VPPRN Patient-Powered Research
Behçet's Disease (BD)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with Behçet’s Disease (BD) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:
- Compared to patients with other forms of vasculitis, patients with BD reported the following:
- more flares
- higher scores for fatigue
- higher scores for their symptoms of vasculitis over the past 28 days
- higher scores for pain
- a larger percentage of patients with BD reported their vasculitis as active.
- Compared to patients with other forms of vasculitis, patients with BD reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.

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FLARES and VASCULITIS
Flare Reporting: At the January 2025 check-in, patients with BD reported more flares in the past 6 months (64%) compared to 24% in the VPPRN community. This is a trend we have seen for the past 5 VPPRN check-in timepoints (January + July 2023, January + July 2024, and January 2025).
PAIN and VASCULITIS
Pain: At the January 2025 check-in, patients with BD reported more pain on average in the past 6 months. 13% of patients with BD reported no pain (score = 0; no pain). This is less than the 26% in the VPPRN community who reported a score of 0.