Blog
Through Loss, Motherhood, and Illness: Sahala Sufair’s Journey to Hope
- Takayasu Arteritis
- Takayasu Arteritis
Through Loss, Motherhood, and Illness: Sahala Sufair’s Journey to Hope Thirty-year-old Sahala never imagined that a small pain in her neck would become the beginning of a life-changing journey. Originally from Kerala, India, and now living in Doha, Qatar, with her husband and young daughter, her story is one of survival, resilience, heartbreak, and hope […]
When Darkness Came, Strength Was Born: Janet DeLuca’s Vasculitis Story
- Behçet's, Behçet’s Syndrome
- Behçet’s Syndrome
When Darkness Came, Strength Was Born: Janet DeLuca’s Vasculitis Story At 31 years old, Janet’s life changed forever. After more than a decade of searching for answers—years filled with unexplained symptoms, hospitalizations, inconclusive tests, uncertainty, and fear—she was finally diagnosed with Behçet’s disease, a rare and severe form of vasculitis that causes inflammation in blood […]
Finding Her Voice Again: Patricia McKenzie’s Journey with GPA
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Finding Strength in the Unknown: Esmeralda Carrera’s Journey with Vasculitis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
Finding Strength in the Unknown: Esmeralda Carrera’s Journey with Vasculitis At just 24 years old, Esmeralda is balancing life as a wife and mother of three—one boy and twin girls—while navigating a life-changing diagnosis. Living in Dallas, Texas, she described herself simply as “a very friendly, empathetic, and clumsy person,” a self-portrait that feels both […]
A Second Chance at Life: Ezra Alvarez’s Journey Through Vasculitis
- GPA, Granulomatosis with polyangiitis
- Granulomatosis with Polyangiitis
A Second Chance at Life: Ezra Alvarez’s Journey Through Vasculitis At 32 years old, Ezra lives in Los Angeles, California, navigating life with resilience, purpose, and a renewed sense of meaning after a life-altering diagnosis. Described by others as “very thoughtful, caring, an advocate for others, and an inspiration,” Ezra’s journey with granulomatosis with polyangiitis […]
15 Years to Be Believed: Marissa Furey’s Fight for a Diagnosis of Behçet’s Disease
- Behçet's, Behçet’s Syndrome
- Behçet’s Syndrome
15 Years to Be Believed: Marissa Furey’s Fight for a Diagnosis of Behçet’s Disease Marissa lives in West Greenwich, Rhode Island, where daily life now feels both hard-won and deeply appreciated—something she once could not take for granted. At 39, she reflected on a journey that has reshaped nearly every part of her life—from her […]