Home » Treatments/Research » VPPRN Patient-Powered Research » VPPRN Community Dashboard » Eosinophilic Granulomatosis with Polyangiitis (EGPA) VPPRN

VPPRN Patient-Powered Research

Eosinophilic Granulomatosis with Polyangiitis (EGPA)

Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing.  The graphs below reflect the scores/ratings of patients with eosinophilic granulomatosis with polyangiitis (EGPA) compared to the Network as a whole.  Here is what we learned about flaresfatiguepainsymptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:

    • Compared to patients with other forms of vasculitis, patients with EGPA reported the following:
      • more flares
      • similar scores for fatigue
      • higher scores/ratings for their symptoms of vasculitis over the past 28 days (this is a change from the scores we saw at the July 2024 check-in where the rates among patients with EGPA and the VPPRN community were similar)
      • similar scores for pain
      • a similar percentage of patients with EGPA reported their vasculitis as currently active.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.

  • Not a member? Click JOIN THE VPPRN button below.
  • Already a VPPRN Member? Use the LOGIN button to access your account.

FLARES and VASCULITIS

Flare Reporting:  At the January 2025 check-in, 34% of patients with EGPA reported a flare in the past 6 months. This is higher than the 24% in the VPPRN community who reported a flare within the same timeframe.

Patients with EGPA

Entire VPPRN Community

FATIGUE and VASCULITIS

Fatigue: At the January 2025 check-in, 16% of patients with EGPA reported no fatigue on average over the past 7 days.  This is similar to the percentage reported in the VPPRN community (14%).

Patients with EGPA

Entire VPPRN Community

SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: At the January 2025 check-in, 15% of patients with EGPA reported no symptoms of vasculitis over the past 28 days. This is less than the 23% who reported no symptoms from the VPPRN community.

Patients with EGPA

Entire VPPRN Community

PAIN and VASCULITIS

Pain: 78% of patients with EGPA reported no to moderate pain, on average, at the January 2025 check-in (scores 0-5). This is similar to the 80% reported in the Network within the same range and timeframe.

Patients with EGPA

Entire VPPRN Community

MEMBERS' CURRENT STATE OF VASCULITIS

Members’ Current State of Vasculitis: At the January 2025 check-in, 25% of patients with EGPA reported their vasculitis as active. This is similar to the 23% reported in the VPPRN community.

Patients with EGPA

Entire VPPRN Community