VPPRN Patient-Powered Research
Central Nervous System (CNS) Vasculitis
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with central nervous system vasculitis (CNSV) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2024 check-in:
- Compared to patients with other forms of vasculitis, patients with CNSV reported the following:
- similar rates of reported flares
- higher scores for fatigue
- similar scores/ratings for their symptoms of vasculitis over the past 28 days
- higher scores for pain
- a larger percentage of patients with CNSV reported their vasculitis as currently active.
- Compared to patients with other forms of vasculitis, patients with CNSV reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.