Blog
Important Information for the Vasculitis Community Regarding TAVNEOS® (avacopan)
- official statement
- Uncategorized
Official Statement February 4, 2026 Important Information for the Vasculitis Community Regarding TAVNEOS® (avacopan) The Vasculitis Foundation (VF) is aware of recent announcements regarding TAVNEOS (avacopan), a medication approved for the treatment of adults with severe active ANCA-associated vasculitis, including granulomatosis with polyangiitis (GPA) and microscopic polyangiitis (MPA). On January 16, 2026, the U.S. Food […]
Not Feeding the Monster: Melanie Constuble’s Life with Vasculitis
- microscopic polyangiitis, MPA
- Microscopic Polyangiitis
Not Feeding the Monster: Melanie Constuble’s Life with Vasculitis When Melanie was diagnosed with microscopic polyangiitis (MPA) in the summer of 2020, she was a year into a master’s program, living and working in the Annapolis, Maryland area, and planning the next phase of her federal career. Vasculitis was not on her radar—until a routine […]
Listening to the Signs: Carmen’s Journey With Wegener’s Granulomatosis (GPA)
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Listening to the Signs: Carmen’s Journey With Wegener’s Granulomatosis The Signs I Learned to Live Around For years, my body had been giving me signs that something wasn’t right. The symptoms were subtle at first, coming and going in ways that were easy to dismiss. Fatigue. Aches. Illnesses that lingered longer than they should have. […]
Heidi Lanzelin’s Story: Navigating Life with Vasculitis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Heidi Lanzelin’s Story: Navigating Life with Vasculitis When Heidi talks about her life, she does so with clarity, humor, and scientific precision. A 58-year-old scientist from Rhode Island, she describes herself as analytical, introverted, and curious. “I love to read, look at rocks, ski, play snare drum, and sail,” she said. Married and without children, […]
Living Life on a New Rhythm: Japneet Randhawa’s Journey with Vasculitis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Living Life on a New Rhythm: Japneet Randhawa’s Journey with Vasculitis At 31, Japneet is a passionate dentist, traveler, and fiercely loyal friend living in New Haven, Connecticut. She describes herself as “happy, loud, opinionated, artistic, nerdy, stubborn, vocal, and social.” However, like others who have a chronic illness, Japneet’s life changed dramatically when she […]
Rachelle’s Journey: From Breathing Struggles to a Life-Changing Diagnosis
- GPA
- Granulomatosis with Polyangiitis
Rachelle’s Journey: From Breathing Struggles to a Life-Changing Diagnosis In 2019, Rachelle, a 32-year-old teacher in Edmonton, Alberta, began experiencing troubling and persistent breathing difficulties. It wasn’t fatigue; her breathing was noticeably strained, a fact her own mother and colleagues had pointed out. Initially, she dismissed it as the rigors of teaching kindergarten, but the […]