2019 International Vasculitis Symposium
July 19-21, 2019
3200 E. 81st Street, Bloomington, Minneapolis  55425


Join us for the 2019 International Vasculitis Symposium.  This 3-day conference, held every other  year, brings together people living with vasculitis, their families, vasculitis medical experts, and other healthcare professionals.  There will be general sessions for all attendees, special Q&A breakout sessions for smaller groups, and panel discussions.

Here’s your personal invitation to the 2019 International Vasculitis Symposium from Joyce Kullman, Executive Director

Dr. Sara Jane Ward will be presenting The Science Behind CBD Oil

Julie McGregor, MD, will present A Holistic Approach to Treating Autoimmune Disease

Dr. Rennie Rhee will talk about the Role of Microbiome Research in Vasculitis

All ages are welcome to attend the symposium. This year we are organizing some special groups by age and interest.
Pediatric Patients (17 and under) and Their Parents/Guardians
College and Early Career (ages 18-24)
Careers and Families (ages 25-35)
Caregivers and Managing Families

Regular Registration Fee: $240/person April 1 – July 13, 2019
Pre-registration is required!

The Vasculitis Foundation would like to thank the following sponsors for generously supporting the 2019 International Vasculitis Symposium:

Presenting Sponsor

Hope Sponsor

Caring Sponsors

Symposium Headquarters:
Hyatt-Regency (next to the Mall of America)
3200 E. 81st Street, Bloomington, Minnesota
Room rate:  Single/Double: $125 +taxes; Triple: $145 +taxes; Quad: $155 +taxes
Room block closes June 28, 2019 or as soon as block is filled
Reserve: Call 800.233.1234 or Click here to reserve online:  Group code:  G-VASC


Sara Amodio, Baird, MSW, EdD
Amy M. Archer, MD, PhD, Northwestern Feinberg School of Medicine
Elizabeth J. Brant, MD, Dartmouth University
Meaghan Carpenter, Young Adult Leader
Sharon Chung, MD, MAS, University of California – San Francisco
Suzanne DePaolis, VF Board/EGPA patient
Anisha B. Dua, MD, MPH, Northwestern Feinberg School of Medicine
James A. Garrity, MD, Mayo Clinic
Jennifer Gordon, PhD, Temple Lewis Katz School of Medicine
Peter C. Grayson, MD, M.Sc.. NIH NIAMS
Brandon Hudgins, Young Adult Leader
Aamir Hussein, MAPP University of Chicago Pritzker School of Medicine
Brenda James, teacher
Tanaz A. Kermani, MD, UCLA Medical Center
Matthew J. Koster, MD, Mayo Clinic
Carol A. Langford, MD, MHS, FACP, Cleveland Center for Vasculitis Care and Research
Allison Lin, Founder/Director, Violin for Vasculitis & Young Adult Leader
Julie McGregor, MD, Integrative Medical Clinic of North Carolina

Peter A. Merkel, MD, MPH, University of Pennsylvania
Erin K. O’Brien, MD, Mayo Clinic
Kathleen M. O’Neil, MD, Indiana University School of Medicine
Rennie Rhee, MD University of Pennsylvania
Brent A. Senior, MD, FACS, FARS, University of North Carolina
Ulrich Specks, MD, Mayo Clinic
Jason M. Springer, MD, Kansas University
Kate Tierney, Young Adult Leader
Jennifer Trofe-Clark, PharmD, FAST, FCCP, BCPS, University of Pennsylvania
Carla Ulbrich, Professional Smart Aleck/Funny Songs/Comedy
Sara Jane Ward, PhD, Temple University, Lewis Katz School of Medicine
Kenneth J. Warrington, MD, Mayo Clinic
Linda Wagner-Weiner, MD, University of Chicago
David A. Wetter, MD, Mayo Clinic
Ben Wilson, Young Adult Leader
Ladan Zand, MD, Mayo Clinic


Preliminary Schedule – sessions may move around depending on speakers’ travel schedules

Friday, July 19, 2019
11 am – 9 pm Information and Registration Desk Open ( please note, pre-registration is required; deadline July 13, 2019
1 pm – 1:45 pm Welcome and Let’s Symposium! General Session for all Attendees
Special Presentation:  What Got You Here, Won’t Get You There!
2 pm – 2:45 pm Breakout Session #1 (choose one session to attend)

    • Vasculitis 101: For the Newly Diagnosed Patient and Their Families:  Kenneth J. Warrington, MD
    • Vasculitis 201: What’s New for Me?:  Peter A. Merkel, MD
    • Parents and Their Pediatric Patients (patient ages 17 and under): Linda Wagner-Weiner, MD and
      Kathleen O’Neil, MD
    • College and Early Career (ages 18-24 years):  Allison Lint, Kate Tierney, Meaghan Carpenter, Brandon Hudgins, and Ben Wilson
3 pm – 3:45 pm Breakout Session #2 (choose one session to attend)

