VPPRN Patient-Powered Research

Eosinophilic Granulomatosis with Polyangiitis (EGPA)

Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing.  The graphs below reflect the scores/ratings of patients with eosinophilic granulomatosis with polyangiitis (EGPA) compared to the Network as a whole.  Here is what we learned about flaresfatiguepainsymptoms of vasculitis, and members’ current state of vasculitis at the July 2024 check-in:

    • Compared to patients with other forms of vasculitis, patients with EGPA reported the following:
      • more flares
      • similar scores for fatigue
      • similar scores/ratings for their symptoms of vasculitis over the past 28 days
      • similar scores for pain
      • a similar percentage of patients with EGPA reported their vasculitis as currently active.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.

FLARES and VASCULITIS

Flare Reporting:  At the July 2024 check-in, 32% of patients with EGPA reported a flare in the past 6 months. This is higher than the 24% in the VPPRN community who reported a flare within the same timeframe.

Patients with EGPA

Entire VPPRN Community

FATIGUE and VASCULITIS

Fatigue: At the July 2024 check-in, 12% of patients with EGPA reported no fatigue on average.  This is the same percentage reported in the VPPRN community.

Patients with EGPA

Entire VPPRN Community

SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: At the July 2024 check-in, 20% of patients with EGPA reported no symptoms of vasculitis over the past 28 days. This is similar to the 24% who reported no symptoms from the VPPRN community.

Patients with EGPA

Entire VPPRN Community

PAIN and VASCULITIS

Pain: 77% of patients with EGPA reported no to moderate pain, on average, at the July 2024 check-in (scores 0-5). This is similar to the 82% reported in the Network within the same range and timeframe.

Patients with EGPA

Entire VPPRN Community

MEMBERS' CURRENT STATE OF VASCULITIS

Members’ Current State of Vasculitis: At the July 2024 check-in, 26% of patients with EGPA reported their vasculitis as active. This is similar to the 23% reported in the VPPRN community.

Patients with EGPA

Entire VPPRN Community