Jenifer Waldrop

Executive Director

Rare Disease Diversity Coalition

Jenifer is a visionary leader in rare disease advocacy dedicated to advancing health equity and ensuring every patient’s story helps shape the future of care.

As Executive Director of the Rare Disease Diversity Coalition (RDDC), a program of the Black Women’s Health Imperative, she has led efforts since October 2022 to expand access, representation, and trust in diagnostics, clinical research, and treatment.

Drawing on leadership experience with the American Cancer Society and the private sector, Jenifer builds partnerships among patient communities, industry, and government. Through a human-centered approach, she amplifies underrepresented voices, drives collaboration, and works to create a moree quitable healthcare system for people living with rare diseases.