VPPRN Patient-Powered Research
Cryoglobulinemic Vasculitis (Cryoglobulinemia)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with cryoglobulinemic vasculitis (cryoglobulinemia) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:
- Compared to patients with other forms of vasculitis, patients with cryoglobulinemic vasculitis reported the following:
- similar percentage of flares reported (this is a change from the scores we saw at the July 2024 check-in where the rates were higher for patients with cryoglobulinemic vasculitis)
- higher scores for fatigue
- higher scores/ratings for their symptoms of vasculitis over the past 28 days
- higher scores for pain
- a higher percentage of patients with cryoglobulinemic vasculitis reported their vasculitis as active.
- Compared to patients with other forms of vasculitis, patients with cryoglobulinemic vasculitis reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
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FLARES and VASCULITIS
Flare Reporting: At the January 2025 check-in, 26% of patients with cryoglobulinemic vasculitis reported a flare in the past 6 months. This is similar to the percentage who reported a flare in the VPPRN community (24%).
Patients with
cryoglobulinemic vasculitis
Entire
VPPRN Community
FATIGUE and VASCULITIS
Fatigue: At the January 2025 check-in, 48% of patients with cryoglobulinemic vasculitis reported “quite a bit” or “very much” fatigue on average. This is higher than the 34% reported in the VPPRN community.
Patients with
cryoglobulinemic vasculitis
Entire
VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: Patients with cryoglobulinemic vasculitis scored their symptoms of vasculitis higher over the past 28 days at the January 2025 check-in. 11% of patients with cryoglobulinemic vasculitis reported no symptoms of vasculitis compared to 23% in the VPPRN community.
Patients with
cryoglobulinemic vasculitis
Entire
VPPRN Community
PAIN and VASCULITIS
Pain: Patients with cryoglobulinemic vasculitis reported more pain on average at the January 2025 check-in. 13% of patients with cryoglobulinemic vasculitis reported no pain. This is less than the 26% in the VPPRN community.
Patients with
cryoglobulinemic vasculitis
Entire
VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: At the January 2025 check-in, 32% of patients with cryoglobulinemic vasculitis reported their vasculitis as active. This is higher than the 23% reported in the Network.
Patients with
cryoglobulinemic vasculitis
Entire
VPPRN Community
