VPPRN Patient-Powered Research
IgA Vasculitis (Henoch-Schönlein)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with IgA vasculitis (Henoch-Schönlein) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:
- Compared to patients with other forms of vasculitis, patients with IgA vasculitis reported the following:
- more flares
- similar scores for fatigue
- similar scores/ratings for their symptoms of vasculitis over the past 28 days
- similar scores for pain
- a higher percentage of patients with IgA vasculitis reported their vasculitis as active (this is a change from the scores from the July 2024 check-in where the rates among patients with IgA vasculitis and the VPPRN community were similar)
- Compared to patients with other forms of vasculitis, patients with IgA vasculitis reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
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FLARES and VASCULITIS
Flare Reporting: At the January 2025 check-in, patients with IgA vasculitis reported higher rates of flares in the past 6 months (39%) compared to 24% in the VPPRN community.
Patients with IgA vasculitis
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: At the January 2025 check-in, 11% of patients with IgA vasculitis reported no fatigue, on average. This is similar to the 14% reported in the VPPRN community.
Patients with IgA vasculitis
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: At the January 2025 check-in, 29% of patients with IgA vasculitis reported no symptoms of vasculitis over the past 28 days. This is similar to the 23% reported in the VPPRN community.
Patients with IgA vasculitis
Entire VPPRN Community
PAIN and VASCULITIS
Pain: At the January 2025 check-in, 29% of patients with IgA vasculitis reported moderate to severe pain (scores 5-10), on average. This is similar to the 28% reported in the VPPRN community.
Patients with IgA vasculitis
Entire VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: At the January 2025 check-in, 45% of patients with IgA vasculitis reported their vasculitis as active. This is higher than the 23% who reported active disease in the Network.
Patients with IgA vasculitis
Entire VPPRN Community
