patient Journey, Vasculitis
- Granulomatosis with Polyangiitis
A New Normal: Jennifer Mullen is Living and Thriving with GPA Jennifer, a 33-year-old mother of two living in Salt Lake City, Utah, has navigated a challenging health journey, leading to a diagnosis of granulomatosis with polyangiitis (GPA). Her story is one of resilience, adjustment, and finding joy amid uncertainty. Jennifer’s symptoms began in 2022, […]
A New Blueprint for Vasculitis Care: Insights from a Landmark Summit
- External Article, Summit, Vasculitis Care
- General Vasculitis
A New Blueprint for Vasculitis Care: Insights from a Landmark Summit Living with a rare disease like vasculitis presents unique challenges, making access to high-quality care absolutely critical. That’s why the recent 2024 Vasculitis Foundation Quality Care Summit was such a pivotal event, bringing together experts and advocates to chart a course for better patient […]
From Cyclist to Survivor: Kegan Machen’s Unexpected Journey with GPA
- GPA, Patient Journey, Vasculitis
- Granulomatosis with Polyangiitis
From Cyclist to Survivor: Kegan Machen’s Unexpected Journey with GPA Kegan is a 32-year-old attorney and avid cyclist in Idaho Falls, Idaho, who faced a life-altering diagnosis of granulomatosis with polyangiitis (GPA) at age 29. This rare autoimmune disease, causing blood vessel inflammation, rapidly reshaped his reality, leading to extensive hospital stays, multiple joint replacements, […]
Duane Moore’s Journey to a Vasculitis Diagnosis: Finding Answers and Hope
- GPA, Patient Journey, Vasculitis
- Granulomatosis with Polyangiitis
Duane Moore’s Journey to Diagnosis What started as seemingly minor bleeding gums, dismissed as “strawberry gingivitis,” rapidly escalated into a life-altering diagnosis for Duane shortly after his 38th birthday in 2021. This initial symptom was the first clue in a complex journey that led to him being diagnosed with granulomatosis with polyangiitis (GPA), a rare […]
Heather Schmitt’s MPA Journey Teaches Resilience
- Family, Support
- Microscopic Polyangiitis
Heather Schmidt’s MPA Journey Teaches Resilience Heather Schmidt, 44, a wife, mother to five, and an entrepreneur in the heart of central Minnesota, experienced jam-packed days that relied on seemingly boundless energy and a tight schedule for the first two decades of her marriage. Heather and Nathan were married 24 years ago and when they […]