Wellbeing Resources

These resources were selected to support the information and activities in the Navigating Your Vasculitis Journey guidebook and have been pre-screened by a licensed clinical social worker who works with people with chronic illness. 

Resources by guidebook page

Explore Common Blocks

Watch this video of Dr. Kristen Neff talking about this issue which stops folks from being kind to themselves.

https://mindfulnessexercises.com/kristin-neff-overcoming-objections-to-self-compassion-video/

Learn About You

Take a self-compassion assessment. Remember that the information you learn about yourself is one way of acknowledging the present moment with kindness.

https://self-compassion.org/wp-content/uploads/2015/06/Self_Compassion_Scale_for_researchers.pdf

Progressive Muscle Relaxation 

https://www.youtube.com/watch?v=ClqPtWzozXs

Soma Yoga with Molly

Molly is a certified SomaYoga Therapist and Trainer who has vasculitis. She has provided workshops live, virtual workshops and in-person workshops for the Vasculitis Foundation.

Seated Strength

This short video takes you through a series of strength exercises that can be done while seated. Developed by Brandon Hudgins a former long-distance runner with vasculitis who has a Master’s degree in Kinesiology and Exercise Science.

https://youtu.be/AsT1NzReLcs

Dr. Brené Brown discusses Living Into Values on her Podcast Unlocking Us

https://brenebrown.com/podcast/living-into-our-values/

Dr. Steve Hickman guided meditation that leads you to connect with your felt values

https://www.mindful.org/savor-your-values-finding-strength-in-compassion/

Values Card Sort

https://meetingpointcounseling.com/tools/MI-card-sort/

Consider joining a Vasculitis Foundation Support Group to feel seen, heard, and understood in this journey.

Support Groups

The Vasculitis Foundation (VF) offers online support group meetings for people with vasculitis and their families. VF online support meetings are led by a facilitator and a VF staff person.

Conferences

Our one-day, in-person vasculitis conferences feature engaging and informative presentations from medical experts and researchers as well as chances to connect with other people who, like you, get what it is like to live with vasculitis or love someone with vasculitis. 

Living Well Resources

Our Victory Over Vasculitis health, wellness, and self-advocacy resources have been developed by people, like you, who live with vasculitis every day.