VPPRN Patient-Powered Research
Other/Suspected Diagnosis
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with other/suspected diagnosis compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:
- Compared to patients with other forms of vasculitis, patients with other/suspected diagnosis reported the following:
- similar percentage of flares reported (this is a change from the July 2024 check-in where the rates were higher for patients with other/suspected diagnosis)
- similar scores for fatigue
- similar scores for their symptoms of vasculitis over the past 28 days
- similar scores for pain
- a smaller percentage of patients with other/suspected diagnosis reported their vasculitis in remission.
- Compared to patients with other forms of vasculitis, patients with other/suspected diagnosis reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
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FLARES and VASCULITIS
Flare Reporting: At the January 2025 check-in, 30% of patients with other/suspected diagnosis reported a flare in the past 6 months. This is similar to the 24% in the VPPRN community who reported a flare within the same timeframe.
Patients with
other/suspected diagnosis
Entire
VPPRN Community
FATIGUE and VASCULITIS
Fatigue: At the January 2025 check-in, 12% of patients with other/suspected diagnosis reported no fatigue, on average. This is similar to the 14% reported in the VPPRN community.
Patients with
other/suspected diagnosis
Entire
VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: 17% of patients with other/suspected diagnosis reported no symptoms of vasculitis at the January 2025 check-in. This is similar to the 23% reported in the Network.
Patients with
other/suspected diagnosis
Entire
VPPRN Community
PAIN and VASCULITIS
Pain: At the January 2025 check-in, 22% of patients with other/suspected diagnosis reported no pain, on average. This is comparable to the 26% reported in the VPPRN community.
Patients with
other/suspected diagnosis
Entire
VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: At the January 2025 check-in, 48% of patients with other/suspected diagnosis reported their vasculitis as in remission. This is lower than the 63% reported in the Network.
Patients with
other/suspected diagnosis
Entire
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