Fundraise and Promote on Social Media
Fundraise During #VAM26
Peer-2-Peer fundraising is an easy way to raise awareness and make an impact during Vasculitis Awareness Month (#VAM26) and to celebrate our 40th anniversary.
You can easily share your fundraiser with your friends, who can then donate and share with their friends.
Make Your Own VAM Posts
Check out our downloadable graphics!
Sample Instagram Graphics
Help raise awareness. Share our posts. Make an impact.
Nov 6
For 40 years, the VF has been here for the vasculitis community. 💜 From expert-led webinars and support groups to patient-powered research and our new Find a Doctor directory, we’re working to make sure no one faces vasculitis alone.
Explore everything we offer at the link in bio
Nov 5
Newly diagnosed and wondering what comes next? 🤔 You don’t have to figure it out alone.
The VF offers free educational resources, online support groups, webinars, an online doctor directory, and more to help you navigate your vasculitis journey.
Learn more at the link in bio
Nov 3
Living with vasculitis comes with a lot of questions. We’ve got three upcoming webinars to help you find answers. 💙
Newly Diagnosed with PMR: What’s Next? (Wednesday, November 4 at 11:00AM CT)
Understanding Biologics: For EGPA, Severe Asthma, and COPD (Tuesday, November 17 at 11:00AM CT)
Vasculitis Virtual Community Forum: Patient Perspectives (Friday, November 20 at 12:00 PM ET)
Steroids and Vasculitis: Benefits, Side Effects, and Management (Thursday, December 10 at 11:00AM CT)
Register for free at https://events.vasculitisfoundation.org
Nov 2
#GivingTuesday is coming December 1!
One day dedicated to generosity. So many ways to make a difference.
From supporting research to helping patients find connection and resources, your generosity helps move our mission forward.
📅 Save the date and swipe through to learn why GivingTuesday matters to our community!
Nov 1
40 years ago, a vasculitis diagnosis meant facing uncertainty with few answers and limited support.
Look how far we’ve come together.
Thanks to supporters like YOU, we’ve:
🔬 Funded 80+ research studies advancing better treatments
🩺 Trained the next generation of vasculitis specialists
📚 Helped develop the American College of Rheumatology/VF Treatment Guidelines
💙 Built a global community connecting patients and families with trusted education and support
We’ve accomplished so much in 40 years. But there’s still more to do.
Help us shape the next 40 years. See how your gift can make a difference at the link in bio.
Special thank you to our annual appeal & awareness sponsor, @amgenbiotech!
Oct 31
We`re wishing everyone a Happy Halloween!
Whether you’re dressing up, handing out candy, or enjoying a cozy night in, we hope your day is filled with light-hearted fun and moments of joy.
Stay safe and take good care of yourself! You deserve all the treats! 🍬🎃
Oct 30
Your voice can help shape the future of vasculitis care.
Join us for the Vasculitis Community Forum: Patient Perspectives, a national virtual listening session where patients, caregivers, and clinicians share lived experiences with those who make treatment decisions, including regulators at the FDA.
📅 Friday, November 20, 2026
🕛 12:00 to 2:00 PM ET
💻 Virtual
The focus: the urgent need for safer, more effective alternatives to steroids, and the real-world impact of current therapies.
Register at the link in our bio.
Oct 29
Vasculitis can feel isolating, especially when you’re the only person you know who has it. 💜
Our support groups are a place to connect with people who truly understand, from the first-diagnosis questions to the tired days and the small wins.
Register for free at the link in bio
Oct 28
Whether you were diagnosed yesterday or years ago, the Vasculitis Foundation is here for you. 💜
Support groups. Education. Community. Resources.
You don’t have to figure this out alone.
Learn more at the link in our bio.
Oct 26
And the Dundie Award for “Not Understanding Chronic Illness” goes to… everyone who said it was just stress.
It can be frustrating, isolating, and invalidating when symptoms are dismissed instead of investigated. Many people living with vasculitis go through this kind of delayed recognition before finally getting answers.
If this resonates with you, you’re not alone and you deserve to be heard.
Learn more at the link in bio
Oct 25
Movement doesn`t have to mean a full workout. 💛
Parking a little farther from the door. Taking the stairs when you`re able. Stretching while you watch TV. These small moments of mindful movement can add up, and for many in our vasculitis community, gentle movement can help support joint mobility, energy levels, and even mood.
Of course, always listen to your body and move at your own pace. Every step counts, even the small ones.
A huge thank you to Jim Walters for joining us at this year`s symposium!
Oct 24
For years, Tasha’s symptoms seemed unrelated. It took the right specialist to connect the pieces. 💜
Read the full blog at the link in bio
Oct 22
Living with vasculitis often means living with medications, and with the side effects that can come along with them.
Some days it’s a routine you’ve mastered. Other days it’s a new challenge you didn’t see coming. Either way, the people who understand it best are the ones walking this road too.
Our online Vasculitis Voices chat community on Inspire is the perfect place to ask questions and dive deep into the conversations that matter to you with people who get it. Plus, it’s free to join!
Join the conversation at the link in bio
Oct 20
Your kidneys don`t always announce when something`s wrong
A few things that can point to kidney involvement: blood in your urine, foamy or bubbly urine, swelling in the legs or around the eyes, high blood pressure, fatigue, and a noticeable decrease in urine output.
This isn`t a diagnosis tool, just something to keep on your radar. If any of these sound familiar, bring them up with your care team.
Oct 19
Living with vasculitis is a journey, and some days are harder than others. Your strength and energy may come and go, but every day holds victories... big or small.
Share you story at the link in bio
Oct 17
It took nine months, three ENTs, and a trip to the ICU to name what was happening to Melody. 💜
Read the full story at the link in bio
Oct 15
A common question from parents: is it safe for my child to get vaccinated while on medication for vasculitis?
Short answer: most vaccines are still safe and recommended, even though these medications can raise infection risk.
✅ Most childhood vaccines are safe for kids on immunosuppressive medications
✅ Live vaccines (MMR, chickenpox) are usually held off during treatment
✅ Annual flu vaccines are recommended
✅ Timing may need adjusting around infusions
Always loop in both your child`s primary care doctor and rheumatologist to make the right call for your child.
Get guidance and resources at the link in bio
Oct 14
Receiving a vasculitis diagnosis can be a long and challenging journey. Because vasculitis is rare and symptoms can vary widely, recognizing the signs and reaching the right diagnosis can take time.
Through our V-RED Program, we recognize the professionals who help identify vasculitis, provide a diagnosis, and connect patients with care and treatment.
If a doctor, nurse, or other health care professional played an important role in your vasculitis diagnosis, we invite you to nominate them for recognition.
Nominations are open through Friday, Oct 16.
Link in bio
Oct 14
Fall 🤝 TV Marathons
What`s your comfort show or movie?
Oct 12
Think vasculitis only happens later in life? Think again.
This disease can impact anyone, at any age. Awareness and early recognition are key to getting the right care when it’s needed most. 💙