VPPRN Patient-Powered Research
Takayasu's Arteritis (TAK)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with Takayasu’s arteritis (TAK) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:
- Compared to patients with other forms of vasculitis, patients with TAK reported the following:
- less reported flares
- higher scores for fatigue (this is a change from the scores at the July 2024 check-in where the rates among patients with TAK and the VPPRN community were similar)
- higher scores for their symptoms of vasculitis over the past 28 days
- similar overall scores for pain
- a smaller percentage of patients with TAK reported their vasculitis as active.
- Compared to patients with other forms of vasculitis, patients with TAK reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
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FLARES and VASCULITIS
Flare Reporting: At the January 2025 check-in, patients with TAK reported fewer flares in the past 6 months (13%) compared to 24% in the VPPRN community. This is a trend we have seen for the past 4 VPPRN check-in timepoints (January + July 2023, January + July 2024, and January 2025).
Patients with TAK
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: At the January 2025 check-in, approximately 93% of patients with TAK reported experiencing a little bit to very much fatigue. This is similar to the 87% reported in the VPPRN community.
Patients with TAK
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: Patients with TAK scored their symptoms of vasculitis higher at the January 2025 check-in. 13% of patients with TAK reported no symptoms of vasculitis over the past 28 days compared to 23% in the VPPRN community.
Patients with TAK
Entire VPPRN Community
PAIN and VASCULITIS
Pain: 74% of patients with TAK reported no to moderate pain, on average, at the January 2025 check-in (scores 0-5). This is similar to the 80% reported in the Network within the same range and timeframe.
Patients with TAK
Entire VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: At the January 2025 check-in, 17% of patients with TAK reported their vasculitis as active. This is less than the 23% reported in the Network.
Patients with TAK
Entire VPPRN Community
