VPPRN Patient-Powered Research
Giant Cell (Temporal) Arteritis (GCA)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with giant cell (temporal) arteritis (GCA) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:
- Compared to patients with other forms of vasculitis, patients with GCA reported the following:
- similar percentage of flares reported (this is a change from the scores we saw at the July 2024 check-in where the rates were lower for patients with GCA)
- similar scores for fatigue
- higher percentage of patients with GCA reporting no symptoms over the past 28 days
- similar scores for pain
- a similar percentage of patients with GCA reported their vasculitis as currently active.
- Compared to patients with other forms of vasculitis, patients with GCA reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
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FLARES and VASCULITIS
Flare Reporting: At the January 2025 check-in, 22% of patients with GCA reported a flare in the past 6 months. This is similar to the 24% in the VPPRN community who reported a flare.
Patients with GCA
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: At the January 2025 check-in, 17% of patients with GCA reported no fatigue, on average, in the past 7 days. This is similar to the 14% in the VPPRN community who reported no fatigue within the same timeframe.
Patients with GCA
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: At the January check-in, patients with GCA scored their symptoms of vasculitis lower over the past 28 days. 34% of patients with GCA reported no symptoms of vasculitis, compared to 23% in the VPPRN community.
Patients with GCA
Entire VPPRN Community
PAIN and VASCULITIS
Pain: 24% of patients with GCA reported no pain at the January 2025 check-in (score = 0), on average. This is similar to the 26% who reported no pain in the Network.
Patients with GCA
Entire VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: 20% of patients with GCA reported their vasculitis as active. This is similar to the 23% reported in the Network.
Patients with GCA
Entire VPPRN Community
