Katherine Scott

Patient Advocate

Living with Granulomatosis with Polyangiitis (GPA/Wegener’s)

Katherine is a patient advocate living with Granulomatosis with Polyangiitis (GPA) who is passionate about improving support for people with rare diseases.

After managing another autoimmune disease since childhood and navigating a complex path to her GPA diagnosis in 2024, she now uses her lived experience to help others navigate the healthcare system.

Professionally, Katherine has worked in nonprofit healthcare operations and crisis intervention, specializing in suicide prevention and mental health support. She is a strong advocate for integrating mental health care into chronic and rare disease treatment.

In 2024, Katherine and her peers established an informal network for young adults with vasculitis, creating a supportive community for those navigating the unique challenges and life transitions that come with living with a rare disease.