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Video Library

Visit the VF YouTube Channel to search our video collection.

There you will find videos covering a wide variety of topics such as:

  • Vasculitis treatments
  • Coping with the mental health impact of vasculitis
  • Making the most of your doctor’s appointments
  • The impact of vasculitis and vasculitis treatments on your heart, lungs, kidneys, sinuses, ears, eyes, bones, and skin
  • Pregnancy and family planning with vasculitis
  • Exercise and nutrition with vasculitis
0:00
6:18          What happens to the body when taking corticosteroids?
8:57          What is adrenal insufficiency?
10:34        Risks.
13:35        Symptoms of corticosteroids.
15:37       Testing:  Basal Cortisol Levels.
16:37       ACTH Stimulation test.
19:11       Adrenal insufficiency vs. prednisone withdrawal.
23:09      Q&A:  What are some symptoms of adrenal insufficiency vs those symptoms for   
                weaning too fast from steroids?
24:48      Q&A:  Is Adrenal Insufficiency inevitable if you reduce prednisone slowly over two  
                 years? At what dosage will it appear?
27:49       Q&A:  If one of the symptoms is fatigue, and fatigue is one of the most common 
                 lingering symptoms of ANCA vasculitis, how can my team determine if I 
                 have adrenal insufficiency without the ATCH test?
32:31      Q&A:  What happens to adrenal glands in the case of a transplant?
33:40      Q&A:  Are there forms of vasculitis that can cause primary adrenal insufficiency?
34:51      Q&A:  If you decrease prednisone to 0 do you always develop adrenal   
                 insufficiency?
36:04      Q&A:  Is a person at risk for adrenal insufficiency while they are reducing and then 
                12 months after stopping completely?
36:40      Q&A: Is there a method that works to reduce steroid dependence because a small    
                reduction causes steroid withdrawal?
39:09     Q&A:  What can patients do as they taper off prednisone to get the adrenal glands to    
               'kick in' and start making sufficient amounts of cortisol again?
41:36     Q&A:  If repeated cortisol tests show the return of cortisol levels to normal levels 
               then there is no longer adrenal insufficiency. Is this correct?
43:20     Q&A:  Can you recover from adrenal insufficiency or can it be a permanent 
               condition?
47:11    Q&A:  What is meant by a “rescue dose”?
47:43    Q&A:  Budesonide is reported as having fewer systemic effects than Prednisone- 
               does it have the same risk of AI?
48:54:    Q&A:  Does advanced age affect the ability to recover from adrenal insufficiency?
49:45     Q&A:  Is DHEA a steroid?

What You Need to Know about Adrenal Insufficiency
Recorded June 2024

If you’re living with vasculitis and on corticosteroid medication, we have what you need to know about adrenal insufficiency. In this webinar, Alexandra Villa-Forte, MD, MPH, FACP, from the Center for Vasculitis Care and Research at the Cleveland Clinic, addresses your most pressing concerns and explain why tapering off corticosteroids needs to be done in a precise way.  Dr. Villa-Forte will discusses how to discern between withdrawal symptoms and adrenal insufficiency, and how to monitor yourself for potential adverse effects during a taper.

