VPPRN Patient-Powered Research
IgA Vasculitis (Henoch-Schönlein)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with IgA vasculitis (Henoch-Schönlein) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2024 check-in:
- Compared to patients with other forms of vasculitis, patients with IgA vasculitis reported the following:
- more flares
- similar scores for fatigue
- similar scores/ratings for their symptoms of vasculitis over the past 28 days
- similar scores for pain
- a larger percentage of patients with IgA vasculitis reported their vasculitis as active.
- Compared to patients with other forms of vasculitis, patients with IgA vasculitis reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: At the January 2024 check-in, a larger percentage of patients with IgA vasculitis reported their vasculitis as active. 38% of patients with IgA vasculitis reported their vasculitis as active. This is higher than the 25% in the Network.