VPPRN Patient-Powered Research
Eosinophilic Granulomatosis with Polyangiitis (EGPA)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with eosinophilic granulomatosis with polyangiitis (EGPA) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:
- Compared to patients with other forms of vasculitis, patients with EGPA reported the following:
- more flares
- similar scores for fatigue
- higher scores/ratings for their symptoms of vasculitis over the past 28 days (this is a change from the scores we saw at the July 2024 check-in where the rates among patients with EGPA and the VPPRN community were similar)
- similar scores for pain
- a similar percentage of patients with EGPA reported their vasculitis as currently active.
- Compared to patients with other forms of vasculitis, patients with EGPA reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
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FLARES and VASCULITIS
Flare Reporting: At the January 2025 check-in, 34% of patients with EGPA reported a flare in the past 6 months. This is higher than the 24% in the VPPRN community who reported a flare within the same timeframe.
Patients with EGPA
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: At the January 2025 check-in, 16% of patients with EGPA reported no fatigue on average over the past 7 days. This is similar to the percentage reported in the VPPRN community (14%).
Patients with EGPA
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: At the January 2025 check-in, 15% of patients with EGPA reported no symptoms of vasculitis over the past 28 days. This is less than the 23% who reported no symptoms from the VPPRN community.
Patients with EGPA
Entire VPPRN Community
PAIN and VASCULITIS
Pain: 78% of patients with EGPA reported no to moderate pain, on average, at the January 2025 check-in (scores 0-5). This is similar to the 80% reported in the Network within the same range and timeframe.
Patients with EGPA
Entire VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: At the January 2025 check-in, 25% of patients with EGPA reported their vasculitis as active. This is similar to the 23% reported in the VPPRN community.
Patients with EGPA
Entire VPPRN Community
