“After I was diagnosed with EGPA in 2019, I experienced a deep sense of uncertainty. It wasn’t clear if I would recover the full use of my right leg or be strong enough to return to work. One important source of hope was the Vasculitis Foundation, which then led me right to the Vasculitis Patient-Powered Research Network (VPPRN). I felt empowered by the fact that I could contribute the data of my vasculitis case into a worldwide registry. Vasculitis research will be more effective when we all add our data.”