VPPRN Patient-Powered Research
Microscopic Polyangiitis (MPA)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with microscopic polyangiitis (MPA) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2024 check-in:
- Compared to patients with other forms of vasculitis, patients with MPA reported the following:
- less reported flares
- similar scores for fatigue
- similar scores/ratings for their symptoms of vasculitis over the past 28 days
- similar scores for pain
- a smaller percentage of patients with MPA reported their vasculitis as currently active.
- Compared to patients with other forms of vasculitis, patients with MPA reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
FLARES and VASCULITIS
Flare Reporting: At the January 2024 check-in, patients with MPA reported fewer flares in the past 6 months (14%) compared to 25% in the VPPRN community.
Patients with MPA
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: At the January 2024 check-in, 12% of patients with MPA reported no fatigue, on average. This is the same percentage reported in the VPPRN community.
Patients with MPA
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: 27% of patients with MPA reported no symptoms of vasculitis at the January 2024 check-in. This is similar to the 24% in the VPPRN community.
Patients with MPA
Entire VPPRN Community
PAIN and VASCULITIS
Pain: At the January 2024 check-in, 29% of patients with MPA reported no pain in the past 6 months. This is similar to the 27% reported in the Network.
Patients with MPA
Entire VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: At the January 2024 check-in, a smaller percentage of patients with MPA reported their vasculitis as currently active. 17% of patients with MPA reported their vasculitis as active compared to 25% in the VPPRN community.
Patients with MPA
Entire VPPRN Community
