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VPPRN Patient-Powered Research

Microscopic Polyangiitis (MPA)

Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing.  The graphs below reflect the scores/ratings of patients with microscopic polyangiitis (MPA) compared to the Network as a whole.  Here is what we learned about flaresfatiguepainsymptoms of vasculitis, and members’ current state of vasculitis at the January 2025 check-in:

    • Compared to patients with other forms of vasculitis, patients with MPA reported the following:
      • similar percentage of flares reported (this is a change from the scores at the July 2024 check-in where the rates were lower for patients with MPA)
      • similar scores for fatigue
      • similar scores/ratings for their symptoms of vasculitis over the past 28 days
      • similar scores for pain (this is a change from the scores at the July 2024 check-in where the rates were lower for patients with MPA)
      • a smaller percentage of patients with MPA reported their vasculitis as currently active.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.  

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FLARES and VASCULITIS

Flare Reporting: At the January 2025 check-in, 21% of patients with MPA reported a flare in the past 6 months. This is similar to the 24% in the VPPRN community who reported a flare.

Patients with MPA

Entire VPPRN Community

FATIGUE and VASCULITIS

Fatigue: At the January 2025 check-in, 14% of patients with MPA reported no fatigue, on average, in the past 7 days. This is the same percentage reported in the VPPRN community.

Patients with MPA

Entire VPPRN Community

SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: 25% of patients with MPA reported no symptoms of vasculitis at the January 2025 check-in. This is similar to the 23% reported in the VPPRN community.

Patients with MPA

Entire VPPRN Community

PAIN and VASCULITIS

Pain: At the January 2025 check-in, 82% of patients with MPA reported no to moderate pain (scores 0-5), on average. This is similar to the 80% in the VPPRN community who reported these same scores.

Patients with MPA

Entire VPPRN Community

MEMBERS' CURRENT STATE OF VASCULITIS

Members’ Current State of Vasculitis: At the January 2025 check-in, a smaller percentage of patients with MPA reported their vasculitis as currently active.  15% of patients with MPA reported their vasculitis as active compared to 23% in the VPPRN community.

Patients with MPA

Entire VPPRN Community