Jennifer Gordon, PhD
Researcher, VPPRN Co-Investigator, Diagnosed with Eosinophilic Granulomatosis with Polyangiitis (EGPA)
Dr. Jennifer Gordon is a driving force in the vasculitis community, advancing research while ensuring patient voices are at the center of discovery. As co-investigator of the Vasculitis Patient-Powered Research Network (VPPRN), she helps lead a global registry of more than 5,000 patients—transforming how research is conducted by directly involving those living with the disease.
Diagnosed with EGPA in 2014, Jenn turned her personal experience into purpose. After finding the Vasculitis Foundation as a trusted source of information and support, she quickly became deeply involved—attending events, connecting with others, and seeking ways to make a difference.
Today, Jenn is a passionate advocate, educator, and leader. She speaks at events across the country and around the world, promotes research participation and self-advocacy, and fosters connection through initiatives like the EGPA Café support group. Her work bridges the gap between patients and researchers—ensuring that scientific progress reflects real lived experiences.
Through her leadership and dedication, Jenn continues to shape the future of vasculitis research and empower others to do the same.