VPPRN Patient-Powered Research

Takayasu's Arteritis (TAK)

Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing.  The graphs below reflect the scores/ratings of patients with Takayasu’s arteritis (TAK) compared to the Network as a whole.  Here is what we learned about flaresfatiguepainsymptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:

    • Compared to patients with other forms of vasculitis, patients with TAK reported the following:
      • less reported flares
      • higher scores for fatigue (this is a change from the scores at the July 2024 check-in where the rates among patients with TAK and the VPPRN community were similar)
      • higher scores for their symptoms of vasculitis over the past 28 days
      • similar overall scores for pain
      • a smaller percentage of patients with TAK reported their vasculitis as active.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider. 

  • Not a member? Click JOIN THE VPPRN button below.
  • Already a VPPRN Member? Use the LOGIN button to access your account.

FLARES and VASCULITIS

Flare Reporting: At the January 2025 check-in, patients with TAK reported fewer flares in the past 6 months (13%) compared to 24% in the VPPRN community.  This is a trend we have seen for the past 4 VPPRN check-in timepoints (January + July 2023, January + July 2024, and January 2025).

Patients with TAK

Entire VPPRN Community

FATIGUE and VASCULITIS

Fatigue: At the January 2025 check-in, approximately 93% of patients with TAK reported experiencing a little bit to very much fatigue. This is similar to the 87% reported in the VPPRN community.

Patients with TAK

Entire VPPRN Community

SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: Patients with TAK scored their symptoms of vasculitis higher at the January 2025 check-in. 13% of patients with TAK reported no symptoms of vasculitis over the past 28 days compared to 23% in the VPPRN community.

Patients with TAK

Entire VPPRN Community

PAIN and VASCULITIS

Pain: 74% of patients with TAK reported no to moderate pain, on average, at the January 2025 check-in (scores 0-5). This is similar to the 80% reported in the Network within the same range and timeframe.

Patients with TAK

Entire VPPRN Community

MEMBERS' CURRENT STATE OF VASCULITIS

Members’ Current State of Vasculitis: At the January 2025 check-in, 17% of patients with TAK reported their vasculitis as active. This is less than the 23% reported in the Network.

Patients with TAK

Entire VPPRN Community