VPPRN Patient-Powered Research
Polyarteritis Nodosa (PAN)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with polyarteritis nodosa (PAN) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:
- Compared to patients with other forms of vasculitis, patients with PAN reported the following:
- similar percentage of flares reported (this is a change from the scores at the July 2024 check-in where the rates were lower for patients with PAN)
- similar scores for fatigue
- similar scores/ratings for their symptoms of vasculitis over the past 28 days
- similar scores for pain
- a similar percentage of patients with PAN reported their vasculitis as currently active.
- Compared to patients with other forms of vasculitis, patients with PAN reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
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FLARES and VASCULITIS
Flare Reporting: At the January 2025 check-in, 25% of patients with PAN reported a flare in the past 6 months. This is similar to the 24% in the VPPRN community who reported a flare within the same timeframe.
Patients with PAN
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: 16% of patients with PAN reported no fatigue at the January 2025 check-in, on average. This is similar to the 14% reported in the VPPRN community.
Patients with PAN
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: At the January 2025 check-in, patients with PAN scored their symptoms of vasculitis similar to the Network. 29% of patients with PAN reported no symptoms at all over the past 28 days compared to 23% in the VPPRN community.
Patients with PAN
Entire VPPRN Community
PAIN and VASCULITIS
Pain: 31% of patients with PAN reported no pain, on average, at the January 2025 check-in. This is similar to the 26% reported in the Network.
Patients with PAN
Entire VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: At the January 2025 check-in, 24% of patients with PAN reported their vasculitis as active. This is similar to the 23% in the VPPRN community.
Patients with PAN
Entire VPPRN Community
