Amy and Ben Bolton
VPPRN GPA Patient-Partners and Patient Champions
Why do we participate in research?
“In 2021, my then 10-year-old son Ben started experiencing joint pain and feeling unwell. Lab results indicated that Ben was in kidney failure. He started dialysis and was soon diagnosed with ANCA Vasculitis (GPA). In May of 2022 Ben had a successful kidney transplant. Ben continues to be a typical kid that is monitored closely by an amazing team of medical professionals.
I am a mom of two teenagers. I have also been a public-school counselor for 23 years. I decided to become a patient research partner when I learned about my son’s rare disease. I was thrilled to discover the VPPRN and felt a calling to support research. We all belong to this unique and small community. I believe patients and their loved ones are the experts of this disease. Working with medical professionals and sharing our stories is the most important thing we can do to support research and find a cure for vasculitis.”
-Amy Bolton
BETTER STUDIES | BETTER ANSWERS | BECAUSE OF YOU
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