Blog
A New Normal: Jennifer Mullen is Living and Thriving with GPA
- GPA, Patient Journey, Vasculitis
- Granulomatosis with Polyangiitis
A New Normal: Jennifer Mullen is Living and Thriving with GPA Jennifer, a 33-year-old mother of two living in Salt Lake City, Utah, has navigated a challenging health journey, leading to a diagnosis of granulomatosis with polyangiitis (GPA). Her story is one of resilience, adjustment, and finding joy amid uncertainty. Jennifer’s symptoms began in 2022, […]
A New Blueprint for Vasculitis Care: Insights from a Landmark Summit
- External Article, Summit, Vasculitis Care
- General Vasculitis
A New Blueprint for Vasculitis Care: Insights from a Landmark Summit Living with a rare disease like vasculitis presents unique challenges, making access to high-quality care absolutely critical. That’s why the recent 2024 Vasculitis Foundation Quality Care Summit was such a pivotal event, bringing together experts and advocates to chart a course for better patient […]
From Cyclist to Survivor: Kegan Machen’s Unexpected Journey with GPA
- GPA, Patient Journey, Vasculitis
- Granulomatosis with Polyangiitis
From Cyclist to Survivor: Kegan Machen’s Unexpected Journey with GPA Kegan is a 32-year-old attorney and avid cyclist in Idaho Falls, Idaho, who faced a life-altering diagnosis of granulomatosis with polyangiitis (GPA) at age 29. This rare autoimmune disease, causing blood vessel inflammation, rapidly reshaped his reality, leading to extensive hospital stays, multiple joint replacements, […]
Duane Moore’s Journey to a Vasculitis Diagnosis: Finding Answers and Hope
- GPA, Patient Journey, Vasculitis
- Granulomatosis with Polyangiitis
Duane Moore’s Journey to Diagnosis What started as seemingly minor bleeding gums, dismissed as “strawberry gingivitis,” rapidly escalated into a life-altering diagnosis for Duane shortly after his 38th birthday in 2021. This initial symptom was the first clue in a complex journey that led to him being diagnosed with granulomatosis with polyangiitis (GPA), a rare […]
Heather Schmitt’s MPA Journey Teaches Resilience
- Family, Support
- Microscopic Polyangiitis
Heather Schmidt’s MPA Journey Teaches Resilience Heather Schmidt, 44, a wife, mother to five, and an entrepreneur in the heart of central Minnesota, experienced jam-packed days that relied on seemingly boundless energy and a tight schedule for the first two decades of her marriage. Heather and Nathan were married 24 years ago and when they […]
Bonnie Willi’s Vasculitis Journey Began Postpartum
- Connections, Family, Vasculitis Awareness Month
- Granulomatosis with Polyangiitis
Bonnie Willi’s Vasculitis Journey Began Postpartum While having a new baby can be a joyful event, the effects on a woman’s body can be difficult to deal with and it takes time to heal. Bonnie Willi knew what to expect when she had her son in March 2015, but after his birth, rather than mend […]