VPPRN Patient-Powered Research
Granulomatosis with Polyangiitis (GPA)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with granulomatosis with polyangiitis (GPA) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:
- Compared to patients with other forms of vasculitis, patients with GPA reported the following:
- less reported flares
- similar scores for fatigue
- similar scores/ratings for their symptoms of vasculitis over the past 28 days
- similar scores for pain
- a higher percentage of patients with GPA reported their vasculitis in remission (this is a change from the scores we saw at the July 2024 check-in where the rates among patients with GPA and the VPPRN community were similar)
- Compared to patients with other forms of vasculitis, patients with GPA reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
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FLARES and VASCULITIS
Flare Reporting: At the January 2025 check-in, patients with GPA reported fewer flares in the past 6 months (17%) compared to 24% in the VPPRN community.
Patients with GPA
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: At the January 2025 check-in, 15% of patients with GPA reported no fatigue, on average, over the past 7 days. This is similar to the 14% reported in the VPPRN community.
Patients with GPA
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: 28% of patients with GPA reported no symptoms of vasculitis at the January 2025 check-in. This is similar to the 23% in the VPPRN community.
Patients with GPA
Entire VPPRN Community
PAIN and VASCULITIS
Pain: At the January 2025 check-in, 86% of patients with GPA reported no to moderate pain (scores 0-5), on average. This is similar to the 80% in the VPPRN community who reported these same scores.
Patients with GPA
Entire VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: At the January 2025 check-in, 73% of patients with GPA reported their vasculitis as in remission. This is higher than the 63% reported in the Network.
Patients with GPA
Entire VPPRN Community
