VPPRN Patient-Powered Research
Behçet's Disease (BD)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with Behçet’s Disease (BD) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the July 2024 check-in:
- Compared to patients with other forms of vasculitis, patients with BD reported the following:
- more flares
- higher scores for fatigue
- higher scores for their symptoms of vasculitis over the past 28 days
- higher scores for pain
- a larger percentage of patients with BD reported their vasculitis as active.
- Compared to patients with other forms of vasculitis, patients with BD reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
FLARES and VASCULITIS
Flare Reporting: At the July 2024 check-in, patients with BD reported more flares in the past 6 months (60%) compared to 24% in the VPPRN community. This is a trend we have seen for the past 4 VPPRN check-in timepoints (January 2023, July 2023, January 2024, and July 2024).