Blog
Finding Her New Normal: Kathleen Weller’s Journey With GPA
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Finding Her New Normal: Kathleen Weller’s Journey With GPA Kathleen lives in Jacksonville Beach, Florida, with her husband, Sam. She’s a mother to one son and a grandmother to three grandchildren. Her Facebook page describes her simply: “A Solitary Life, Created for a Journey, Finding My Way Home.” That description captures something essential about Kathleen’s […]
A Body That Gave Her Almost No Warning: Lori Battelle’s Journey Through Anti-GBM Disease
- Anti-GBM
- Anti-GBM Disease
A Body That Gave Her Almost No Warning: Lori Battelle’s Journey Through Anti-GBM Disease In March 2008, Lori was 39 years old and stationed in Okinawa, Japan, where she worked as a Department of Defense federal civilian employee. She was healthy, active, driven and accustomed to a busy, high-powered life. Then, while on vacation in […]
Gary Naccarato: Rebuilding a Life After Neuro-Behçet’s Disease
- Behçet's
- Behçet’s Syndrome
Gary Naccarato: Rebuilding a Life After Neuro-Behçet’s Disease When life changed for Gary, a 57-year-old former Emmy Award-winning television producer in Los Angeles, it did so without warning. About two decades ago, he found himself fighting for his life against Neuro-Behçet’s disease, a rare form of vasculitis affecting the central nervous system. The illness changed […]
“Stay With the Light”: Sebastian Guzman’s Journey Through GPA and Life Beyond Diagnosis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
“Stay With the Light”: Sebastian Guzman’s Journey Through GPA and Life Beyond Diagnosis Twenty-seven-year-old Sebastian lives in Rhode Island and never imagined that a rare autoimmune disease would derail the future he had spent years building. A Christian, husband, writer, former EMT, and neuroscience student, Sebastian was accustomed to moving through life at full speed. […]
A Decade to Diagnosis: Megan Madison’s Journey with Vasculitis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
A Decade to Diagnosis: Megan Madison’s Journey with Vasculitis Megan, a 32-year-old native of Gilbert, Arizona, has always been deeply family-oriented and adventurous. Whether exploring her home state or convincing her sister and cousin to sign up for spontaneous 5Ks, she approaches life with energy and humor. “They often agree to my shenanigans before fully […]
Swimming Through Uncertainty: Caitlyn Friebe’s Journey to GPA
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Swimming Through Uncertainty: Caitlyn Friebe’s Journey to GPA For most of her life, 20-year-old Caitlyn has measured time in laps, splits, and swim seasons. A Division I collegiate swimmer from Springfield, Missouri, her world has long revolved around the discipline and demands of the pool. From a young age, she learned how to show up […]