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VPPRN Patient-Powered Research

Granulomatosis with Polyangiitis (GPA)

Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing.  The graphs below reflect the scores/ratings of patients with granulomatosis with polyangiitis (GPA) compared to the Network as a whole.  Here is what we learned about flaresfatiguepainsymptoms of vasculitis, and members’ current state of vasculitis at the January 2024 check-in:

    • Compared to patients with other forms of vasculitis, patients with GPA reported the following:
      • less reported flares
      • similar scores for fatigue
      • similar scores/ratings for their symptoms of vasculitis over the past 28 days
      • similar scores for pain
      • a smaller percentage of patients with GPA reported their vasculitis as currently active.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.  

FLARES and VASCULITIS

Flare Reporting: At the January 2024 check-in, patients with GPA reported fewer flares in the past 6 months (18%) compared to 25% in the VPPRN community.

Patients with GPA

Entire VPPRN Community

FATIGUE and VASCULITIS

Fatigue: At the January 2024 check-in, 15% of patients with GPA reported no fatigue, on average.  This is similar to the 12% reported in the VPPRN community.

Patients with GPA

Entire VPPRN Community

SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: 28% of patients with GPA reported no symptoms of vasculitis at the January 2024 check-in. This is similar to the 24% in the VPPRN community.

Patients with GPA

Entire VPPRN Community

PAIN and VASCULITIS

Pain: At the January 2024 check-in, 84% of patients with GPA reported no to moderate pain (scores 0-5), on average. This is similar to the 81% in the VPPRN community who reported these same scores.

Patients with GPA

Entire VPPRN Community

MEMBERS' CURRENT STATE OF VASCULITIS

Members’ Current State of Vasculitis: At the January 2024 check-in, 16% of patients with GPA reported their vasculitis as active. This is less than the 25% reported in the Network.

Patients with GPA

Entire VPPRN Community