VPPRN Patient-Powered Research
Other/Suspected Diagnosis
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with other/suspected diagnosis compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2026 check-in:
- Compared to patients with other forms of vasculitis, patients with other/suspected diagnosis reported the following:
- similar percentage of flares reported
- similar scores for fatigue
- similar scores for their symptoms of vasculitis over the past 28 days
- similar scores for pain
- a smaller percentage of patients with other/suspected diagnosis reported their vasculitis in remission.
- Compared to patients with other forms of vasculitis, patients with other/suspected diagnosis reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
- Not a member? Click JOIN THE VPPRN button below.
- Already a VPPRN Member? Use the LOGIN button to access your account.
FLARES and VASCULITIS
Flare Reporting: Patients with other/suspected diagnosis reported flare rates similar to those seen across the VPPRN community. At the January 2026 check-in, 27% of patients with other/suspected diagnosis reported a disease flare in the past 6 months, compared with 21% of participants across the overall Network.
Patients with
other/suspected diagnosis
Entire
VPPRN Community
FATIGUE and VASCULITIS
Fatigue: Fatigue was common among patients with other/suspected diagnosis, with rates similar to the broader VPPRN community. At the January 2026 check-in, 88% reported experiencing fatigue in the past 7 days, compared with 87% across the Network.
Patients with
other/suspected diagnosis
Entire
VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: Patients with other/suspected diagnosis reported vasculitis symptom levels similar to those seen across the VPPRN community. At the January 2026 check-in, 20% of patients with other/suspected diagnosis reported no vasculitis symptoms over the past 28 days, compared with 23% of participants across the Network.
Patients with
other/suspected diagnosis
Entire
VPPRN Community
PAIN and VASCULITIS
Pain: Patients with other/suspected diagnosis reported pain levels similar to those seen across the VPPRN community. At the January 2026 check-in, 80% of patients with other/suspected diagnosis reported some level of pain on average (scores 1–10), compared with 72% of participants across the Network.
Patients with
other/suspected diagnosis
Entire
VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: A smaller percentage of patients with other/suspected diagnosis reported their vasculitis in remission. At the January 2026 check-in, 25% of patients with other/suspected diagnosis reported active disease and 55% reported being in remission, compared with 21% and 67%, respectively, across the Network.
Patients with
other/suspected diagnosis
Entire
VPPRN Community
