VPPRN Patient-Powered Research
IgA Vasculitis (Henoch-Schönlein)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with IgA vasculitis (Henoch-Schönlein) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2024 check-in:
- Compared to patients with other forms of vasculitis, patients with IgA vasculitis reported the following:
- more flares
- similar scores for fatigue
- similar scores/ratings for their symptoms of vasculitis over the past 28 days
- similar scores for pain
- a larger percentage of patients with IgA vasculitis reported their vasculitis as active.
- Compared to patients with other forms of vasculitis, patients with IgA vasculitis reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
FLARES and VASCULITIS
Flare Reporting: At the January 2024 check-in, patients with IgA vasculitis reported more flares in the past 6 months (38%) compared to 25% in the VPPRN community.
Patients with IgA vasculitis
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: At the January 2024 check-in, 15% of patients with IgA vasculitis reported no fatigue, on average. This is similar to the 12% reported in the VPPRN community.
Patients with IgA vasculitis
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: At the January 2024 check-in, 21% of patients with IgA vasculitis reported no symptoms of vasculitis over the past 28 days. This is similar to the 24% reported in the VPPRN community.
Patients with IgA vasculitis
Entire VPPRN Community
PAIN and VASCULITIS
Pain: At the January 2024 check-in, 30% of patients with IgA vasculitis reported moderate to severe pain (scores 5-10), on average. This is similar to the 27% reported in the VPPRN community.
Patients with IgA vasculitis
Entire VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: At the January 2024 check-in, a larger percentage of patients with IgA vasculitis reported their vasculitis as active. 38% of patients with IgA vasculitis reported their vasculitis as active. This is higher than the 25% in the Network.
Patients with IgA vasculitis
Entire VPPRN Community
