Blog
Rare Disease Day is All About Sharing Information
- Rare Disease Day, Wear your stripes
- Uncategorized
Rare Disease Day is All About Sharing Information Get ready to show your support for everyone who has been diagnosed with a rare disease. Rare Disease Day is February 28 and we want to make sure people living with rare diseases are visible. So don’t forget to show your stripes! Medical professionals are taught when […]
Annie Reynolds, Diagnosed Young, Creates Children’s Book for Vasculitis Patients
- Book, Story, Support
- Granulomatosis with Polyangiitis
Annie Reynolds laughingly tells her mom she is her glitch child. She says she has been a monster – making her siblings walk on egg shells – she has been depressed and she has been scared. Annie was diagnosed with GPA vasculitis at 14.Annie, now a 21-year-old graduate student, has written an illustrated children’s book […]
“The Vasculitis Foundation Saved My Life.”
- Story
- Granulomatosis with Polyangiitis
“The Vasculitis Foundation Saved My Life.” Victor James has spent his whole life in Stafford, VA. He grew up on a farm, hunting and fishing. He got married to his wife of 42 years as a “youngster,” had children and now two grandchildren. “They’ve added a little pep in my step,” he said. And for […]
A Vasculitis Long-Timer Relies on the Power of Connection
- Story
- Takayasu Arteritis
A Vasculitis Long-Timer Relies on the Power of Connection When Sharon was diagnosed with Takayasu arteritis in 1981 at age 30, there was no Internet for her to turn to. In the lab where she was working, she found a medical book with a single paragraph of information about her disease: “If not treated,” it […]
Veterans Affairs is Working to Give Its Patients Greater Access to Vasculitis Care, No Matter Where They Live
- Story, Veterans Day
- Giant Cell Arteritis, Uncategorized
Veterans Affairs is Working to Give Its Patients Greater Access to Vasculitis Care, No Matter Where They Live Dr. Paul Monach, chief of the rheumatology section at the Veterans Affairs (VA) Boston Healthcare System and an associate professor at Harvard Medical School, sees those needs every day. An expert in treating vasculitis, he works closely […]
Lack of Vasculitis Expertise Leads to Devastating End
- Annual Appeal Blog, Late Diagnosis
- Uncategorized
Lack of Vasculitis Expertise Leads to Devastating End Karen Miller has joined her local hospital’s patient advisory board after her mother, Lynn Johnston, died from cascading effects of her delayed diagnosis for vasculitis. Her hope is that her role on the advisory board will lead to changes in the way patients and families are heard […]
![Logo for Vasculitis Awareness Month (VAM), observed in May. The logo features bold letters 'VAM [may]' with the words 'Vasculitis Awareness Month' beneath, and a stylized circular symbol composed of overlapping white rings to the left.](https://vasculitisfoundation.org/wp-content/uploads/2025/04/VAM-logo-All-White-1024x349.png){kind=logo}