Jenn Gordon
VPPRN EGPA Patient-Partner and Patient Champion
Why do I participate in research?
“When I was diagnosed with EGPA in 2014, I tried to absorb everything I could about EGPA and vasculitis. Even though I have a background in science, I had never heard of vasculitis, so I had A LOT to learn.
As I combed through information online, the value of the Vasculitis Foundation was immediately clear to me. The VF plays a central role in providing a trusted source of knowledge, partnering with a network of clinician experts, and supporting patients and their caregivers. I knew I wanted to be a part of this community and do everything I can to support the VF.
The VPPRN, in particular, takes the power of the VF to the next level by providing a unique platform for conducting research studies across all forms of vasculitis. Participating in the VPPRN gives me an incredible opportunity to put my skills as a biomedical researcher to work. Providing the patient perspective will help guide research in vasculitis toward areas that are a priority for patients and their families.”
-Jenn Gordon
BETTER STUDIES | BETTER ANSWERS | BECAUSE OF YOU
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