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Video Library

Visit the VF YouTube Channel to search our video collection.

There you will find videos covering a wide variety of topics such as:

  • Vasculitis treatments
  • Coping with the mental health impact of vasculitis
  • Making the most of your doctor’s appointments
  • The impact of vasculitis and vasculitis treatments on your heart, lungs, kidneys, sinuses, ears, eyes, bones, and skin
  • Pregnancy and family planning with vasculitis
  • Exercise and nutrition with vasculitis
0:002:42 Results of webinar survey of pulmonary involvement.5:24 Structure and vessels of the lungs.8:20 Our diagnostic tools.10:50 Asthma.17:16 Airway management:  Mucosal Inflammation.22:31 Lung nodules and cavities.25:09 Interstitial lung disease.27:59 Diffuse Alveolar Hemorrhage.29:55 Vascular stenoses & aneurysms.32:00 Potpourri33:18 Complications of treatment.35:09 Key points.36:00 Are pulmonary embolisms a potential result/symptom of GPA?37:28 If you have part of your lung removed, can it regenerate?38:30 In Dr. Fussner's career, how often has she seen or known a person needing a lung transplant due to vasculitis?39:22 If you have minimal lung scarring from bleeding in the lungs, what is the long-term effect of this scarring?40:44 Is a bronchoscopy painful?42:06 Has non-tuberculosis been a common diagnosis?42:49 Would you recommend a biopsy if imaging picks up a ground-glass nodule?44:48 How much of a factor does a prior history of smoking play in treating pulmonary issues in vasculitis?46:28 How long would vasculitis have to be untreated for some of these pulmonary complications, such as scarring? 47:39 Does Rituxan relieve inflammation in lung tissue and/or improve breathingView Dr. Fussner's webinar slide presentation here. https://shorturl.fm/NoYFiWatch this informative overview led by Dr. Lynn Fussner on vasculitis and its impact on the lungs (the pulmonary system). Vasculitis is a condition where your blood vessels become inflamed, which can affect various parts of the body, including the lungs. This can lead to breathing issues and other complications. Visit the Vasculitis Foundation to learn about our other resources at www.vasculitisfoundation.org.

0:00
2:42 Results of webinar survey of pulmonary involvement.
5:24 Structure and vessels of the lungs.
8:20 Our diagnostic tools.
10:50 Asthma.
17:16 Airway management: Mucosal Inflammation.
22:31 Lung nodules and cavities.
25:09 Interstitial lung disease.
27:59 Diffuse Alveolar Hemorrhage.
29:55 Vascular stenoses & aneurysms.
32:00 Potpourri
33:18 Complications of treatment.
35:09 Key points.
36:00 Are pulmonary embolisms a potential result/symptom of GPA?
37:28 If you have part of your lung removed, can it regenerate?
38:30 In Dr. Fussner's career, how often has she seen or known a person needing a lung transplant due to vasculitis?
39:22 If you have minimal lung scarring from bleeding in the lungs, what is the long-term effect of this scarring?
40:44 Is a bronchoscopy painful?
42:06 Has non-tuberculosis been a common diagnosis?
42:49 Would you recommend a biopsy if imaging picks up a ground-glass nodule?
44:48 How much of a factor does a prior history of smoking play in treating pulmonary issues in vasculitis?
46:28 How long would vasculitis have to be untreated for some of these pulmonary complications, such as scarring?
47:39 Does Rituxan relieve inflammation in lung tissue and/or improve breathing

View Dr. Fussner's webinar slide presentation here. https://shorturl.fm/NoYFi

Watch this informative overview led by Dr. Lynn Fussner on vasculitis and its impact on the lungs (the pulmonary system). Vasculitis is a condition where your blood vessels become inflamed, which can affect various parts of the body, including the lungs. This can lead to breathing issues and other complications.

Visit the Vasculitis Foundation to learn about our other resources at www.vasculitisfoundation.org.