0:00
6:18 What happens to the body when taking corticosteroids?
8:57 What is adrenal insufficiency?
10:34 Risks.
13:35 Symptoms of corticosteroids.
15:37 Testing: Basal Cortisol Levels.
16:37 ACTH Stimulation test.
19:11 Adrenal insufficiency vs. prednisone withdrawal.
23:09 Q&A: What are some symptoms of adrenal insufficiency vs those symptoms for
weaning too fast from steroids?
24:48 Q&A: Is Adrenal Insufficiency inevitable if you reduce prednisone slowly over two
years? At what dosage will it appear?
27:49 Q&A: If one of the symptoms is fatigue, and fatigue is one of the most common
lingering symptoms of ANCA vasculitis, how can my team determine if I
have adrenal insufficiency without the ATCH test?
32:31 Q&A: What happens to adrenal glands in the case of a transplant?
33:40 Q&A: Are there forms of vasculitis that can cause primary adrenal insufficiency?
34:51 Q&A: If you decrease prednisone to 0 do you always develop adrenal
insufficiency?
36:04 Q&A: Is a person at risk for adrenal insufficiency while they are reducing and then
12 months after stopping completely?
36:40 Q&A: Is there a method that works to reduce steroid dependence because a small
reduction causes steroid withdrawal?
39:09 Q&A: What can patients do as they taper off prednisone to get the adrenal glands to
'kick in' and start making sufficient amounts of cortisol again?
41:36 Q&A: If repeated cortisol tests show the return of cortisol levels to normal levels
then there is no longer adrenal insufficiency. Is this correct?
43:20 Q&A: Can you recover from adrenal insufficiency or can it be a permanent
condition?
47:11 Q&A: What is meant by a “rescue dose”?
47:43 Q&A: Budesonide is reported as having fewer systemic effects than Prednisone-
does it have the same risk of AI?
48:54: Q&A: Does advanced age affect the ability to recover from adrenal insufficiency?
49:45 Q&A: Is DHEA a steroid?

What You Need to Know about Adrenal Insufficiency
Recorded June 2024

If you’re living with vasculitis and on corticosteroid medication, we have what you need to know about adrenal insufficiency. In this webinar, Alexandra Villa-Forte, MD, MPH, FACP, from the Center for Vasculitis Care and Research at the Cleveland Clinic, addresses your most pressing concerns and explain why tapering off corticosteroids needs to be done in a precise way. Dr. Villa-Forte will discusses how to discern between withdrawal symptoms and adrenal insufficiency, and how to monitor yourself for potential adverse effects during a taper.

19 0

YouTube Video UExyNkJ3YXU2dVNtc1MwVUtEbVByTWJ3VG5WQl9pT1JHTS4xN0Y2QjVBOEI2MzQ5OUM5

2024 Adrenal Insufficiency

Presentation Slides: https://www.vasculitisfoundation.org/wp-content/uploads/2024/06/Grief-Vasculitis.pdf

Living with vasculitis brings not just physical challenges but also deep emotional ones. Noelle Creamer, a Board-Certified Health and Wellness Coach who’s also living with vasculitis, dives into the grief that comes with a vasculitis diagnosis and how it affects more than just our health. She explores what this grief looks like, why it's so hard to talk about, and how we can move forward with hope.

What you will learn in this workshop: 

Understanding Grief’s Many Forms: Gain a deeper insight into the various types of grief one may encounter with a vasculitis diagnosis, including loss of control, loss of trust in one's body, or loss of personal identity, purpose and direction. 

Unveiling Disenfranchised Grief: Discover what disenfranchised grief is and why it's significant, especially when your feelings of loss go unrecognized by society.

Recognizing the Symptoms: Learn to identify the symptoms of disenfranchised grief and understand how they might differ from those of traditional mourning.

Physical Manifestations of Grief: Explore how grief can be embodied, learning to recognize the physical signs and symptoms that grief may be affecting your wellbeing.

Self-Reflection Prompts for Tough Days: Arm yourself with thoughtful questions to guide you through difficult moments, fostering introspection and self-compassion.

Cultivating Self-Care: Learn about practical self-care strategies for challenging days, designed to nurture both body and spirit.

Embracing Your 'MVP': Engage with key practices—Mindfulness, Visualization, and Purpose—as tools to center yourself and find peace amidst the turmoil.

Applying the 3-H's Approach: Determine which type of support you need at any given moment and learn how to communicate these needs to others.

Community and Support: Learn the importance of sharing your story and finding a community that understands and supports you.

About Noelle:

Noelle Creamer is a Board-Certified Health and Wellness Coach with training from Duke University, and the Co-Founder of BrightlyThrive™, a community-based app that supports those living with autoimmune conditions, inspired by Noelle's own victory over Granulomatosis with Polyangiitis. Noelle’s credentials also extend to certifications in breathwork, mind/body connection, lifestyle medicine, nutrition and yoga, enriching her holistic approach to wellness.

Her mission is clear: to empower people to transcend health challenges and live fully today without fearing tomorrow. Noelle specializes in cultivating a positive mindset and building healthy habits in nutrition, exercise, sleep, and community connection. She is a guide, mentor, and advocate for thriving health and wellness.

