VPPRN Patient-Powered Research
Microscopic Polyangiitis (MPA)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with microscopic polyangiitis (MPA) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:
- Compared to patients with other forms of vasculitis, patients with MPA reported the following:
- similar percentage of flares reported (this is a change from the scores at the July 2024 check-in where the rates were lower for patients with MPA)
- similar scores for fatigue
- similar scores/ratings for their symptoms of vasculitis over the past 28 days
- similar scores for pain (this is a change from the scores at the July 2024 check-in where the rates were lower for patients with MPA)
- a smaller percentage of patients with MPA reported their vasculitis as currently active.
- Compared to patients with other forms of vasculitis, patients with MPA reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
- Not a member? Click JOIN THE VPPRN button below.
- Already a VPPRN Member? Use the LOGIN button to access your account.
FLARES and VASCULITIS
Flare Reporting: At the January 2025 check-in, 21% of patients with MPA reported a flare in the past 6 months. This is similar to the 24% in the VPPRN community who reported a flare.
Patients with MPA
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: At the January 2025 check-in, 14% of patients with MPA reported no fatigue, on average, in the past 7 days. This is the same percentage reported in the VPPRN community.
Patients with MPA
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: 25% of patients with MPA reported no symptoms of vasculitis at the January 2025 check-in. This is similar to the 23% reported in the VPPRN community.
Patients with MPA
Entire VPPRN Community
PAIN and VASCULITIS
Pain: At the January 2025 check-in, 82% of patients with MPA reported no to moderate pain (scores 0-5), on average. This is similar to the 80% in the VPPRN community who reported these same scores.
Patients with MPA
Entire VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: At the January 2025 check-in, a smaller percentage of patients with MPA reported their vasculitis as currently active. 15% of patients with MPA reported their vasculitis as active compared to 23% in the VPPRN community.
Patients with MPA
Entire VPPRN Community