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YouTube Video UExyNkJ3YXU2dVNtc1MwVUtEbVByTWJ3VG5WQl9pT1JHTS5ENUI5OTFCQkYxNDUxQjQ3

Vasculitis and Pulmonary Issues 2025

0:005:42 Airway disease in GPA:  Laryngeal Stenosis, Subglottic Stenosis, Bronchial Stenosis7:14 Why does GPA occur?8:51 Bacteria (Staph Aureus) Are Associated With Airway Disease Relapse.9:34 How Do You Treat Airway Obstruction in GPA?14:17 Representative Case of Airway Obstruction in GPA18:00 Airway Stents19:51 Airway Stents Can Migrate20:25 Airway Treatment Considerations23:02 Q: With EGPA-AAV, what is the significance of a decreased DLCO?   How is it determined which pathway could be? causing the decreased DLCO -if it is not Pulmonary hypertension?24:32 Q: Can you review the symptoms of airway disease?25:52 Q:  Can disease also cause swallowing difficulties with food and liquids?26:56 Q: Do you see patients who have a GPA under control according to blood work but have airway restriction in the bronchial tubes?28:26 Q:  Is an increase in presentation of thick mucus an indication of airway narrowing that should be concerning?29:22 Q:  If someone has MPA, could this be part of their disease31:17 Q:  Does Rituxin, which I take for my GPA, help prevent these breathing issues?32:26 Q:  How many airway subglottic stretches can be done? I've had two and suspect that I may be due for another.33:33 Q:  How soon can subglottic stenosis come back after endoscopic treatment?34:12   Q:  Would a speech therapist help with breathing issues?35:49 Q: When considering having these symptoms checked out, who is the best person to try to be seen? Currently, I am being followed by a rheumatologist. Is there a different specialist to seek support for these specific concerns?36:56 Q:  Is there a relation to an increased production of mucus (i.e., coughing and clearing throat more frequently) post SGS dilation?38:10 Q:  Can you tell the difference between inflammation and an infection vs GPA?August 2025Visit the Vasculitis Foundation (www.vasculitisfoundation.org).

0:00
5:42 Airway disease in GPA: Laryngeal Stenosis, Subglottic Stenosis, Bronchial Stenosis
7:14 Why does GPA occur?
8:51 Bacteria (Staph Aureus) Are Associated With Airway Disease Relapse.
9:34 How Do You Treat Airway Obstruction in GPA?
14:17 Representative Case of Airway Obstruction in GPA
18:00 Airway Stents
19:51 Airway Stents Can Migrate
20:25 Airway Treatment Considerations
23:02 Q: With EGPA-AAV, what is the significance of a decreased DLCO? How is it determined which pathway could be? causing the decreased DLCO -if it is not Pulmonary hypertension?
24:32 Q: Can you review the symptoms of airway disease?
25:52 Q: Can disease also cause swallowing difficulties with food and liquids?
26:56 Q: Do you see patients who have GPA under control according to blood work but have airway restriction in the bronchial tube?
28:26 Q: Is an increase in presentation of thick mucus an indication of airway narrowing that should be concerning?
29:22 Q: If someone has MPA could this be part of their disease
31:17 Q: Does Rituxin, which I take for my GPA help prevent these breathing issues?
32:26 Q: How many airway subglottic stretches can be done? I've had two and suspect that I may be due for another.
33:33 Q: How soon can subglottic stenosis come back after endoscopic treatment?
34:12 Q: Would a speech therapist help with breathing issues?
35:49 Q: When considering having these symptoms checked out, who is the best person to try to be seen? Currently, I am being followed by a rheumatologist. Is there a different specialist to seek support for these specific concerns?
36:56 Q: Is there a relation to an increased production of mucus (i.e., coughing and clearing throat more frequently) post SGS dilation?
38:10 Q: Can you tell the difference between inflammation and an infection vs GPA?

August 2025

Visit the Vasculitis Foundation (www.vasculitisfoundation.org).

