Blog
Christine MacFadyen’s Journey: Navigating Life with a Rare Disease
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Christine MacFadyen’s Journey: Navigating Life with a Rare Disease Forty-year-old Christine, who lives with her long-time partner, Brent, on Prince Edward Island, in Canada, describes herself as a “family and friends’ person,” someone who adores her loved ones and spending time with them. She finds her happy place at the beach, searching for sea glass, […]
Cara Caplinger’s Journey: Finding Strength in the Face of GPA
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Cara Caplinger’s Journey: Finding Strength in the Face of GPA Cara is a vibrant 52-year-old woman living in Crawfordsville, Indiana. Her life has revolved around her roles as a mother to her 22-year-old daughter, Cayden, a wife to her husband, John, an elementary school teacher, an avid gardener and reader, and a devoted admirer of […]
Meet VF Young Investigator Audra Horomanski, MD
- Uncategorized
Meet VF Young Investigator Audra Horomanski, MD Early Inspiration and Commitment to Vasculitis Research Dr. Horomanski’s journey into vasculitis research began during her residency and fellowship. “I took care of a number of patients with vasculitis during my residency and fellowship who were very ill and made incredible recoveries with our current therapies,” she recalled. […]
A New Era for Pediatric Vasculitis Research
- Uncategorized
A New Era for Pediatric Vasculitis Research PedsVPPRN: Bridging Pediatric Vasculitis Research and Care Jessica Bloom, MD, MSCS, is a pediatric rheumatologist who has dedicated her career to advancing care for children with vasculitis. Her latest initiative, the Pediatric Registry of the Vasculitis Patient-Powered Research Network (PedsVPPRN), aims to bridge the gaps in knowledge and […]
Advancing Comprehensive Vasculitis Care at Northwestern
- Clinic/Center/Hospital, Doctor, Research
- ANCA vasculitis
Advancing Comprehensive Vasculitis Care at Northwestern Dr. Brian Jaros, MD, Assistant Professor of Medicine and Associate Program Director of Rheumatology at Feinberg School of Medicine, Northwestern University, is making significant strides in the field of vasculitis care and research. Dr. Jaros is also Associate Director of the Northwestern Vasculitis Center, where his clinical expertise and […]
Navigating EGPA: Henrietta “Henri” Malizia’s Journey of Resilience and Hope
- egpa, Patient Journey, Vasculitis
- Eosinophilic Granulomatosis with Polyangiitis
Navigating EGPA: Henrietta “Henri” Malizia’s Journey of Resilience and Hope Henri, a 71-year-old former critical care nurse and nurse educator living in Davenport, Florida, embodies remarkable resilience. She grew up in Canada where she met her Italian-born husband, Al, and they immigrated to the USA in 1989. Married to Al for 46 years, with an […]