VPPRN Patient-Powered Research

Urticarial Vasculitis

Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing.  The graphs below reflect the scores/ratings of patients with urticarial vasculitis compared to the Network as a whole.  Here is what we learned about flaresfatiguepainsymptoms of vasculitis, and members’ current state of vasculitis at the July 2024 check-in:

    • Compared to patients with other forms of vasculitis, patients with urticarial vasculitis reported the following:
      • more flares
      • similar scores for fatigue
      • similar scores for their symptoms of vasculitis over the past 28 days
      • similar scores for pain
      • a larger percentage of patients with urticarial vasculitis reported their vasculitis as active.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.  

FLARES and VASCULITIS

Flare Reporting: At the July 2024 check-in, patients with urticarial vasculitis reported more flares in the past 6 months.  59% of patients with urticarial vasculitis reported a flare compared to 24% in the VPPRN community.

Patients with urticarial vasculitis

Entire VPPRN Community

FATIGUE and VASCULITIS

Fatigue: At the July 2024 check-in, 9% of patients with urticarial vasculitis reported no fatigue, on average. This is similar to the 12% reported in the VPPRN community.

Patients with urticarial vasculitis

Entire VPPRN Community

SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: At the July 2024 check-in, 24% of patients with urticarial vasculitis reported no symptoms of vasculitis over the past 28 days.  This is the same percentage reported in the VPPRN community.

Patients with urticarial vasculitis

Entire VPPRN Community

PAIN and VASCULITIS

Pain: 29% of patients with urticarial vasculitis reported no pain at the July 2024 check-in, on average.  This is comparable to the 28% in the VPPRN community.

Patients with urticarial vasculitis

Entire VPPRN Community

MEMBERS' CURRENT STATE OF VASCULITIS

Members’ Current State of Vasculitis: At the July 2024 check-in, 46% of patients with urticarial vasculitis reported their vasculitis as active. This is higher than the 23% reported in the Network.

Patients with urticarial vasculitis

Entire VPPRN Community

Logo for Vasculitis Awareness Month (VAM), observed in May. The logo features bold letters 'VAM [may]' with the words 'Vasculitis Awareness Month' beneath, and a stylized circular symbol composed of overlapping white rings to the left.

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