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YouTube Video UExyNkJ3YXU2dVNtc1MwVUtEbVByTWJ3VG5WQl9pT1JHTS40MzEwNkU4RUE0MjhBRjg4

Airway Diseases in ANCA-Associated Vasculitis August 2025

0:003:58 Key features of EGPA5:40 A few words about eosinophils 9:52 Management of EGPA before eosinophil-targeting TX14:52 What is Benralizumab?15:58 MANDARA Study Design20:00 Asthma remission: an exploratory analysis24:11 Heatmap of Glucocorticoid dose over time25:14 What does BENRALIZUMAB do?26:37 Are there side effects?29:03 Among patients with EGPA who is eligible? 30:32 The future of benralizumab: ongoing studies31:09  Take-home messages33:38 Q: Is it common to switch between Fasenra® and other biologics in the course of                 EGPA?35:44 Q: Could you please clarify what eosinophils are? 37:00 Q: How quickly do patients typically see improvement in symptoms after starting                 Fasenra®?41:12 Q: What are the side effects? Is joint pain common? 45:41 Q: How does a patient's ANCA status affect the decision to use Fasenra®? 48:21 Q: Are there any long-term safety concerns with Fasenra® use?50:11 Q: Is Fasenra® safe to use during pregnancy or breastfeeding? 52:13 Q: Is the drug approved in Belgium? Could you explain how that works? Note:Fasenra® is a prescription medicine used to treat people 18 years and older with EGPA. It is not known if Fasenra® is safe and effective in children with EGPA under 18 years of age. Fasenra® is injected under your skin (subcutaneously) one time every 4 weeks for EGPA.What you need to know about Benralizumab (Fasenra®) for treating EGPA, June 2025 Visit the Vasculitis Foundation (www.vasculitisfoundation.org).

0:00
3:58 Key features of EGPA
5:40 A few words about eosinophils
9:52 Management of EGPA before eosinophil-targeting TX
14:52 What is Benralizumab?
15:58 MANDARA Study Design
20:00 Asthma remission: an exploratory analysis
24:11 Heatmap of Glucocorticoid dose over time
25:14 What does BENRALIZUMAB do?
26:37 Are there side effects?
29:03 Among patients with EGPA who is eligible?
30:32 The future of benralizumab: ongoing studies
31:09 Take-home messages
33:38 Q: Is it common to switch between Fasenra® and other biologics in the course of
EGPA?
35:44 Q: Could you please clarify what eosinophils are?
37:00 Q: How quickly do patients typically see improvement in symptoms after starting
Fasenra®?
41:12 Q: What are the side effects? Is joint pain common?
45:41 Q: How does a patient's ANCA status affect the decision to use Fasenra®?
48:21 Q: Are there any long-term safety concerns with Fasenra® use?
50:11 Q: Is Fasenra® safe to use during pregnancy or breastfeeding?
52:13 Q: Is the drug approved in Belgium? Could you explain how that works?

Note:
Fasenra® is a prescription medicine used to treat people 18 years and older with EGPA. It is not known if Fasenra®is safe and effective in children with EGPA under 18 years of age. Fasenra® is injected under your skin (subcutaneously) one time every 4 weeks for EGPA.

What you need to know about Benralizumab (Fasenra®) for treating EGPA, June 2025

Download the presentation: https://vasculitisfoundation.org/wp-content/uploads/2025/06/What-you-need-to-know-about-Benralmizumab-24JUN2025.pdf

Visit the Vasculitis Foundation (www.vasculitisfoundation.org).

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YouTube Video UExyNkJ3YXU2dVNtc1MwVUtEbVByTWJ3VG5WQl9pT1JHTS42RDgxQ0M2OUIwREZCNjZF