Presentation Slides: https://www.vasculitisfoundation.org/wp-content/uploads/2024/06/Grief-Vasculitis.pdf

Living with vasculitis brings not just physical challenges but also deep emotional ones. Noelle Creamer, a Board-Certified Health and Wellness Coach who’s also living with vasculitis, dives into the grief that comes with a vasculitis diagnosis and how it affects more than just our health. She explores what this grief looks like, why it's so hard to talk about, and how we can move forward with hope.

What you will learn in this workshop:

Understanding Grief’s Many Forms: Gain a deeper insight into the various types of grief one may encounter with a vasculitis diagnosis, including loss of control, loss of trust in one's body, or loss of personal identity, purpose and direction.

Unveiling Disenfranchised Grief: Discover what disenfranchised grief is and why it's significant, especially when your feelings of loss go unrecognized by society.

Recognizing the Symptoms: Learn to identify the symptoms of disenfranchised grief and understand how they might differ from those of traditional mourning.

Physical Manifestations of Grief: Explore how grief can be embodied, learning to recognize the physical signs and symptoms that grief may be affecting your wellbeing.

Self-Reflection Prompts for Tough Days: Arm yourself with thoughtful questions to guide you through difficult moments, fostering introspection and self-compassion.

Cultivating Self-Care: Learn about practical self-care strategies for challenging days, designed to nurture both body and spirit.

Embracing Your 'MVP': Engage with key practices—Mindfulness, Visualization, and Purpose—as tools to center yourself and find peace amidst the turmoil.

Applying the 3-H's Approach: Determine which type of support you need at any given moment and learn how to communicate these needs to others.

Community and Support: Learn the importance of sharing your story and finding a community that understands and supports you.

About Noelle:

Noelle Creamer is a Board-Certified Health and Wellness Coach with training from Duke University, and the Co-Founder of BrightlyThrive™, a community-based app that supports those living with autoimmune conditions, inspired by Noelle's own victory over Granulomatosis with Polyangiitis. Noelle’s credentials also extend to certifications in breathwork, mind/body connection, lifestyle medicine, nutrition and yoga, enriching her holistic approach to wellness.

Her mission is clear: to empower people to transcend health challenges and live fully today without fearing tomorrow. Noelle specializes in cultivating a positive mindset and building healthy habits in nutrition, exercise, sleep, and community connection. She is a guide, mentor, and advocate for thriving health and wellness.

22 3

YouTube Video UExyNkJ3YXU2dVNtc1MwVUtEbVByTWJ3VG5WQl9pT1JHTS42MjYzMTMyQjA0QURCN0JF

Grief and Vasculitis: The Road from Loss to Empowerment

0:00

1:10           Introducing Dr. Free

2:29         Your presentation had a new abbreviation, LTROT.  My understanding is this is a goal of 
                getting the patient is totally off treatment in a state of remission.  Is this correct?

5:21:         Dr. Free, can you talk about what is meant by immunological remission?   Is this the same 
                idea as achieving any type of remission from vasculitis, or is this a specific type of 
                remission?  Thank you.

7:55         Could you give a layperson explanation of dendritic cells and their purpose?  What is the 
               important takeaway from this process as it pertains to vasculitis?

11:46     You talk about the ultimate goal of restoration of immune system intolerance.  A resetting or 
               redirecting of the immune system.  At first, I thought this was the same as finding a cure 
               where the immune system is restored.  Then it seemed like it’s not what we think of as a 
               cure per se,  but to achieve remission.  But I’m still confused.  Can you elaborate, please?

14:35     Suddenly I’m hearing a lot about CAR and CAAR-T cells.  Several doctors have said it’s too 
                early, too premature …but they didn’t say too premature for what exactly.  Do they mean this 
                research is too premature to provide possible therapeutic options?

19:36    We are hearing about all of the potential, promising therapies.  Could you doctor address how 
              and why it takes so long for these therapies to become approved, new treatments for 
              patients.

