VPPRN Patient-Powered Research
Urticarial Vasculitis
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with urticarial vasculitis compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2026 check-in:
- Compared to patients with other forms of vasculitis, patients with urticarial vasculitis reported the following:
- more flares reported
- similar scores for fatigue
- similar scores for their symptoms of vasculitis over the past 28 days
- similar scores for pain
- a higher percentage of patients with urticarial vasculitis reported their vasculitis as active.
- Compared to patients with other forms of vasculitis, patients with urticarial vasculitis reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
- Not a member? Click JOIN THE VPPRN button below.
- Already a VPPRN Member? Use the LOGIN button to access your account.
FLARES and VASCULITIS
Flare Reporting: At the January 2026 check-in, patients with urticarial vasculitis reported more flares in the past 6 months. 31% of patients with urticarial vasculitis reported a flare compared to 21% in the VPPRN community. This is a trend we have seen consistently for the past 6 VPPRN check-ins from January 2023–January 2026.
Patients with urticarial vasculitis
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: Fatigue was common among patients with urticarial vasculitis, with rates similar to the broader VPPRN community. At the January 2026 check-in, 85% reported experiencing fatigue in the past 7 days, compared with 87% across the Network.
Patients with urticarial vasculitis
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: Patients with urticarial vasculitis reported vasculitis symptom levels similar to those seen across the VPPRN community. At the January 2026 check-in, 70% of patients with urticarial vasculitis reported experiencing vasculitis symptoms over the past 28 days, compared with 77% of participants across the Network.
Patients with urticarial vasculitis
Entire VPPRN Community
PAIN and VASCULITIS
Pain: Patients with urticarial vasculitis reported pain levels similar to those seen across the VPPRN community. At the January 2026 check-in, 78% of patients with urticarial vasculitis reported some level of pain on average (scores 1–10), compared with 72% of participants across the Network.
Patients with urticarial vasculitis
Entire VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: Patients with urticarial vasculitis were more likely to report active vasculitis compared with the overall VPPRN community. At the January 2026 check-in, 34% of patients with urticarial vasculitis reported active disease and 59% reported being in remission, compared with 21% and 67%, respectively, across the Network.
Patients with urticarial vasculitis
Entire VPPRN Community
