Blog
Vinay Kamath, 15, Wants More Vasculitis Research So He Started a Fundraiser
- Fundraiser, Research, Teenager, Vasculitis Awareness Month
- Uncategorized
Vinay Kamath, 15, Wants More Vasculitis Research So He Started a Fundraiser When Vinay Kamath, 15, found out his grandmother had ANCA negative vasculitis with kidney involvement, the first thing he did was research the disease and treatment. He quickly discovered the Vasculitis Foundation (VF) and read about avacopan, (Tavneos®), the medicine his grandmother had […]
Finding Purpose Through Pain: Khamia Montgomery’s Journey with Vasculitis and Entrepreneurship
- Community, Entrepreneur, Vasculitis Awareness Month, Young Adult
- Granulomatosis with Polyangiitis
Finding Purpose Through Pain: Khamia Montgomery’s Journey with Vasculitis and Entrepreneurship At just 27 years old, Khamia Montgomery is blazing trails as a spirited entrepreneur with a powerful mission. Based in Chagrin Falls, Ohio, she’s the founder of Brwn In A Box, a natural hair care subscription service created specifically for those with textured hair—especially […]
Kimberly Fisher Spreads Awareness About Behcet’s as a Nurse and a Patient
- Advocate, Education, Misdiagnosis, Nurse, Vasculitis Awareness Month
- Behçet’s Syndrome
Kimberly Fisher Spreads Awareness About Behcets Disease as a Nurse and a Patient Kimberly Fisher knows what it’s like to be told her disease is all in her head, to be thought of as someone who is just seeking pain medications and to be misdiagnosed for years. She was diagnosed with Behcet’s disease, a rare […]
Vasculitis and Motherhood: A Story of Hope and Resilience
- Mother's Day, Pregnancy, Story, Vasculitis Awareness Month, VPPRN
- Granulomatosis with Polyangiitis
Vasculitis and Motherhood: A Story of Hope and Resilience Avery Owens’ journey to motherhood is an inspiring testament to the power of perseverance and the importance of seeking expert medical care. Avery, 29, was 15 when she first developed symptoms of vasculitis. It took nearly five years to receive a diagnosis with granulomatosis with polyangiitis […]
Young Adults Connect at Nashville Conference, Offer Hope to One Another
- Conferences, Nashville, Young Adult Scholarships
- Uncategorized
Young Adults Connect at Nashville Conference, Offer Hope to One Another Young adults between 18 and 30 came from all across the United States and from as far away as Italy and Ireland to attend the VF’s Vasculitis Conference in Nashville, Tennessee on Saturday, March 22. They came to learn more about vasculitis and to […]
The Importance of Early Diagnosis: An Experience with GPA
- Creativity, Early Diagnosis, Support
- Granulomatosis with Polyangiitis
The Importance of Early Diagnosis: An Experience with GPA Ashley Fry’s illness began with something as common as sore gums. But what started as simple discomfort soon escalated into bleeding gums and oral lesions that rounds of antibiotics, nasal sprays and steam therapy couldn’t fix. “Brushing my teeth was like a scene from a body […]