VPPRN Patient-Powered Research
Granulomatosis with Polyangiitis (GPA)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with granulomatosis with polyangiitis (GPA) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2026 check-in:
- Compared to patients with other forms of vasculitis, patients with GPA reported the following:
- similar rates of flares reported
- similar scores for fatigue
- similar scores/ratings for their symptoms of vasculitis over the past 28 days
- similar scores for pain
- a higher percentage of patients with GPA reported their vasculitis in remission
- Compared to patients with other forms of vasculitis, patients with GPA reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
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FLARES and VASCULITIS
Flare Reporting: Patients with GPA reported flare rates similar to those seen across the VPPRN community. At the January 2026 check-in, 78% of patients with GPA reported no flares in the past 6 months, compared with 72% of participants across the overall Network.
Patients with GPA
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: Fatigue was common among patients with GPA, with rates similar to the broader VPPRN community. At the January 2026 check-in, 88% reported experiencing some fatigue in the past 7 days, compared with 87% across the Network.
Patients with GPA
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: Patients with GPA reported vasculitis symptom levels similar to those seen across the VPPRN community. At the January 2026 check-in, 26% of patients with GPA reported no vasculitis symptoms over the past 28 days, compared with 23% of participants across the Network.
Patients with GPA
Entire VPPRN Community
PAIN and VASCULITIS
Pain: Patients with GPA reported pain levels similar to those seen across the VPPRN community. At the January 2026 check-in, 67% of patients with GPA reported some level of pain on average (scores 1–10), compared with 72% of participants across the Network.
Patients with GPA
Entire VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: At the January 2026 check-in, patients with GPA were more likely to report their vasculitis was in remission compared with the overall VPPRN community. 75% of patients with GPA reported being in remission, compared with 67% of participants across the Network.
Patients with GPA
Entire VPPRN Community
