Blog
15 Years to Be Believed: Marissa Furey’s Fight for a Diagnosis of Behçet’s Disease
- Behçet's, Behçet’s Syndrome
- Behçet’s Syndrome
15 Years to Be Believed: Marissa Furey’s Fight for a Diagnosis of Behçet’s Disease Marissa lives in West Greenwich, Rhode Island, where daily life now feels both hard-won and deeply appreciated—something she once could not take for granted. At 39, she reflected on a journey that has reshaped nearly every part of her life—from her […]
The Importance of Positivity: Stacy Palmer’s Journey of Strength Through Vasculitis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
The Importance of Positivity: Stacy Palmer’s Journey of Strength Through Vasculitis Stacy’s story is one of resilience, advocacy, and determination in the face of a life-changing diagnosis. Living in Gainesville, Virginia, 56-year-old Stacy describes herself as an advocate, mother, and wife. Married for 30 years to her husband, Don, and having raised two children together, […]
Holding on to Sight and Hope: Cheri Lincoln’s Life with GPA
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Holding on to Sight and Hope: Cheri Lincoln’s Life with GPA At 63 years old, Cheri lives in Central Minnesota with her husband, Jeff. A mother of one son and now retired, she never imagined her later years would include unexpected health challenges. Diagnosed in February/March 2018 with ANCA-positive granulomatosis with polyangiitis (GPA), her journey […]
A Second Chance at Life: Belinda Patlidanovski’s Vasculitis Journey
- egpa
- Eosinophilic Granulomatosis with Polyangiitis
A Second Chance at Life: Belinda Patlidanovski’s Vasculitis Journey Belinda is from Sydney, Australia, and describes herself as a positive person who loves to travel, have fun, and be “the calm to anyone’s storm—except my own (ha-ha).” Just a few years ago, her life looked very different. What began as sinus issues and asthma would […]
Healing Is Not a Straight Line: Vlasta’s Journey Through Reconstruction and Recovery
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Healing Is Not a Straight Line: Vlasta Racki’s Journey Through Reconstruction and Recovery Since her story was first published (Blooming Through Resilience: A Story of Life with Vasculitis – Vasculitis Foundation), Vlasta says the biggest change hasn’t only been physical—it’s been how she understands healing. Early in her diagnosis, she often felt like she was […]
Nancy Kilbourn’s Story: Finding Answers and Living with Vasculitis
- microscopic polyangiitis, MPA
- Microscopic Polyangiitis
Nancy Kilbourn’s Story: Finding Answers and Living with Vasculitis At 73 years old, Nancy was so exhausted that walking across a room felt overwhelming. She had begun using a cane, was driving less, and slowly withdrawing from activities she once loved. For years she had been searching for answers. Doctor visits and tests kept coming […]