Blog
Veterans Affairs is Working to Give Its Patients Greater Access to Vasculitis Care, No Matter Where They Live
- Story, Veterans Day
- Giant Cell Arteritis, Uncategorized
Veterans Affairs is Working to Give Its Patients Greater Access to Vasculitis Care, No Matter Where They Live Dr. Paul Monach, chief of the rheumatology section at the Veterans Affairs (VA) Boston Healthcare System and an associate professor at Harvard Medical School, sees those needs every day. An expert in treating vasculitis, he works closely […]
Lack of Vasculitis Expertise Leads to Devastating End
- Annual Appeal Blog, Late Diagnosis
- Uncategorized
Lack of Vasculitis Expertise Leads to Devastating End Karen Miller has joined her local hospital’s patient advisory board after her mother, Lynn Johnston, died from cascading effects of her delayed diagnosis for vasculitis. Her hope is that her role on the advisory board will lead to changes in the way patients and families are heard […]
“I Didn’t Feel At Home In My Skin” – A Teenager’s Vasculitis Journey
- Story
- Granulomatosis with Polyangiitis
“I Didn’t Feel At Home In My Skin” – A Teenager’s Vasculitis Journey “When I was diagnosed with vasculitis in 2005, it felt like there was no one else in my shoes.” Meagan Cramer was 15 when she first started getting symptoms. Her pediatrician kept dismissing her; “He figured I just had the worst allergies […]
An Early Diagnosis Saved Him; Now He Advocates For Others
- Annual Appeal Blog, Early Diagnosis, Story
- Granulomatosis with Polyangiitis, Uncategorized
Blog “It was the best of times, it was the worst of times, it was the season of Light, it was the season of Darkness, it was the spring of hope, it was the winter of despair.” Charles Dickens’ words from A Tale of Two Cities echoed in Antwain Robinson’s mind as he reflected on […]
Eliza Johnstone’s Vasculitis Diagnosis Came Late, She Now Champions Early Diagnosis for Others
- Annual Appeal Blog, Ear Pain, Late Diagnosis, Story, Teenager, Vasculitis
- Granulomatosis with Polyangiitis, Uncategorized
Eliza Johnstone’s Vasculitis Diagnosis Came Late, She Now Champions Early Diagnosis for Others Eliza Johnstone, a 19-year-old living in the United Kingdom, feels like she is slowly getting her life back after a five-year journey through a vasculitis diagnosis and treatment that is finally working. She reached out to tell her story because she knows […]
Late Vasculitis Diagnosis Steals Nearly One Decade
- Annual Appeal Blog, Late Diagnosis, lost decade, Vasculitis
- Uncategorized
Late Vasculitis Diagnosis Steals Nearly One Decade Christine Gerchow was in her final semester at Villanova University in 2002 and planning for a promising career, when at 21 she went to the emergency room with a high fever after vomiting blood. Her white blood count was extremely high, and she nearly died during a medical […]