What You Need to Know About Benralizumab (Fasenra®) June 2025

0:002:54 What is avacopan?3:40 Background and development.6:30  Key Study.8:37 What does avacopan do?9:48 Possible side effects and risks.11:36 Drug interactions.13:05 Patient selection considerations.14:49 Monitoring and follow-up.15:50 What have we learned about avacopan since 2021?18:28      Pros and cons19:53 Learn more about avacopan from these resources.20:38 Q:  Can you explain induction therapy?22:37 Q:  Can you talk about this drug for pediatrics?23:22 Q:   Talk about balancing kidney vs liver when taking avacopan.25:28 Q:   Is avacopan effective with an EGPA diagnosis?26:21 Q:   Is avacopan ever used in place of prednisone for the treatment of GCA?26:53 Q:   How far are they into the Stage 4 five-year trial to understand long-term implications?28:13 Q:   When you are first diagnosed, are there some patients who start with a drug like Rituximab and just avacopan, or does everyone get some steroids?28:43 Q:  With liver toxicity being an issue, would taking a liquid liver supplement be suggested?29:11 Q:  When trying to do a reeducation off of Rituximab and avacopan, would you try to taper off Rituximab or avacopan first?29:56 Q:  How can I enroll in the Phase Four trial?30:30  Q:  In the Advocate Trial, were the patients matched on their intolerance to steroids?31:03 Q:  Can you clarify whether avacopan was used in conjunction with prednisone in the trials?33:10 Q:  If you’ve lost one of your own kidneys and have a transplanted kidney is avacopan indicated along with it?34:09 Q:  The drug makes me feel so much better, but the cost factor is so out of reach. 36:09 Q:   Is there a blood test to see if avacopan is making a difference?37:09 Q:  What does it mean when you say, active severe disease?37:56 Q:   Do we have data from those who have been on avacopan for a year?38:43 Q:  What should I do if I miss a dose of avacopan?39:02 Q:  Can you just stop cold turkey with taking avacopan?40:42 Q:   What is a flare?What You Need to Know About AVACOPAN (Tavneos®)June 2023Visit the Vasculitis Foundation (www.vasculitisfoundation.org).

0:00
2:54 What is avacopan?
3:40 Background and development.
6:30 Key Study.
8:37 What does avacopan do?
9:48 Possible side effects and risks.
11:36 Drug interactions.
13:05 Patient selection considerations.
14:49 Monitoring and follow-up.
15:50 What have we learned about avocopan since 2021?
18:28 Pros and cons
19:53 Learn more about avacopan from these resources.
20:38 Q: Can you explain induction therapy?
22:37 Q: Can you talk about this drug for pediatrics?
23:22 Q: Talk about balancing kidney vs liver when taking avacopan.
25:28 Q: Is avacopan effective with an EGPA diagnosis?
26:21 Q: Is avacopan ever used in place of prednisone for the treatment of GCA?
26:53 Q: How far are they into the Stage 4 five-year trial to understand long-term implications?
28:13 Q: When you are first diagnosed, are there some patients who start with a drug like Rituximab and just avacopan, or does everyone get some steroids?
28:43 Q: With liver toxicity being an issue would taking a liquid liver supplement be suggested?
29:11 Q: When trying to do a reeducation off of Rituximab and avacopan would you try to taper off Rituximab or avacopan first?
29:56 Q: How can I enroll in the Phase Four trial?
30:30 Q: In the Advocate Trial, were the patients matched on their intolerance to steroids?
31:03 Q: Can you clarify whether avacopan was used in conjunction with prednisone in the trials?
33:10 Q: If you’ve lost one of your own kidneys and have a transplanted kidney is avacopan indicated along with it?
34:09 Q: The drug makes me feel so much better, but the cost factor is so out of reach.
36:09 Q: Is there a blood test to see if avacopan is making a difference?
37:09 Q: What does it mean when you say, active severe disease?
37:56 Q: Do we have data from those who have been on avacopan for a year?
38:43 Q: What should I do if I miss a dose of avacopan?
39:02 Q: Can you just stop cold turkey with taking avacopan?
40:42 Q: What is a flare?

What you need to know about Avacopan
June 2023

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YouTube Video UExyNkJ3YXU2dVNtc1MwVUtEbVByTWJ3VG5WQl9pT1JHTS5ENjg3MEUyQ0IzODMzQThB

What You Need to Know About Avacopan (Tavneos®) Part One

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