VPPRN Patient-Powered Research

Behçet's Disease (BD)

Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing.  The graphs below reflect the scores/ratings of patients with Behçet’s Disease (BD) compared to the Network as a whole.  Here is what we learned about flaresfatiguepainsymptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:

    • Compared to patients with other forms of vasculitis, patients with BD reported the following:
      • more flares
      • higher scores for fatigue
      • higher scores for their symptoms of vasculitis over the past 28 days
      • higher scores for pain
      • a larger percentage of patients with BD reported their vasculitis as active.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider. 

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FLARES and VASCULITIS

Flare Reporting: At the January 2025 check-in, patients with BD reported more flares in the past 6 months (64%) compared to 24% in the VPPRN community. This is a trend we have seen for the past 5 VPPRN check-in timepoints (January + July 2023, January + July 2024, and January 2025).

Patients with Behçet’s disease

Entire VPPRN Community

FATIGUE and VASCULITIS

Fatigue:  At the January 2025 check-in, 58% of patients with BD reported “quite a bit” or “very much” fatigue on average in the past 7 days. This is higher than the 34% who reported these same scores in the VPPRN community.

Patients with Behçet’s disease

Entire VPPRN Community

SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: Patients with BD scored their symptoms of vasculitis higher over the past 28 days. 10% of patients with BD reported no symptoms of vasculitis compared to 23% in the VPPRN community.

Patients with Behçet’s disease

Entire VPPRN Community

PAIN and VASCULITIS

Pain: At the January 2025 check-in, patients with BD reported more pain on average in the past 6 months. 13% of patients with BD reported no pain (score = 0; no pain). This is less than the 26% in the VPPRN community who reported a score of 0.

Patients with Behçet’s disease

Entire VPPRN Community

MEMBERS' CURRENT STATE OF VASCULITIS

Members’ Current State of Vasculitis: 64% of patients with BD reported their vasculitis as active at the January 2025 check-in. This is higher than the 23% reported in the Network. 

Patients with Behçet’s disease

Entire VPPRN Community