Caleb Lounsbery

Patient Advocate

Living with Granulomatosis with Polyangiitis (GPA/Wegener’s)

Caleb was diagnosed with granulomatosis with polyangiitis in July 2024 at the age of 26. He works in the medical devices industry and has a passion for improving patient outcomes through both his professional and advocacy work.

In March 2025, Caleb attended the Vasculitis Foundation conference in Nashville, Tennessee, where he joined a special gathering of young adults living with vasculitis. In October 2025, Caleb attended the Vasculitis Foundation conference in Charleston, South Carolina where he served as a keynote speaker. He also contributed to the development of a vasculitis white paper in collaboration with Links2Equity, focusing on elevating patient voices in research and policy.

He is passionate about empowering patients to be strong self-advocates and ensuring that young adults with vasculitis have a seat at the table in conversations about care and support.