Recorded April 2024

Watch Dr. Free's entire presentation, Emerging Therapies, from the VF Chapel Hill Conference: https://youtu.be/NjAzb6lcVW4

0:00

1:10 Introducing Dr. Free

2:29 Your presentation had a new abbreviation, LTROT. My understanding is this is a goal of
getting the patient is totally off treatment in a state of remission. Is this correct?

5:21: Dr. Free, can you talk about what is meant by immunological remission? Is this the same
idea as achieving any type of remission from vasculitis, or is this a specific type of
remission? Thank you.

7:55 Could you give a layperson explanation of dendritic cells and their purpose? What is the
important takeaway from this process as it pertains to vasculitis?

11:46 You talk about the ultimate goal of restoration of immune system intolerance. A resetting or
redirecting of the immune system. At first, I thought this was the same as finding a cure
where the immune system is restored. Then it seemed like it’s not what we think of as a
cure per se, but to achieve remission. But I’m still confused. Can you elaborate, please?

14:35 Suddenly I’m hearing a lot about CAR and CAAR-T cells. Several doctors have said it’s too
early, too premature …but they didn’t say too premature for what exactly. Do they mean this
research is too premature to provide possible therapeutic options?

19:36 We are hearing about all of the potential, promising therapies. Could you doctor address how
and why it takes so long for these therapies to become approved, new treatments for
patients.

Recorded April 2024

Watch Dr. Free's entire presentation, Emerging Therapies, from the VF Chapel Hill Conference: https://youtu.be/NjAzb6lcVW4

10 0

YouTube Video UExyNkJ3YXU2dVNtc1MwVUtEbVByTWJ3VG5WQl9pT1JHTS4xM0YyM0RDNDE4REQ1NDA0

Emerging Therapies Q&A

Join us for a floor-based or bed-based nurturing SomaYoga class designed specifically for individuals living with vasculitis. Led by experienced Yoga Therapist, Molly McManus who understands the unique challenges of managing fatigue and exhaustion, this class offers a gentle yet effective approach to restoring energy levels and promoting overall well-being.

SomaYoga combines gentle movement, simple breathwork, and relaxation techniques to help release tension, improve circulation, and cultivate a sense of inner calm. Through accessible low-load somatic movement sequences, participants will learn how to honor their bodies' needs and find balance amidst the demands of daily life.

Whether you're experiencing acute fatigue or managing chronic exhaustion, or just simply want to find more ease, this class provides a safe and supportive space to explore reconnecting to your body and mind. You'll leave feeling refreshed, replenished, and empowered to navigate today’s journey with vasculitis with greater ease and resilience.

No prior yoga experience is necessary. All levels of mobility are welcome. Come as you are and take the first step towards reclaiming your vitality. 

Requirements: Floor space with a mat or a space in your bed if you are experiencing acute fatigue. A pillow or two, a blanket, and a small towel. 

You can find more nurturing yoga classes on Molly's website https://www.yoganorthduluth.com/

Join us for a floor-based or bed-based nurturing SomaYoga class designed specifically for individuals living with vasculitis. Led by experienced Yoga Therapist, Molly McManus who understands the unique challenges of managing fatigue and exhaustion, this class offers a gentle yet effective approach to restoring energy levels and promoting overall well-being.

SomaYoga combines gentle movement, simple breathwork, and relaxation techniques to help release tension, improve circulation, and cultivate a sense of inner calm. Through accessible low-load somatic movement sequences, participants will learn how to honor their bodies' needs and find balance amidst the demands of daily life.

Whether you're experiencing acute fatigue or managing chronic exhaustion, or just simply want to find more ease, this class provides a safe and supportive space to explore reconnecting to your body and mind. You'll leave feeling refreshed, replenished, and empowered to navigate today’s journey with vasculitis with greater ease and resilience.

No prior yoga experience is necessary. All levels of mobility are welcome. Come as you are and take the first step towards reclaiming your vitality.

Requirements: Floor space with a mat or a space in your bed if you are experiencing acute fatigue. A pillow or two, a blanket, and a small towel.

