VPPRN Patient-Powered Research
Granulomatosis with Polyangiitis (GPA)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with granulomatosis with polyangiitis (GPA) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2024 check-in:
- Compared to patients with other forms of vasculitis, patients with GPA reported the following:
- less reported flares
- similar scores for fatigue
- similar scores/ratings for their symptoms of vasculitis over the past 28 days
- similar scores for pain
- a smaller percentage of patients with GPA reported their vasculitis as currently active.
- Compared to patients with other forms of vasculitis, patients with GPA reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
FLARES and VASCULITIS
Flare Reporting: At the January 2024 check-in, patients with GPA reported fewer flares in the past 6 months (18%) compared to 25% in the VPPRN community.
Patients with GPA
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: At the January 2024 check-in, 15% of patients with GPA reported no fatigue, on average. This is similar to the 12% reported in the VPPRN community.
Patients with GPA
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: 28% of patients with GPA reported no symptoms of vasculitis at the January 2024 check-in. This is similar to the 24% in the VPPRN community.
Patients with GPA
Entire VPPRN Community
PAIN and VASCULITIS
Pain: At the January 2024 check-in, 84% of patients with GPA reported no to moderate pain (scores 0-5), on average. This is similar to the 81% in the VPPRN community who reported these same scores.
Patients with GPA
Entire VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: At the January 2024 check-in, 16% of patients with GPA reported their vasculitis as active. This is less than the 25% reported in the Network.
Patients with GPA
Entire VPPRN Community
