VPPRN TAK-IMPACT Study
TAK-IMPACT Study
New VPPRN Research Study on Takayasu’s Arteritis – NOW ENROLLING!
We want to know: What does day-to-day life look like for patients with Takayasu’s arteritis?
Currently, there is very little information about what it’s like to live with Takayasu’s arteritis. We don’t fully understand how it affects patients day-to-day, what treatments have been used, or what they feel is most important in managing the condition. Most of the current research focuses on how the disease affects the body, but not on patients’ personal experiences or concerns.
That’s why the VPPRN is collaborating with researchers at the University of Edinburgh on an ongoing study, TAK-IMPACT (Investigating Management, Perspectives and Attitudes towards Care in Takayasu’s Arteritis), and why we’re inviting you to take part.
In this study, we aim to better understand the impact of Takayasu’s arteritis from the perspective of those living with it. With your participation, you may help guide this work to ensure we capture real-world treatment experiences, daily challenges, and what matters most to patients in their care.
How can you participate?
This study is open to adult patients who are members of the VPPRN.
- Already a VPPRN Member?
- Check your email for the study invitation and survey link.
- Not a member yet?
- Click JOIN THE VPPRN button below to sign up.
- Once you complete your registration forms, you’ll receive the link to participate in the TAK-IMPACT study.
Questions? Contact the Study Team
About the TAK-IMPACT Study
Through this study, we aim to understand the impact of Takayasu’s arteritis on personal experiences as it relates to:
- Day-to-day impact
- Impact of treatment
- What is the most important in managing the condition
This study is open only to members of the Vasculitis Patient-Powered Research Network. If you are not yet a member, please join the VPPRN here then come back to join this study.
- Adult patients living with Takayasu’s arteritis (TAK)
- All US and non-US based patients are eligible.
- Participation is completely voluntary and all information you provide will be de-identified.
- We ask that you complete a one-time questionnaire about yourself and your health.
- The questionnaire will take approximately 25 minutes to complete.
- We may contact you regarding your responses to the questions for additional clarification or to address any gaps in data.
- The questionnaire is available online. No travel is required.
There is still much to learn about what it’s like to live with Takayasu’s arteritis, including its impact on daily life, treatment experiences, and what matters most to patients. This study will capture the real-world perspectives of people living with the disease to better understand their needs and priorities. By sharing their experiences, participants can help shape future research and improve care for others with Takayasu’s arteritis.
There may be no direct benefits to you from taking part in this research.
However, your participation will help researchers better understand what it is like to live with Takayasu’s arteritis, including its impact on daily life, treatment experiences, and what matters most to patients. This knowledge may help guide future research and improve care for people living with Takayasu’s arteritis.
Whether or not you take part in a research study is up to you. You can choose not to participate, or you can agree to take part and later change your mind. Your decision will not be held against you.
You can ask all the questions you want before you decide.
This study is open only to members of the Vasculitis Patient-Powered Research Network.
Our research team is here to make participation in this study easy for you.
The study coordinator is available for you to contact if you have any questions or concerns. Contact Christine Yeung from the Study Team at christine.yeung@pennmedicine.upenn.edu with your questions.
The Vasculitis Patient-Powered Research Network (VPPRN) is approved by the University of South Florida IRB Pro00018514.
Click HERE to learn more about our VPPRN Privacy Pledge.
Meet the Study Team
Sarayah Obonyo
TAK-IMPACT Study Co-Patient Research Partner
Bio and blurb to be added
Ramya Mohanakrishnan
TAK-IMPACT Study Co-Patient Research Partner
Bio and blurb to be added
Alexandra Armstrong
TAK-IMPACT Study Co-Principal Investigator
PhD Student at University of Edinburgh
Bio and blurb to be added
Neil Basu, MBChB, FRCP, PhD
TAK-IMPACT Study Co-Principal Investigator
Professor at University of Glasgow
Bio and blurb to be added
Not a Member of the VPPRN?
If you aren’t a member of the Vasculitis Patient-Powered Research Network (VPPRN), we invite you to join today!
We want to understand your individual patient experience. We will learn about individual patient experiences by collecting data you provide. We’ve made it easy for you to contribute this data to make vasculitis research happen now.
Questions? Please contact Christine Yeung, the VPPRN Network Manager at christine.yeung@pennmedicine.upenn.edu.
Interested in Other Research Opportunities?
The goal of the VPPRN research program is to conduct high-quality studies that will improve the care and the health of patients with vasculitis by exploring research questions that matter most to patients and advance medical knowledge about vasculitis.
Learn about current opportunities to participate in research.