You can find more nurturing yoga classes on Molly's website https://www.yoganorthduluth.com/

4 0

YouTube Video UExyNkJ3YXU2dVNtc1MwVUtEbVByTWJ3VG5WQl9pT1JHTS42QzdBMzlBQzQzRjQ0QkQy

Renew and Restore: SomaYoga for Fatigue and Exhaustion

0:00
0:34 Introducing Dr. Alicia Rodrigue-Pla
1:51 What is EGPA?
4:44 Pathogenesis
8:17 Epidemiology
9:15 Patient case study
10:16 Symptoms
11:31 Phases of EGPA
12:57 ANCA- vs ANCA +
13:57 Diagnosis
16:50 Differentiating features.
18:36 Treatment
19:28 Treatment timeline.
20:45 Treatment:  Refractory disease.
21:00 ACR / VF Guidelines.
23:26 Anti-il5/il5r biologic therapies
25:53 Anti-il-5 therapies in EGPA
26 :43 Mepolizumab (I)
27 :52 Benralizumab (I)
29:33 Phase 2 reslizumab study for EGPA
29:47 Take home messages

31:23      Q: Many of us have no eosinophils b/c of pred, Nucala, etc. but still have flares, or    
                need additional meds to manage the epga. What can cause flares in EGPA when the 
                 EOS are 0?
34:30      Q:  What does DAH mean?
36:28      Q:   What is the youngest patient the doctor has treated for EGPA?
37:23      Q:   Could you tell us again how the drug Mepolizumab could help patients?
39:39      Q:   Have you experience with EGPA patients successfully maintaining remission   
                off all treatments?
41:15       Q:   Are vaccines such as flu, covid, and shingles recommended?
41:53       Q:   Do you know the timeline of approval for the use of bevacizumab to treat 
                  EGPA?  What was the dosing frequency in the study - was it 30 mg every 4 
                  weeks?
43:03        Q:    Is it normal having a lot of surgeries in the sinuses? Every year? And   
                  inflammation in other organs?
44:06        Q:    What percentage of patients develop antibodies to Benralizumab over time?
44:54        Q:    Rituximab was not listed on the IL-5 inhibitor slides.  In addition to B cell 
                    interaction, does Rituximab also inhibit IL-5?
45:39         Q:    How common is neuropathy?
47:23         Q:    How is asthma treated when someone has EGPA?
48:12         Q:    Thoughts about diet and vasculitis?
50:15         Q:     Why is tavneos only for ANCA positive? We cannot use it right?
52:37         Q:     Who should be on my medical team?  Should I have a pulmonologist with 
                   EGPA?

Overview of EGPA
Recorded June 2024

In this webinar, Alicia Rodriguez-Pla, MD, PhD, MPH, a rheumatologist at Sierra Pacific Arthritis and Rheumatology Centers in Fresno, California, helps you to  understand the symptoms, diagnosis, and available treatment strategies for EGPA. She also  review spotential complications from the disease, as well as what’s on the horizon—current research and ongoing clinical studies.

0:00
0:34 Introducing Dr. Alicia Rodrigue-Pla
1:51 What is EGPA?
4:44 Pathogenesis
8:17 Epidemiology
9:15 Patient case study
10:16 Symptoms
11:31 Phases of EGPA
12:57 ANCA- vs ANCA +
13:57 Diagnosis
16:50 Differentiating features.
18:36 Treatment
19:28 Treatment timeline.
20:45 Treatment: Refractory disease.
21:00 ACR / VF Guidelines.
23:26 Anti-il5/il5r biologic therapies
25:53 Anti-il-5 therapies in EGPA
26 :43 Mepolizumab (I)
27 :52 Benralizumab (I)
29:33 Phase 2 reslizumab study for EGPA
29:47 Take home messages

