Listen to an exciting new VF audio podcast introducing you to medical specialists who are leading research and understanding of vasculitis. The podcasts are hosted by Ben Wilson, and Kaley Beins, two patients with vasculitis.
Listen to the podcast episodes right here, right now!
Episode 1: Introducing the hosts of our new podcast series, Ben Wilson and Kaley Beins. Ben and Kaley share their unique experience as two young adults with vasculitis, and how they have met their challenges along the way.
Episode 2: Ben and Kaley talk with Joyce Kullman, Executive Director of the Vasculitis Foundation.
Episode 3: Ben and Kaley talk with Rennie Rhee, MD, about the microbiome.
Episode 4: Ben and Kaley join Dr. Kaitlin Quinn, an NIH researcher and lead of the Medstar Georgetown University Hospital vasculitis clinic who also happens to be Kaley’s rheumatologist. Dr. Quinn describes how her interest in caring for patients with vasculitis began and explains her ongoing research on large-vessel vasculitis.
Episode 5, Part 1: In the first segment of this two-part episode of VF’s Vasculitis Visionaries, Ben and Kaley speak with Mark and Nancy Anderson, two medical professionals who met at Massachusetts General Hospital and have been personally affected by vasculitis. Dr. Anderson was one of two first place winners of the 2019 VF Recognizing Excellence in Diagnostics (V-RED) award, which recognized the active role he played in his wife Nancy’s diagnosis with MPA vasculitis. Mark and Nancy discuss the difficulty in getting the correct diagnosis and highlight ways in which our healthcare system could better serve patients.
Meet our podcast hosts
Ben Wilson is a play-by-play sports broadcaster originally from Milwaukee, Wisconsin, who is currently based in Las Vegas, Nevada. He has called games on TV and radio for a variety of networks, such as Fox Sports Midwest, SEC Network+, and ESPN+, among others. Ben was diagnosed with EGPA (formerly Churg-Strauss Syndrome) in 2014, just before beginning his senior year at the University of Missouri. He started working with the Vasculitis Foundation in 2017 as a youth ambassador and currently helps with development of the VF’s Young Adult community.
Kaley Beins, MPH is a public health practitioner who studies chemical exposures and disease development. After being diagnosed with GPA vasculitis in May 2015, Kaley combined her interest in environmental health and advocacy with her desire to support other patients. She wrote her master’s thesis on ANCA-associated vasculitis. Since then, she has continued to support the Vasculitis Foundation’s mission and is especially interested in empowering patients. Currently a federal consultant, she conducts research and plans outreach for toxicology projects and initiatives. She has worked in four countries, but is happy to be back home in the D.C. area. In her spare time, Kaley writes theatre and opera reviews for an online publication and takes long walks with her husband Peter and their dog Vinnie.
The Vasculitis Foundation thanks our sponsors for supporting our new podcast series.