Blog
Allison Long Keeps Moving Toward Her Goals: A Marathon and a Medical Career
- Autoimmune Disease Awareness Month, Kidney Awareness Month, Story
- IgA Vasculitis
Allison Long Keeps Moving Toward Her Goals: A Marathon and a Medical Career Allison Long had never run a marathon, but it was a goal. She was training for a half marathon after completing a 10k when she was diagnosed with IgA vasculitis/IgA nephropathy at 21. In the face of a chronic illness, Allison, now […]
Dr. Catherine Sims Leads Team Researching Pregnancy and Vasculitis
- Pregnancy, Research, Vasculitis
- Pregnancy, Uncategorized
Dr. Catherine Sims Leads Team Researching Pregnancy and Vasculitis Pregnancy can be complicated, even for healthy women. But for someone with a rare autoimmune disease, even thinking about having a baby can be overwhelming and isolating. Vasculitis patients don’t have a large network of people to ask questions about what it means to be pregnant […]
Sharan Knoell Champions the Doctor Who Diagnosed Her
- GPA, Lung Biopsy, Story
- Granulomatosis with Polyangiitis
Sharan Knoell Champions Doctor Who Diagnosed Her Sharan Knoell is one of those rare vasculitis patients who got a diagnosis quickly. She has two people to thank for that. Sharan had always been very healthy and then shortly before her 35th birthday she started feeling ill. She thought she had the flu but she kept […]
Rare Disease Day is All About Sharing Information
- Rare Disease Day, Wear your stripes
- Uncategorized
Rare Disease Day is All About Sharing Information Get ready to show your support for everyone who has been diagnosed with a rare disease. Rare Disease Day is February 28 and we want to make sure people living with rare diseases are visible. So don’t forget to show your stripes! Medical professionals are taught when […]
Annie Reynolds, Diagnosed Young, Creates Children’s Book for Vasculitis Patients
- Book, Story, Support
- Granulomatosis with Polyangiitis
Annie Reynolds laughingly tells her mom she is her glitch child. She says she has been a monster – making her siblings walk on egg shells – she has been depressed and she has been scared. Annie was diagnosed with GPA vasculitis at 14.Annie, now a 21-year-old graduate student, has written an illustrated children’s book […]
“The Vasculitis Foundation Saved My Life.”
- Story
- Granulomatosis with Polyangiitis
“The Vasculitis Foundation Saved My Life.” Victor James has spent his whole life in Stafford, VA. He grew up on a farm, hunting and fishing. He got married to his wife of 42 years as a “youngster,” had children and now two grandchildren. “They’ve added a little pep in my step,” he said. And for […]
