VPPRN Global Ambassadors and Collaborators
VPPRN Global Ambassadors and International Collaborators
The Vasculitis Patient-Powered Research Network (VPPRN) is proud to collaborate with our global partners to advance research in vasculitis around the world:
- Australia and New Zealand: Australia and New Zealand Vasculitis Society (ANZVASC)
- New Zealand: ANCA Vasculitis New Zealand
- Ireland: Vasculitis Ireland Awareness (VIA)
- United Kingdom: Polymyalgia Rheumatica & Giant Cell Arteritis UK (PMRGCAuk)
With our aligned missions and combined efforts, we are working tirelessly to improve patient outcomes and improve the quality of life for people living with vasculitis through the advancement of research.
Highlighted below are each of our global partners. We strongly encourage you to visit each organization’s websites to learn more about what countries are doing to push vasculitis research forward.
Australia and New Zealand
Australia and New Zealand Vasculitis Society (ANZVASC)
Promoting excellent health outcomes for people with vasculitis living in Australia and New Zealand.
ANZVASC is a charitable organisation built by physicians, scientists, and communities that focuses on research, education, and clinical practices in vasculitis.
Advocating for excellence in diagnosis and management of vasculitis, the Society supports and educates healthcare practitioners and the community to provide the best possible management for vasculitis patients through education and research.
New Zealand
ANCA Vasculitis New Zealand
ANCA Vasculitis NZ is a support group that exists to help those who have ANCA vasculitis, along with their family, friends and caregivers.
led by patients, the group’s aim is to provide helpful information to understand and manage this condition and raise awareness of new treatments for this rare autoimmune disease.
The purpose of the Society is to provide Support, Friendship, Education, Awareness, Advocacy, Lobbying, Prevention, Research and Assistance with Health Care for people, their families and communities with ANCA Vasculitis.
IN CASE YOU MISSED IT
The ANCA Vasculitis NZ group hosted a special session featuring Dr. Peter A. Merkel and Dr. Jenn Gordon, Co-Principal Investigators of the Vasculitis Patient-Powered Research Network (VPPRN) on 8/1/2026.
Click the below to watch the recording from this special session.
Ireland
Vasculitis Ireland Awareness (VIA)
Vasculitis Ireland Awareness (VIA) is a support group set up for patients of all the Vasculitis diseases, their carers and interested Healthcare Professionals in Ireland.
The aims of the VIA are:
- To support those affected by Vasculitis
- Raise awareness of these rare diseases
- Provide current information on research and treatments available
- Improve services for those affected by Vasculitis
- Assist in research to help improve knowledge of Vasculitis
United Kingdom
Polymyalgia Rheumatica & Giant Cell Arteritis UK (PMRGCAuk)
Offering support, raising awareness and promoting research for those affected by polymyalgia rheumatica (PMR) and giant cell arteritis (GCA).
PMRGCAuk vision is a future where everyone affected by PMR or GCA receives fast, effective treatment and the best possible quality of life.
PMRGCAuk mission is to inform, support and connect people with PMR or GCA to improve their quality of life. To facilitate developments in diagnosis, treatment and research. To be the ‘go to’ destination for information and patient representation, as specialist on the PMR/GCA patient experience.
VPPRN GLOBAL PARTNERS
