Blog
Kimberly Fisher Spreads Awareness About Behcet’s as a Nurse and a Patient
- Advocate, Education, Misdiagnosis, Nurse, Vasculitis Awareness Month
- Behçet’s Syndrome
Kimberly Fisher Spreads Awareness About Behcets Disease as a Nurse and a Patient Kimberly Fisher knows what it’s like to be told her disease is all in her head, to be thought of as someone who is just seeking pain medications and to be misdiagnosed for years. She was diagnosed with Behcet’s disease, a rare […]
Vasculitis and Motherhood: A Story of Hope and Resilience
- Mother's Day, Pregnancy, Story, Vasculitis Awareness Month, VPPRN
- Granulomatosis with Polyangiitis
Vasculitis and Motherhood: A Story of Hope and Resilience Avery Owens’ journey to motherhood is an inspiring testament to the power of perseverance and the importance of seeking expert medical care. Avery, 29, was 15 when she first developed symptoms of vasculitis. It took nearly five years to receive a diagnosis with granulomatosis with polyangiitis […]
Young Adults Connect at Nashville Conference, Offer Hope to One Another
- Conferences, Nashville, Young Adult Scholarships
- Uncategorized
Young Adults Connect at Nashville Conference, Offer Hope to One Another Young adults between 18 and 30 came from all across the United States and from as far away as Italy and Ireland to attend the VF’s Vasculitis Conference in Nashville, Tennessee on Saturday, March 22. They came to learn more about vasculitis and to […]
The Importance of Early Diagnosis: An Experience with GPA
- Creativity, Early Diagnosis, Support
- Granulomatosis with Polyangiitis
The Importance of Early Diagnosis: An Experience with GPA Ashley Fry’s illness began with something as common as sore gums. But what started as simple discomfort soon escalated into bleeding gums and oral lesions that rounds of antibiotics, nasal sprays and steam therapy couldn’t fix.“Brushing my teeth was like a scene from a body horror […]
Patients Needed for International Childhood Takayasu Study
- Childhood, Rare Disease, Research Study
- Takayasu Arteritis
Patients Needed for International Childhood Takayasu Study My name is Katrina Bargender, and I was diagnosed with Takayasu arteritis when I was 14 years old. My first symptom was vision loss in my left eye, which unfortunately was never restored. I was admitted to my local children’s hospital with severe anemia, high blood pressure, elevated […]
His Grandmother’s Kidney Donation Helped Save Nathan’s Life
- National Autoimmune Disease Awareness Month, National Kidney Month, Story, Teenager
- Microscopic Polyangiitis
His Grandmother’s Kidney Donation Helped Save His Life Nathan Rose, 17, plans to spend his spring break with his grandmother in Arkansas. The high schooler and his grandmother have always been close, but their bond became even tighter nearly six months ago when she made it possible for him to get a new kidney. She […]
