VPPRN Patient-Powered Research
Polyarteritis Nodosa (PAN)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with polyarteritis nodosa (PAN) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2026 check-in:
- Compared to patients with other forms of vasculitis, patients with PAN reported the following:
- similar percentage of flares reported
- similar scores for fatigue
- higher scores/ratings for their symptoms of vasculitis over the past 28 days
- higher scores for pain
- a higher percentage of patients with PAN reported their vasculitis as currently active.
- Compared to patients with other forms of vasculitis, patients with PAN reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
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FLARES and VASCULITIS
Flare Reporting: Patients with PAN reported flare rates similar to those seen across the VPPRN community. At the January 2026 check-in, 21% of patients with PAN reported experiencing a flare in the past 6 months, matching the percentage reported by the overall VPPRN community.
Patients with PAN
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: Fatigue was common among patients with PAN, with rates similar to the broader VPPRN community. At the January 2026 check-in, 87% reported experiencing fatigue in the past 7 days, matching the percentage reported by the overall VPPRN community.
Patients with PAN
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: Compared with the overall VPPRN community, patients with PAN reported more vasculitis symptoms. At the January 2026 check-in, 15% of patients with PAN reported no symptoms over the past 28 days, compared with 23% of participants across the Network.
Patients with PAN
Entire VPPRN Community
PAIN and VASCULITIS
Pain: Patients with PAN reported higher levels of pain than the overall VPPRN community. At the January 2026 check-in, 20% of patients with PAN reported no pain (score of 0), compared with 28% of participants across the VPPRN community.
Patients with PAN
Entire VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: Patients with PAN were more likely to report active vasculitis compared with the overall VPPRN community. At the January 2026 check-in, 28% of patients with PAN reported active disease and 58% reported being in remission, compared with 21% and 67%, respectively, across the Network.
Patients with PAN
Entire VPPRN Community
