Young Adults Connect at Nashville Conference, Offer Hope to One Another Young adults between 18 and 30 came from all across the United States and
The Importance of Early Diagnosis: An Experience with GPA Ashley Fry’s illness began with something as common as sore gums. But what started as simple
Patients Needed for International Childhood Takayasu Study My name is Katrina Bargender, and I was diagnosed with Takayasu arteritis when I was 14 years old.
His Grandmother’s Kidney Donation Helped Save His Life Nathan Rose, 17, plans to spend his spring break with his grandmother in Arkansas. The high schooler
Allison Long Keeps Moving Toward Her Goals: A Marathon and a Medical Career Allison Long had never run a marathon, but it was a goal.
Dr. Catherine Sims Leads Team Researching Pregnancy and Vasculitis Pregnancy can be complicated, even for healthy women. But for someone with a rare autoimmune disease,
Sharan Knoell Champions Doctor Who Diagnosed Her Sharan Knoell is one of those rare vasculitis patients who got a diagnosis quickly. She has two people
Rare Disease Day is All About Sharing Information Get ready to show your support for everyone who has been diagnosed with a rare disease. Rare
Annie Reynolds laughingly tells her mom she is her glitch child. She says she has been a monster – making her siblings walk on egg
Board Members Create Holiday Magic This Thursday, December 19, something extraordinary is happening: Our new board members, Dahlia (Liao) Mak and Noelle Creamer, are turning
