VPPRN Patient-Powered Research
Takayasu's Arteritis (TAK)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with Takayasu’s arteritis (TAK) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2026 check-in:
- Compared to patients with other forms of vasculitis, patients with TAK reported the following:
- similar percentage of flares reported
- similar scores for fatigue
- higher scores for their symptoms of vasculitis over the past 28 days
- similar overall scores for pain
- a similar percentage of patients with TAK reported their vasculitis as active.
- Compared to patients with other forms of vasculitis, patients with TAK reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
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FLARES and VASCULITIS
Flare Reporting: Patients with TAK reported flare rates similar to those seen across the VPPRN community. At the January 2026 check-in, 75% of patients with TAK reported no flare in the past 6 months, similar to the 72% percentage reported by the overall VPPRN community.
Patients with TAK
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: Fatigue was common among patients with TAK, with rates similar to the broader VPPRN community. At the January 2026 check-in, 93% reported experiencing fatigue in the past 7 days, similar to the 87% percentage reported by the overall VPPRN community.
Patients with TAK
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: Compared with the overall VPPRN community, patients with TAK reported more vasculitis symptoms. At the January 2026 check-in, 89% of patients with TAK reported experiencing symptoms over the past 28 days, compared with 77% of participants across the Network.
Patients with TAK
Entire VPPRN Community
PAIN and VASCULITIS
Pain: Patients with TAK reported pain levels similar to those seen across the VPPRN community. At the January 2026 check-in, 77% of patients with TAK reported some level of pain on average (scores 1–10), compared with 72% of participants across the Network.
Patients with TAK
Entire VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: Patients with TAK reported active disease at rates similar to the overall VPPRN community. At the January 2026 check-in, 19% reported their vasculitis as active, compared with 21% of participants across the Network.
Patients with TAK
Entire VPPRN Community
