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VPPRN Patient-Powered Research

Giant Cell (Temporal) Arteritis (GCA)

Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing.  The graphs below reflect the scores/ratings of patients with giant cell (temporal) arteritis (GCA) compared to the Network as a whole.  Here is what we learned about flaresfatiguepainsymptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:

    • Compared to patients with other forms of vasculitis, patients with GCA reported the following:
      • similar percentage of flares reported (this is a change from the scores we saw at the July 2024 check-in where the rates were lower for patients with GCA)
      • similar scores for fatigue
      • higher percentage of patients with GCA reporting no symptoms over the past 28 days
      • similar scores for pain
      • a similar percentage of patients with GCA reported their vasculitis as currently active.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider. 

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FLARES and VASCULITIS

Flare Reporting: At the January 2025 check-in, 22% of patients with GCA reported a flare in the past 6 months. This is similar to the 24% in the VPPRN community who reported a flare.

Patients with GCA

Entire VPPRN Community

FATIGUE and VASCULITIS

Fatigue: At the January 2025 check-in, 17% of patients with GCA reported no fatigue, on average, in the past 7 days.  This is similar to the 14% in the VPPRN community who reported no fatigue within the same timeframe.

Patients with GCA

Entire VPPRN Community

SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: At the January check-in, patients with GCA scored their symptoms of vasculitis lower over the past 28 days.  34% of patients with GCA reported no symptoms of vasculitis, compared to 23% in the VPPRN community.

Patients with GCA

Entire VPPRN Community

PAIN and VASCULITIS

Pain: 24% of patients with GCA reported no pain at the January 2025 check-in (score = 0), on average.  This is similar to the 26% who reported no pain in the Network.

Patients with GCA

Entire VPPRN Community

MEMBERS' CURRENT STATE OF VASCULITIS

Members’ Current State of Vasculitis: 20% of patients with GCA reported their vasculitis as active. This is similar to the 23% reported in the Network.

Patients with GCA

Entire VPPRN Community