31:23 Q: Many of us have no eosinophils b/c of pred, Nucala, etc. but still have flares, or
need additional meds to manage the epga. What can cause flares in EGPA when the
EOS are 0?
34:30 Q: What does DAH mean?
36:28 Q: What is the youngest patient the doctor has treated for EGPA?
37:23 Q: Could you tell us again how the drug Mepolizumab could help patients?
39:39 Q: Have you experience with EGPA patients successfully maintaining remission
off all treatments?
41:15 Q: Are vaccines such as flu, covid, and shingles recommended?
41:53 Q: Do you know the timeline of approval for the use of bevacizumab to treat
EGPA? What was the dosing frequency in the study - was it 30 mg every 4
weeks?
43:03 Q: Is it normal having a lot of surgeries in the sinuses? Every year? And
inflammation in other organs?
44:06 Q: What percentage of patients develop antibodies to Benralizumab over time?
44:54 Q: Rituximab was not listed on the IL-5 inhibitor slides. In addition to B cell
interaction, does Rituximab also inhibit IL-5?
45:39 Q: How common is neuropathy?
47:23 Q: How is asthma treated when someone has EGPA?
48:12 Q: Thoughts about diet and vasculitis?
50:15 Q: Why is tavneos only for ANCA positive? We cannot use it right?
52:37 Q: Who should be on my medical team? Should I have a pulmonologist with
EGPA?

Overview of EGPA
Recorded June 2024

In this webinar, Alicia Rodriguez-Pla, MD, PhD, MPH, a rheumatologist at Sierra Pacific Arthritis and Rheumatology Centers in Fresno, California, helps you to understand the symptoms, diagnosis, and available treatment strategies for EGPA. She also review spotential complications from the disease, as well as what’s on the horizon—current research and ongoing clinical studies.

19 0

YouTube Video UExyNkJ3YXU2dVNtc1MwVUtEbVByTWJ3VG5WQl9pT1JHTS5CNTcxMDQ0NThBNzMxODYz

Overview of EGPA

0:00
0:46 Introduction
2:07 My GPA led to permanent hearing loss, however, I don't well understand what 
happened. Are  you able to provide some common reasons for this permanent           
 loss?

6:35 What are your thoughts on less invasive balloon sinuplasty for vasculitis patients?

8:16 Is it common for GPA to start in sinusitis and then that clears and moves to other  
symptoms joint pain and eye pain but no sinusitis?

9:35 How can eustachian tube dysfunction present when GPA is the culprit? Is this a 
common presentation?

11:03 You say to avoid surgery, but in the presence of invasive polyps is that the case? I 
 had two surgeries within 12 weeks for severe presentations of polyps. were they 
 potentially avoidable?

12:41 I use hydropulse nasal irrigation and it is effective.  I had no relief with the 6oz 
 bottle.  Do you recommend hydro pulse?

14:00 How do you know if the crusting and mucus is normal and not inflammation or 
residue from the GPA damage?

15:19 What does a sinus biopsy show when it is positive for vasculitis?

16:55 Once you’re diagnosed and mostly under control, how common is it to develop 
saddle nose?

18:44 Can sinus involvement also affect the teeth or mouth?

19:43 Have you ever dealt with a patient who had sinus involvement with vasculitis and 
they wanted to get a nose ring, or a small metal stud.  If so, how did you advise 
them on risks?

21:50 Can you share the key points that you would tell a patient who has sinus 
involvement?

More Q&A on Sinuses and Vasculitis
Recorded June 2024

0:00
0:46 Introduction
2:07 My GPA led to permanent hearing loss, however, I don't well understand what
happened. Are you able to provide some common reasons for this permanent
loss?

6:35 What are your thoughts on less invasive balloon sinuplasty for vasculitis patients?

8:16 Is it common for GPA to start in sinusitis and then that clears and moves to other
symptoms joint pain and eye pain but no sinusitis?

9:35 How can eustachian tube dysfunction present when GPA is the culprit? Is this a
common presentation?

11:03 You say to avoid surgery, but in the presence of invasive polyps is that the case? I
had two surgeries within 12 weeks for severe presentations of polyps. were they
potentially avoidable?

12:41 I use hydropulse nasal irrigation and it is effective. I had no relief with the 6oz
bottle. Do you recommend hydro pulse?

14:00 How do you know if the crusting and mucus is normal and not inflammation or
residue from the GPA damage?

15:19 What does a sinus biopsy show when it is positive for vasculitis?

16:55 Once you’re diagnosed and mostly under control, how common is it to develop
saddle nose?

18:44 Can sinus involvement also affect the teeth or mouth?

