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VPPRN Patient-Powered Research

IgA Vasculitis (Henoch-Schönlein)

Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing.  The graphs below reflect the scores/ratings of patients with IgA vasculitis (Henoch-Schönlein) compared to the Network as a whole.  Here is what we learned about flaresfatiguepainsymptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:

    • Compared to patients with other forms of vasculitis, patients with IgA vasculitis reported the following:
      • more flares
      • similar scores for fatigue
      • similar scores/ratings for their symptoms of vasculitis over the past 28 days
      • similar scores for pain
      • a higher percentage of patients with IgA vasculitis reported their vasculitis as active (this is a change from the scores from the July 2024 check-in where the rates among patients with IgA vasculitis and the VPPRN community were similar)

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.  

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FLARES and VASCULITIS

Flare Reporting: At the January 2025 check-in, patients with IgA vasculitis reported higher rates of flares in the past 6 months (39%) compared to 24% in the VPPRN community.

Patients with IgA vasculitis

Entire VPPRN Community

FATIGUE and VASCULITIS

Fatigue: At the January 2025 check-in, 11% of patients with IgA vasculitis reported no fatigue, on average. This is similar to the 14% reported in the VPPRN community.

Patients with IgA vasculitis

Entire VPPRN Community

SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: At the January 2025 check-in, 29% of patients with IgA vasculitis reported no symptoms of vasculitis over the past 28 days.  This is similar to the 23% reported in the VPPRN community.

Patients with IgA vasculitis

Entire VPPRN Community

PAIN and VASCULITIS

Pain: At the January 2025 check-in, 29% of patients with IgA vasculitis reported moderate to severe pain (scores 5-10), on average.  This is similar to the 28% reported in the VPPRN community.

Patients with IgA vasculitis

Entire VPPRN Community

MEMBERS' CURRENT STATE OF VASCULITIS

Members’ Current State of Vasculitis: At the January 2025 check-in, 45% of patients with IgA vasculitis reported their vasculitis as active.  This is higher than the 23% who reported active disease in the Network.

Patients with IgA vasculitis

Entire VPPRN Community