  • Individual Disease Sessions – groups will be divided by the different forms of vasculitis for short presentations   and Q&A
    – GPA/MPA
    – EGPA
    – Large Vessel Vasculitis (GCA, PMR, TAK)
    – Rarest of the Rare Vasculitis
  • Parents and Pediatric Patients’ session continues: Linda Wagner-Weiner, MD and Kathleen O’Neil, MD
4 pm – 4:45 pm Breakout Session #3 (choose one session to attend)

  • Parents of Pediatric Patients only
  • Pediatric Patients Session only (ages 17 and under)
  • Careers and Families (ages 25-35)
  • Journaling Your Way to Better Health:  Suzanne DePaolis
  • Yoga in the Park (weather-depending) or indoors:  Kalen Young
4:45 pm – 6:45 pm Free Time!  Dinner on your own or with your individual disease group
The Mall of America has many different restaurants to choose from.
7:00 pm Dessert Welcome Reception
Keynote Address
Saturday, July 20, 2019
7 am – 8 am Continental Breakfast
8 am – 10:45 am General Session for all Attendees
Welcome and Introductions

  • Monitoring Disease Activity:  Carol A. Langford, MD
  • The Role of Genetics in Vasculitis and the Environmental Questions Everyone Asks
  • The Role of Microbiome Research in Vasculitis
  • The Science Behind Health Eating/Heart Healthy/Anti-Inflammatory Diets/Supplements: Julie McGregor, MD
  • Medications for Patients with Vasculitis
11:15 am – Noon Breakout Session #1 (choose one session to attend)

  • The Science Behind CBD Oil:  Sara Jane Ward, PhD, Temple University, Lewis Katz School of Medicine
  • Eye Involvement in Vasculitis:  James A. Garrity, MD
  • Symptom Tracking:
  • Prednisone—The Good, the Bad, the Ugly:  Sebastian Sattui, MD, Hospital for Special Surgery
  • Dermatology/Skin Involvement in Vasculitis:  David Wetter, MD
12 noon – 1 pm Lunch
1 pm – 1:45 pm Breakout Session #2 (choose one session to attend)

  • CBD Oil Panel Discussion and Q&A:  Sara Jane Ward, PhD, Temple University, Lewis Katz School of Medicine, Jennifer Trofe-Clark, PharmD, FAST, FCCP, BCPS, University of Pennsylvania, Kate Tierney
  • Ear/Nose/Throat Involvement:  Brent Senior, MD
  • Bone Health
2 pm – 2:45 pm Breakout Session #3 (choose one session to attend)

  • Lung Involvement in Vasculitis:  Ulrich Specks, MD, Mayo Clinic
  • Neuropathy/Pain Management with Nerve Damage:  Tanaz Kermani, MD, UCLA
  • Stress Management
  • Prednisone–The Good, the Bad, the Ugly (offered a second time):  Sebastian Sattui, MD, Hospital Special for Surgery
  • Fertility and Pregnancy Concerns and Update on VPREG
3 pm – 3:45 pm Breakout Session #4 (choose one session to attend)

  • Kidney Involvement in Vasculitis
  • Career and Family (25-35)
  • Adding Exercise to your Management of Vasculitis
  • Basic Health Policy – Insurance Programs:  Aamir Hussain, MD
4 pm – 4:45 pm Breakout Session #5 (choose one session to attend)

  • Caring for the Caregivers (for parents of children with vasculitis)
  • Caring for the Caregivers (for working spouses/partners of patients with vasculitis)
  • Caring for the Caregiver (for retired caregivers of patients with vasculitis)
  • Social Media Engagement – Best Management Practices
  • College and Early Career (ages 18-25) and Career and Family (ages 25-35)
  • Yoga in the Park (weather-depending) or indoors
6 pm Banquet and Entertainment Program
Sunday, July 21, 2019  
7:30 am – 8:30 am
8 am – 8:30 am
Continental Breakfast

VF 2019 Annual Membership Meeting and Election of Directors


8:30 am – 11:45 am General Session for all the Attendees

  • Mindfulness–The Research and the Practice
  • Remission: How to Get There and Stay There
  • Research Advances Funded by the VF
  • Translational Vasculitis Research at the National Institutes of Health
  • 2019 International Vasculitis & ANCA Workshop Report–What Does the Future Hold?
11:45 am – 12 noon Wrap-Up and Goodbye


The Hyatt-Regency is near many family-friendly activities! Plan to  attend the symposium and enjoy a family vacation!

Mall of America
1.1 mile away:  It’s a quintessential mall experience you will not find anywhere else. Discover one of the theme parks and various attractions, like Nickelodeon Universe, LEGO, and the Minnesota Children’s Museum. Enjoy Rick Bronson’s House of Comedy, “Minnesota’s home for laughs.”

Sea Life Minnesota Aquarium 
1.5 mile away:  Home to thousands of aquatic creatures, Sea Life Minnesota Aquarium is located inside the Mall of America and is a must-see. The largest underground aquarium in the world invites you to get up close with a vast array of underwater creatures.

Science Museum of Minnesota
12.5 miles away:  The Science Museum of Minnesota offers a hands-on approach to science learning and entertainment. It features the Experiment Gallery, an Egyptian mummy, an authentic Mississippi River towboat, a convertible-dome Omnitheater and interactive exhibits for all ages!