VPPRN Patient-Powered Research

Urticarial Vasculitis

Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing.  The graphs below reflect the scores/ratings of patients with urticarial vasculitis compared to the Network as a whole.  Here is what we learned about flaresfatiguepainsymptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:

    • Compared to patients with other forms of vasculitis, patients with urticarial vasculitis reported the following:
      • more flares
      • similar scores for fatigue
      • similar scores for their symptoms of vasculitis over the past 28 days
      • higher scores for pain (this is a change from the July 2024 check-in where the rates among patients with urticarial vasculitis and the VPPRN community were similar)
      • a larger percentage of patients with urticarial vasculitis reported their vasculitis as active.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.  

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FLARES and VASCULITIS

Flare Reporting: At the January 2025 check-in, patients with urticarial vasculitis reported more flares in the past 6 months.  40% of patients with urticarial vasculitis reported a flare compared to 24% in the VPPRN community.

Patients with urticarial vasculitis

Entire VPPRN Community

FATIGUE and VASCULITIS

Fatigue: At the January 2025 check-in, 12% of patients with urticarial vasculitis reported no fatigue, on average. This is similar to the 14% reported in the VPPRN community.

Patients with urticarial vasculitis

Entire VPPRN Community

SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: At the January 2025 check-in, 24% of patients with urticarial vasculitis reported no symptoms of vasculitis over the past 28 days.  This is similar to the 23% reported in the VPPRN community.

Patients with urticarial vasculitis

Entire VPPRN Community

PAIN and VASCULITIS

Pain: At the January 2025 check-in, 45% of patients with urticarial vasculitis reported moderate to severe pain (scores 5-10), on average.  This is higher than the 28% in the VPPRN community who reported these same scores.

Patients with urticarial vasculitis

Entire VPPRN Community

MEMBERS' CURRENT STATE OF VASCULITIS

Members’ Current State of Vasculitis: At the January 2025 check-in, 43% of patients with urticarial vasculitis reported their vasculitis as active. This is higher than the 23% reported in the Network.

Patients with urticarial vasculitis

Entire VPPRN Community