19:43 Have you ever dealt with a patient who had sinus involvement with vasculitis and
they wanted to get a nose ring, or a small metal stud. If so, how did you advise
them on risks?

21:50 Can you share the key points that you would tell a patient who has sinus
involvement?

More Q&A on Sinuses and Vasculitis
Recorded June 2024

23 2

YouTube Video UExyNkJ3YXU2dVNtc1MwVUtEbVByTWJ3VG5WQl9pT1JHTS4wRjhFM0MxMTU1MEUzQ0VB

More Q&A on Sinuses and Vasculitis

0:00
0:42 Introducing Dr. Sebastian Sattui.
1:32 Why this meeting is so important.
3:06 The MANDARA Clinical Trial
3:46 The TAPIR Study
5:07 Honoring Dr. Ronald Falk
6:29 Using renal biopsy info or urinary markers to predict how treatments will go for
               renal function.
6:59 Results from the VascStrong Study.
9:21 Presentation on AVOCOPAN. 
11:25 Excitement around the new response criteria being developed around ANCA vasculitis.
12:23 Focusing on multi-disciplinary care.
14:29 Joyce Kullman: The International Patient Meeting. 
16:47 Translating educational materials into other languages.
17:36 Q: Were there any sessions dealing with treatment for PAN?
20:07 Q:  Was there a discussion about revisions to the use and timetable with steroids?
22:06 Q:  Could you give some more detail about the MANDARA study?
24:48 Q:  What would you suggest so that our doctors and medical providers get the information 
                that you are sharing today.
27:32 Q:  Was there any discussion about the use of artificial intelligence technology in vasculitis 
               research?

2024 Barcelona Vasculitis Workshop: Research Highlights
Recorded May 2024

More than 900 medical professionals from 50 countries came together in Barcelona last month for the 21st International Vasculitis Workshop. Their purpose was to focus on vasculitis and related disorders. 
In this webinar, Sebastian Sattui, MD, MS, Director of the UPMC Vasculitis Center in Pittsburgh, shares some of the notable research news, developments, and promising developments presented at the meeting.

 Among the studies he discusses: 
·       MANDARA Study (benralizumab vs mepolizumab) for EGPA
·       New data (real life and post hoc analyses) about the efficacy and tolerance of avacopan in AAV

0:00
0:42 Introducing Dr. Sebastian Sattui.
1:32 Why this meeting is so important.
3:06 The MANDARA Clinical Trial
3:46 The TAPIR Study
5:07 Honoring Dr. Ronald Falk
6:29 Using renal biopsy info or urinary markers to predict how treatments will go for
renal function.
6:59 Results from the VascStrong Study.
9:21 Presentation on AVOCOPAN.
11:25 Excitement around the new response criteria being developed around ANCA vasculitis.
12:23 Focusing on multi-disciplinary care.
14:29 Joyce Kullman: The International Patient Meeting.
16:47 Translating educational materials into other languages.
17:36 Q: Were there any sessions dealing with treatment for PAN?
20:07 Q: Was there a discussion about revisions to the use and timetable with steroids?
22:06 Q: Could you give some more detail about the MANDARA study?
24:48 Q: What would you suggest so that our doctors and medical providers get the information
that you are sharing today.
27:32 Q: Was there any discussion about the use of artificial intelligence technology in vasculitis
research?

2024 Barcelona Vasculitis Workshop: Research Highlights
Recorded May 2024

More than 900 medical professionals from 50 countries came together in Barcelona last month for the 21st International Vasculitis Workshop. Their purpose was to focus on vasculitis and related disorders.
In this webinar, Sebastian Sattui, MD, MS, Director of the UPMC Vasculitis Center in Pittsburgh, shares some of the notable research news, developments, and promising developments presented at the meeting.

Among the studies he discusses:
· MANDARA Study (benralizumab vs mepolizumab) for EGPA
· New data (real life and post hoc analyses) about the efficacy and tolerance of avacopan in AAV

17 2

YouTube Video UExyNkJ3YXU2dVNtc1MwVUtEbVByTWJ3VG5WQl9pT1JHTS5ERkUyQTM0MzEwQjZCMTY5

2024 Barcelona Vasculitis Workshop: Research Highlights

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